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Tourette's Cure - Worked for Me
Dear friends,
I have Tourette's syndrome, or at least 'had' it until about a year ago. While my symptoms were quite severe, I now, with proper care, am completely symptom free.
I have been using an oral appliance that has eradicated my symptoms, the appliance being based off the work of Dr. Anthony Sims http://www.absimsdds.com/
My orthodontic specialist spoke to Dr. Sims, and made a similar appliance for me, and my tics stopped.
I can't believe this, and didn't believe the videos on Dr. Sims website when I saw them, but PLEASE check it out before you judge this.
To give you an idea of the extent of my Tourette Syndrome experience, I viewed a video of myself recent, where I would tic on average 6-8 times in 2 minutes.
Which, in a 16 hour day would be 2,880 tics, a not-so-insignificant number.
Furthermore, my tic (main one) was a serious jaw-wrench, which led to severe headaches, intense lacerations inside my mouth (had to have teeth taken out to stop the deep lacerations), and a loud cracking in my TMJ.
Since settling in with this appliance, I might have 1 in a whole day, and often never, and all the internal "neurological storms'' that can come with tourette syndrome are now gone.
Here is a paper on the treatment:
http://www.tmjstack.com/casereport.pdf
reply with any questions.
This has been a dream come true for me.
with love, and empathy,
Rob
I have Tourette's syndrome, or at least 'had' it until about a year ago. While my symptoms were quite severe, I now, with proper care, am completely symptom free.
I have been using an oral appliance that has eradicated my symptoms, the appliance being based off the work of Dr. Anthony Sims http://www.absimsdds.com/
My orthodontic specialist spoke to Dr. Sims, and made a similar appliance for me, and my tics stopped.
I can't believe this, and didn't believe the videos on Dr. Sims website when I saw them, but PLEASE check it out before you judge this.
To give you an idea of the extent of my Tourette Syndrome experience, I viewed a video of myself recent, where I would tic on average 6-8 times in 2 minutes.
Which, in a 16 hour day would be 2,880 tics, a not-so-insignificant number.
Furthermore, my tic (main one) was a serious jaw-wrench, which led to severe headaches, intense lacerations inside my mouth (had to have teeth taken out to stop the deep lacerations), and a loud cracking in my TMJ.
Since settling in with this appliance, I might have 1 in a whole day, and often never, and all the internal "neurological storms'' that can come with tourette syndrome are now gone.
Here is a paper on the treatment:
http://www.tmjstack.com/casereport.pdf
reply with any questions.
This has been a dream come true for me.
with love, and empathy,
Rob
My whole family seems to suffer from Tourette's. I just want to say that :
1) We have come to realize that as a person ages their tics become less prominent. The OP has not stated his age. Therefore we cannot come to the conclusion that this " magic appliance " really works. His tics may have just settled down with age.
2) Most of these posts were made years ago.
And most of the people who joined in the discussion all started their accounts around the same time...which leads me to believe that the OP and some of the people beneath him are probably one in the same person.
3) As I have stated, MOST of my family suffers from TS...so why have none of our "specialists" EVER recommended this? And the specialist my sons see is NOT a pill pusher. He abhors medications, but will prescribe as a last resort. If this "appliance" really works, then it would be advertised in ALL of the TS pamphlets. The doctors would ALL tell you about it...especially the doctors who suffer from TS themselves ( as does my son's doctor ).
I believe there will one day be a cure...but I do not believe that this is it.
I never reply to posts this old, but I felt I had to as it seems to be giving false hope.
Oh...and BTW ? You are told when signing up to NEVER give out personal info such as email and phone numbers.
1) We have come to realize that as a person ages their tics become less prominent. The OP has not stated his age. Therefore we cannot come to the conclusion that this " magic appliance " really works. His tics may have just settled down with age.
2) Most of these posts were made years ago.
And most of the people who joined in the discussion all started their accounts around the same time...which leads me to believe that the OP and some of the people beneath him are probably one in the same person.
3) As I have stated, MOST of my family suffers from TS...so why have none of our "specialists" EVER recommended this? And the specialist my sons see is NOT a pill pusher. He abhors medications, but will prescribe as a last resort. If this "appliance" really works, then it would be advertised in ALL of the TS pamphlets. The doctors would ALL tell you about it...especially the doctors who suffer from TS themselves ( as does my son's doctor ).
