Aa
guidance after thyriodectomy
Hello, I am new to the forum. Just had my thyroid removed in March 2015. Had Hasimoto's on left side and 3 noncancerous nodules on the right side. If I would have known that my symptoms would be worse after removal I would have never had it removed. I am more tired, brain fog is worse, no energy, my blood pressure is more out of control than before ( was on one med, now of 3), feet and ankles swelling, more hungry (all the time), irregular heart rate, and muscle weakness. On Synthyroid 125mcg, level is at 1.04, T3 18. Tried Cytomel had major side effects had to stop it. Try Armour 60 mg and Synthroid 60 mg until levels where needed with Armour. Had to stop Armour because every night was having nightmares, so now back to Synthroid. I am soooo tired I feeling like crap! Can't exercise because my blood pressure gets so high I pass out. Anyone have any insight? Could I have a problem with my pituitary or adrenal glands as well? Any help would be appreciated. I am tired of not having any desire to do anything or have any energy.
TSH is a pituitary hormone. Its only function is as a messenger from the pituitary to the thyroid telling the thyroid to produce more hormone when it senses levels are low.
T4 is the "storage" form of the thyroid hormones. It floats around in your blood stream until cells need thyroid hormone.
T3 is the "active" form of the thyroid hormones, the only form cells can use. So, T4 has to be converted to T3 when there is demand for T3.
T4 can also be converted to RT3. RT3 is inert. Converting T4 to RT3 is the body's defense against too high FT3 levels. Higher RT3 levels can be adaptive if there's a reason for them (illness, malnutrition, starvation, etc.). However, sometimes higher RT3 levels remain after the stimulus that caused them is long gone or because of the meds we take and how we take them. This is when RT3 can be a problem.
So, your thyroid produces mostly T4. After that, there is a fork in the road, and the T4 can either be converted to FT3 or to RT3. One rises at the expense of the other.
T4 is the "storage" form of the thyroid hormones. It floats around in your blood stream until cells need thyroid hormone.
T3 is the "active" form of the thyroid hormones, the only form cells can use. So, T4 has to be converted to T3 when there is demand for T3.
T4 can also be converted to RT3. RT3 is inert. Converting T4 to RT3 is the body's defense against too high FT3 levels. Higher RT3 levels can be adaptive if there's a reason for them (illness, malnutrition, starvation, etc.). However, sometimes higher RT3 levels remain after the stimulus that caused them is long gone or because of the meds we take and how we take them. This is when RT3 can be a problem.
So, your thyroid produces mostly T4. After that, there is a fork in the road, and the T4 can either be converted to FT3 or to RT3. One rises at the expense of the other.
It is important to post your lab work with the result for each test and (ranges for the test listed) - see example below.
TSH - 3.4 (.45 - 4.5 uIU/mL)
Others will be able to guide you regarding optimal ranges for the hormones.
TSH - 3.4 (.45 - 4.5 uIU/mL)
Others will be able to guide you regarding optimal ranges for the hormones.
I went through 5 thryoid manufacturers until I tried Tirosint. I also went from dosages of 175 mcg down to 81 mcg with and without T3 added to the regiment. Currently taking 100mcg of Tirosint daily w 50000ug Vit D weekly. Still working on getting levels correct and dosage being changed to 112mcg of Tirosint. This has been over the last 2 years - but it has been worth the effort. May endo is fabulous with working to eliminate the symptoms yet get the hormones within acceptable (optimal) ranges.
Go to Hormone Restoration - http://hormonerestoration.com/
Dr. Lindner treats only thyroid patients as he discovered most endos don't want to or can't stabilize their thyroid patients.
Another good site is Stop The Thyroid Madness
http://www.*************************/
She was really down on doctors in her first book but has tempered the attitude in the second book.
As you read these sites you will be able to do research on your own.
If you are in the U.S. someone on the site may be able to direct you to endos in your area who really do specialized in the treatment of Thyroid (hyper or hypo) Disease. If you are in another country, there may be some who may be able to help you out.
