Thank you so much for responding so quickly. It's amazing how we are supposed to believe that GP's know everything. I really appreciate your comments and it a least makes me feel like I am not going a mad and that there is a light at the end of the tunnel.
Not sure what medical books your GP is looking at but it is almost normal for a bounce in hypo to hyper until a stable amount of hormones are moving through you.
that is a head shaker comment for me on your GP :{
If you are on a a T4 med is is not a fast acting hormone. It requires a conversion. If you are dropping med dosages and then upping them too quickly your body will not be able to stabilize and it could take a much longer time to become stable. I don't think you were given good advice there either.
If anything a "tweek of meds" like a small amount of less medication could be discussed with your doctor to see if that gets you over the panic episodes. I would assume if you asked this you would need to be prepared to do it for at least 6 weeks to see if the "tweek" was right for you.
If not - bad news is - you could fall into hypo symptoms again and it will take another 6 weeks to build you back up returning to the dose you are on now.
And Splitting the meds 2x's a day - I know with my medication on Armour - due to the direct T3 that IS the best way to take it - only because of the direct T3 and the higher amount of T3 that is in the pill.
On a T4 med that is a long conversion time - I don't know if that would work either - but it may after a few weeks eventually pull your conversion into a cycle that could maybe work. I don't know - every one is different.
Sorry haven't been about, Trying to deal with a new job as well as not feeling great. My TSH has gone from 7.2 to 0.84 in 6 weeks so I think maybe I am going from Hypo to Hyper, even though my GP says this is not possible. I know from my own research that it can hapen when you are first diagnosed. Most of my symptoms have gone it's really the anxiety that is causing me grief now, I just seem to become anxious radmonly for no apparent reason. Someone has suggested dropping my dose for a few weeks and then slowly building it back up again, has anyone tried this succesfully. I have also now spoken to people who take there levo twice a day once in the morning and once at lunch time to stop them from feeling hyper. I always believed that you had to take your dose first thing in the morning. Also just want to say thanks for everyones support don't know what i'd do without you all.
Hi there!Sometimes Dr.'s have no clue when it comes to Thyroid issues! ;( Anyways, my TSH was recently at 38 and I went to meds to lower it and it went to 4.8 and then now at 1.78 and so i was then told to stick to my dose of Thyroxine. ( i am HyPO) anyways, so then i asked about whether one could go from HYPO to HYPER, and so the answer is YES...could it be that with your change of dose you are going from one to the other? I know that it could cause heart palp. amongst other things and so maybe get your TSH checked again. Everyone is different, i have a friend that just can not get out of bed if her TSH is above 3....so it varies. I would make sure the dose is correct for you, maybe change the dr. and seek a 2nd opinion or a Endocrinologist. Good luck ;) I never knew how complicated it can get if your Thyroid is not functioning correctly...I finally feel somewhat normal again ;)
Wow, what a high TSH. Mine is usually like .006 or .009 when I'm not on Tapazole.
Beleive me Kaz..it took a lot of 'Graves Rage' and DEMANDING.
It wasnt easy but I stuck to my guns.....
I figured....I've got this for life and was on a rollercoaster many times where in the end, I told my Doc....'If this is life, I dont want it.
That was the turning point.
Drastic as it sounds but after Graves, Hyper to Hypo every 2 weeks, Thyca, 3 episodes of Fibrillations in 2 weeks.....
I couldnt live like that anymore.
So had RAI (as surgery was too risky at the time) and then keyhole TT.
Amazing how the thyroid causes Graves Rage....I even told the Endo I was going to let my Butcher take my thyroid out !
Gawd I was shocking before RAI in June this year.
Havent had the Graves Rage since.
I am 'tweaking' my meds at the moment so a little 'up and down' but nothing as bad as before RAI.
than you all for your comments. i had a horrible experience yesterday felt like I was just going to collapse , my legs and body felt like jelly. Iwill let you lnow my blood results when i get them tommorrow. Smilerdeb wish I could say the same about my doctor.
True Stellla........some are very drug sensitive (like me) and it only takes a few days for the thyroxin to send me hyper so I am very careful in my dosage of thyroxin.
I dont do it unless my Doctor tells me too.
We work together as a team and hes a great Doc.
I think sometimes even smaller than that Deb - but I suppose it depends on the TSH.
50 seems a bit big to me though too.
I know my increases were in 15mgs - so that roughly was I believe close to .25 on Synthroid.
Well either way - I think the poster is calling the doc Monday to get all the tests.
Good Move on that!
Dont they normally increase by 25mcg each time to avoid hyper?
Thats always been my knowledge.
Maybe I am wrong.
And yes ...I have had those symptoms BOTH HYPO and HYER.
They are Hell.
Debs
So you were upped another 50 at one increase. :(
Thank you so much, I will ask for all my bloods on monday. I too seriously doubt my GP's knowledge on this subject but don't know who else to turn to. I was on 50 mcg before the increase.
What dose were you on before the increase?
No no no
That is not right.
At least a Total T4 should have been done too ( which really doesn't say much)
If TSH is the only test your doctor is running to determine increases in Levo -- I question his/her expertise in thyroid problems.
You need exact testing and the Free T3 and the Free T4 (to start) needs to be done with every TSH lab too.
You could be binding your T4 and not releasing the T3 and that is why your meds are making you feel better for a couple of weeks and then dumping on you. ( Just to name one senerio)
And then you are getting the song and dance of depression which so many patients get when inadequesnt testing and treatment is involved.
No no no -- call the office today and ask "exactly" what tests were done to determine the increase and get the numbers of all the blood work.
Remind him/her that Vit B and C depletion is also a problem for many Hypo's along with magnesium and zinc deficiencies.
KEEP ALL YOUR BLOOD WORK AFTER EVERY TEST.
They only seem to test TSH levels. That's the only result they ever give me.
What actual blood tests determined the increase of Levo? Just TSH ?
It sounds thyroid related and if you could post exactly what tests were done and the labs - some may respond more on what the next step is that they would consider to do.