I believe there will one day be a cure...but I do not believe that this is it.
I never reply to posts this old, but I felt I had to as it seems to be giving false hope.
Oh...and BTW ? You are told when signing up to NEVER give out personal info such as email and phone numbers.
1 Comments
I don't have Tourette's, but clearly it helps some sufferers. For example, I doubt this man is faking/complicit in a scam: https://www.youtube.com/watch?v=nLkPBUBmxDo
Does anyone know any dentists in the metropolitan NY/LI area that can make this appliance, my 11 yr old grandson suffers fom TS,he has never had medication for it, we are reluctant to follow that path of treatment, he has facial tics and and I would appreciate any suggestions..... Thanks, Jim
I just got my appliance a week ago to treat mild tics (though they’re strong when I’m not medicated). So far, the appliance has had no effect on tics (even though the tongue depressors did months ago pre-meds). Perhaps it needs an adjustment.
I’d be interested in hearing from others about the impact the appliance has on speech. I still cannot pronounce S’s or “sh” properly, so wearing it to work is out of the question. Eating is also quite cumbersome and undesirable. I guess I’ll take it slow and see what happens over time.
I’d be interested in hearing from others about the impact the appliance has on speech. I still cannot pronounce S’s or “sh” properly, so wearing it to work is out of the question. Eating is also quite cumbersome and undesirable. I guess I’ll take it slow and see what happens over time.
I am wondering how the sticks are supposed to be positioned. Flat, perpendicular, under the eye teeth (which I'm missing), behind...that sort of thing. Hope you get this message. I'm 46 and missing a lot of teeth LOL
My son is in the 8th grade. He did fine in school until he reached Jr. High. Since then it has been a constant battle in every subject. Science and math are the worst. His "tick of choice" is to tightly close his eyes and bob his head back and forth. Usually takes about 2 seconds. However, while trying t read a paper or text book and doing this several times per minute has made school an extremely difficult experience.
I wish you the best of luck with your daughter.
I wish you the best of luck with your daughter.
We live in Toronto, Canada. Anybody knows of a doctor here that would do this? My son has been diagnosed since he was 10 and is now 28 and a dad. He's been off medication for a long time but still has facial tics very often which is exhausting. We saw Dr. Stack's video but is skeptical.
Linda C
Linda C
Hi Rob, I am sitting here at 3am trying desperately to learn as much about Tourette's as I can. My 12 year old son was recently diagnosed and the past few months have been a nightmare. He hasn't been able to go to school this year because of his tics. My heart is completely broken as I watch him struggle with these awful tics and never ending pain caused by them. I just came across these videos from Dr. Stack and the dental appliances used for tics. Sounds to good to be true but I must say the videos are very convincing and I am willing to try it for my son. Do you know of any doctors in south Florida that make these appliances for Tourette's patients? Thank you in advance!
Hello jan. I have a 15 yr old with TS she has had the appliance for two years now and I can't say it has helped her. When I take her to get them adjusted she says they do reduce a bit but that same day at home they start up again. Even with her being on meds. This does not mean it can't work for your child though so just research a bit more or call one of the Dr's that provide this. As for the cost I payed 4,000.00 and for every visit after that is abt 250.00 to 300.00.
Best of luck.
Best of luck.
Hello Jan,
I can't tell you it would work. Sorry. All I know is it revolutionized my life, and given I have two children, ones who will likely battle with the same thing, I am going to have this intervention in mind.
The particulars of your case, which must be hard for you, are unknown to me, and I am merely a patient who has used this kind of appliance.
I can only express my own experience.
But, that is why I started this thread, hoping others would post so the word could spread.
As for your insurance, sorry Jan, I can't know that either.
I live in BC, Canada, and work for a government subsidiary. Therefore, my insurance status may be radically different than yours.
Speak to your provider, get a practitioner to test for coverage.
Best of luck.
Rob
I can't tell you it would work. Sorry. All I know is it revolutionized my life, and given I have two children, ones who will likely battle with the same thing, I am going to have this intervention in mind.