If you are overdosed on the T4 med, many of the symptoms you listed are common. Doctors go by the TSH result and don't treat the symptoms. You need to have the symptoms treated and then the dosage will be correct for you.
Yes you will experience all the symptoms you listed until the endo gets your medication correct. It is important to have your Reverse T3 tested as well as Vit D3 (D3 is absorbed into the body more readily and that is what thyroid patients need to take, not Vit D2).
When working with an endo make sure that 80% or more of the patients they treat are thyroid patients. Most endos treat diabetic patients and know squat about treating the thyroid symptoms and only look at the TSH level. It is important the Free T4 and Free T3 have the correct ratio and the Reverse T3 level is low (means it is efficiently assisting the T4 to convert to TSH (I believe that explanation is correct).
If you go to healthunlocked.com (Thyroid UK). They have a lot of information as well on Thyroid levels,
There are other hormones that are important to have tested and have at optimal levels in your system.
Vit D3 (Vit D,25 OH, Ttl)
Ferritin
Folate
Magnesium
Selenium
B12 (for the brain)
Vit K (gatekeeper for hormones to get them to the right part of the body so they can assist organs, etc that need the hormone to function properly)
Cortisol 4 spit - saliva test (if you have been hypo or hyper for a long period of time, your adrenals may be exhausted and will need to take medication to address this until the adrenals are restored to a healthy state.)
ACTH Plasma
DHEA-Sulfate
This may seem like a long list of tests - but you need to know what your hormone levels are at this point so you can identify where you are under optimal range and can address it with supplements.
One benefit to having the optimal ranges of the different hormones and having your thyroid levels correct for you, if you have notice a drop or no libito, that gets a lot better. If you didn't have it before, you will have it after.
Go to Hormone Restoration - http://hormonerestoration.com/
Dr. Lindner treats only thyroid patients as he discovered most endos don't want to or can't stabilize their thyroid patients.
Another good site is Stop The Thyroid Madness
http://www.*************************/
She was really down on doctors in her first book but has tempered the attitude in the second book.
As you read these sites you will be able to do research on your own.
If you are in the U.S. someone on the site may be able to direct you to endos in your area who really do specialized in the treatment of Thyroid (hyper or hypo) Disease. If you are in another country, there may be some who may be able to help you out.
If you are overdosed on the T4 med, many of the symptoms you listed are common. Doctors go by the TSH result and don't treat the symptoms. You need to have the symptoms treated and then the dosage will be correct for you.
Yes you will experience all the symptoms you listed until the endo gets your medication correct. It is important to have your Reverse T3 tested as well as Vit D3 (D3 is absorbed into the body more readily and that is what thyroid patients need to take, not Vit D2).
When working with an endo make sure that 80% or more of the patients they treat are thyroid patients. Most endos treat diabetic patients and know squat about treating the thyroid symptoms and only look at the TSH level. It is important the Free T4 and Free T3 have the correct ratio and the Reverse T3 level is low (means it is efficiently assisting the T4 to convert to TSH (I believe that explanation is correct).
If you go to healthunlocked.com (Thyroid UK). They have a lot of information as well on Thyroid levels,
There are other hormones that are important to have tested and have at optimal levels in your system.
Vit D3 (Vit D,25 OH, Ttl)
Ferritin
Folate
Magnesium
Selenium
B12 (for the brain)
Vit K (gatekeeper for hormones to get them to the right part of the body so they can assist organs, etc that need the hormone to function properly)
Cortisol 4 spit - saliva test (if you have been hypo or hyper for a long period of time, your adrenals may be exhausted and will need to take medication to address this until the adrenals are restored to a healthy state.)
ACTH Plasma
DHEA-Sulfate
This may seem like a long list of tests - but you need to know what your hormone levels are at this point so you can identify where you are under optimal range and can address it with supplements.
One benefit to having the optimal ranges of the different hormones and having your thyroid levels correct for you, if you have notice a drop or no libito, that gets a lot better. If you didn't have it before, you will have it after.
Have an Answer?
You are reading content posted in the Thyroid Disorders Community
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
