Aa
Aa
A
A
A
Close
15915009 tn?1488868338

Wondered about Recovering

I didn't really ask any questions back when I was first diagnosed, but I realized now 1 1/2 years later that I have a few questions.

1) I wondered why I was in the ICU when I was officially diagnosed? Everything went in one ear and out another that day and I was not myself, but I knew I had Thyroid Storm, which was linked to misdiagnosed of Graves Disease.

2) Why is treatment so long? I never really caught that part since I was tired and out of it.

3) I had mini seizures before treatment when I ran while doing sports. I still get them once in awhile if I run now that I'm on medications, but not as bad as usual. Why am I still getting them?

4) How long will I need follow up care and what will it bring to my future (eg. kids, jobs etc.)

Thanks in advance!
Best Answer
649848 tn?1534633700
COMMUNITY LEADER
1)  You were in ICU because Thyroid Storm is a life threatening condition and you needed constant monitoring, until the storm passed.

2)  Treatment lasts as long as you remain hyperthyroid or unless you choose to have your thyroid removed, ablated, etc.

3)  What type of "seizures" are you having?  What happens when you have them?

4)  You will, most likely, need follow up care (routine blood work) for the rest of your life, but particularly, as long as you remain on any type of anti-thyroid medication or thyroid hormone medication, in the case of removal or ablation.  You can have a normal future, including having college, jobs, children as long as you maintain adequate thyroid hormone levels, whether that be through taking the anti-thyroid medications or thyroid hormones if you should decided to have your thyroid removed or ablated.

Graves Disease "can" go into remission and you could maintain "normal" thyroid hormone levels or you could develop hypothyroidism at some point and require replacement thyroid hormones.
6 Responses
Sort by: Helpful Oldest Newest
15915009 tn?1488868338
Hmm...well, now that I have had been put on the medication for it, it's happening way less frequent now.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Those seizures don't sound like they are linked to hyperthyroidism/Graves disease...you need to discuss them with your doctor.
Helpful - 0
15915009 tn?1488868338
For seizures, I don't know what kind they were, but I knew that they were not grand mal.

What would happen is that after I run very fast in PE or do jumps in dance, particularly in Ballet, I would collapse and shake a little and my muscles would seize up for up to 5-10 seconds, then I would go back on what I was doing in the moment.
Helpful - 0
Avatar universal
The beginning stage of acute thyroid inflammation may cause severe hyperthyroidism, so the TSI antibodies must be measured to confirm GD
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I forgot to mention that you "must" be consistent with taking your medication...
Helpful - 0
Have an Answer?

You are reading content posted in the Thyroid Disorders Community

Top Thyroid Answerers
649848 tn?1534633700
FL
Avatar universal
MI
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.