I feel like I have no where else to turn and I need help.
I've had 4 endocrinologists (including one from Penn and one from Cooper, two highly respected local hospitals) dismiss me with a laugh - your TSH is fine, you are fine. Eat less, exercise more = lose weight. Try 3x as hard post partum. Oh and here are antidepressants - 12 kinds in 10 years with no success. Never mind that my chief issue is fatigue. (No apnea issue at play...12 hrs a night isn't enough, necessary naps, etc.)
All this despite my symptoms: extreme fatigue, "treatment resistant" depression/anxiety, unable to lose weight, random weight gain, despite healthful eating; constipation; dry brittle hair, skin, nails; menstrual changes; body temp average 97 degrees; exercise intolerance; consistently COLD, etc. All of this worsened post pregnancy (I had a baby at 30 so age or pregnancy?). I don't smoke, drink or eat much, let alone meat/eggs or drink soda or even diet drinks, nor many processed foods.
I have BEGGED for testing beyond TSH for for the past 3 years. Non-insurance internist finally did my hormone panel in early 2015 and found this:
TSH 1.09 (lowest in 13 years per available bloodwork, but never higher than 2.5)
Total T4 5.6 range 4.5-12 mcg/dL
Free T4 Index (t7) 1.6 range 1.4-3.8
Free T4 .9 range .8-1.8 nj/dL
Free T3 2.9 range 2.3-4.2 pg/mL
Total T3 101 range 76-181 ng/dL
T3 uptake 29 range 22-35%
IGF I, LC/MS 207 range 53-331 ng/mL
Total Cortisol 6.5 (no range noted on Quest paperwork) [Once had a 3.5 AM cortisol serum when range should have been 8-12 at that early time of day; dismissed by previous private practice endo as a fluke]
LDL Cholesterol in range at 118 (under 130 recommended)
Hemoglobin A1c 5.6
Hormone levels all look okay according to internist.
***Internist also ordered a thyroid ultrasound. Found a 4 mm nodule without calcification on right plus enlarged 27 mm lymph node on left side.***
Internist ordered me to endocrinologist for nodule biopsy. Endocrinologist consulted about nodule urged a wait and see - another ultrasound in two years - and told me flat out that I am not hypothyroid. Also questioned the internist's qualifications. Laughed at the blood tests she ordered for me, what she recommended as treatment, etc. endocrinologist suggested, albeit in a concerned way, that I was doctor shopping to hear what I wanted to hear, and told me that pursuing thyroid hormone would lead to destroying my bones and my heart. My symptoms might just seem like they fit perfectly, etc.
My other issue is that the internist requires a year long $4k cash contract to treat - no insurance accepted. She wants to enroll me in her weight loss clinic and mentioned hcg diet with injections...I'm not wild about the structure of her office and it's raising red flags. I didn't go for weight loss (I am about 45 lbs overweight but still a size 12 with good stats - my overall health, stamina and mental health is more important to me right now) But so far she's been the only one to test T3 & T4 and actually say it's hypothyroidism. Between my discomfort with that and the endocrinologist's certainty that I was not hypo...rock and hard place.
So main questions:
1. Do you believe I am hypothyroid based on my blood work?
2. Do you think I should wait and see about the nodule on thyroid and enlarged lymph node?