I think my son has Tourette's also. We started noticing symptoms when he was around five. He started with a costant clearing of the throat. My husband opened up to me and told me that he thinks he himself has it as well, but never told me because the tics got better and he knows how to hide them well. Now my son has started licking his shoulder constantly. For a while he was jutting out his chin a lot. The licking of the shoulder (he's now 6) has by far been the most disturbing of his tics because it's very obvious and we're worried he will be teased. Plus his shirt is always wet. He does not have ocd-like symptoms, but he excites easily. Like your son, my son tells me that he can't help it or he just has to do it or his "mouth" made him do it. I feel terrible because I've asked him to stop doing it several times, but then my husband told me that is the wrong thing to do. I guess the tics have to be expressed. My husband said as he got older, he was able to learn to suppress them until he got to an area that he could do so with privacy. We took my son to a neurologist who said if he does have tourette's there's nothing really we can do about it except sometimes opt for certain medications, but he doesn't think his tics are severe enough to pursue that route and that the medications can sometimes cause other side effects. Additionally, he said that children with adhd will take the meds and then start developing tics. I know that adhd and ocd can go hand in hand with Tourette's. Either way, I wish you all of the luck in finding out a diagnosis.
I have Tourette Syndrome. My first tics were at the age of 5. I kept on gulping, then it spread out to scrunching my nose, rolling my eyes, and jerking my neck and hitting my stomach. An throat clearing, and other vocal tics. I really think you son might have tourette syndrome. Some children are diagnosed as early a 2 years old. I was diagnosed when I was 13, because of some issues are family had, we couldn't go earlier. The ealier you catch the TS the more help you can get, the more help you can get the more you can work with the tics.
here is a web site I made: isthistourette.web.com
and my youtube is: youtube.com/user/isthistourettes
they both have info about my tics and on youtube you can see them!!
:)
good luck!!
What did the neuro say??