The particulars of your case, which must be hard for you, are unknown to me, and I am merely a patient who has used this kind of appliance.
I can only express my own experience.
But, that is why I started this thread, hoping others would post so the word could spread.
As for your insurance, sorry Jan, I can't know that either.
I live in BC, Canada, and work for a government subsidiary. Therefore, my insurance status may be radically different than yours.
Speak to your provider, get a practitioner to test for coverage.
Best of luck.
Rob
Would this work for my 8 year old? I wonder about the growth of his mouth and jaw and the overall cost of this appliance. Of course, at this point I am willing to try anything but certainly don't have money to throw away... Do they accept insurance and will insurance cover any of the cost?
Sincerely,
Jan
Sincerely,
Jan
Hello there,
Sorry for taking so long to respond.
My early experience with the appliance was odd. I would have a slight reduction in tics (major ones), but still felt "most" of what I've taken to be 'neurological storms' - a term I picked up a long time ago to express how I often felt with TS.
I found that my tics began to be reduced within days. However, upon removing the appliance, I would have a flood of them - a very uncomfortable experience.
I could not, and did not, eat with my appliance in. I found it far to difficult. So, I would only remove it when I ate. Other than that, it stayed in.
As for the ulcer issue, I would talk to your doctor. Ulcers are caused by a bacteria called H.Pylori and not from what people believe from times past (stress, bad eating). If your son actually has ulcers, please ask about H.Pylori, which can be treated with a 3 week program of antibiotics. I have gone through this treatment, and it works wonders. Talk to your doctor and bring this up. As far as I understand actual ulcers, it is impossible that the appliance could cause an ulcer. Please research the cause of ulcers.
I do not know the extent of your son's TS, and am far from a specialist in knowing about a condition I myself have.
All I can say is that, now three years of using the appliance, my life is shockingly better. I still have TS resurface time and again if I do not keep my appliance in for longer periods (kind of a re-setting). But if I am diligent using it (I don't have dialogues with it in anymore, but rather when I sleep and when I am just doing normal things - driving, cleaning the house, reading, etc) my life is significantly better.
I hope that this helps somewhat. As I have two children, since I started this post, I have empathy for the position you are in. I worry, as TS is passed on genetically, there is a very good chance my children will suffer from it. I am, however, overjoyed that I might be able to offer a way out (somewhat) from the trials they will experience.
warm regards,
Rob
Sorry for taking so long to respond.
My early experience with the appliance was odd. I would have a slight reduction in tics (major ones), but still felt "most" of what I've taken to be 'neurological storms' - a term I picked up a long time ago to express how I often felt with TS.
I found that my tics began to be reduced within days. However, upon removing the appliance, I would have a flood of them - a very uncomfortable experience.
I could not, and did not, eat with my appliance in. I found it far to difficult. So, I would only remove it when I ate. Other than that, it stayed in.
As for the ulcer issue, I would talk to your doctor. Ulcers are caused by a bacteria called H.Pylori and not from what people believe from times past (stress, bad eating). If your son actually has ulcers, please ask about H.Pylori, which can be treated with a 3 week program of antibiotics. I have gone through this treatment, and it works wonders. Talk to your doctor and bring this up. As far as I understand actual ulcers, it is impossible that the appliance could cause an ulcer. Please research the cause of ulcers.
I do not know the extent of your son's TS, and am far from a specialist in knowing about a condition I myself have.
All I can say is that, now three years of using the appliance, my life is shockingly better. I still have TS resurface time and again if I do not keep my appliance in for longer periods (kind of a re-setting). But if I am diligent using it (I don't have dialogues with it in anymore, but rather when I sleep and when I am just doing normal things - driving, cleaning the house, reading, etc) my life is significantly better.
I hope that this helps somewhat. As I have two children, since I started this post, I have empathy for the position you are in. I worry, as TS is passed on genetically, there is a very good chance my children will suffer from it. I am, however, overjoyed that I might be able to offer a way out (somewhat) from the trials they will experience.
warm regards,
Rob
I am just hearing of this. Could you tell me where your dentist is in Texas? We are in Dallas area. Thanks.
My son has had his appliance for about 3 weeks now. Our dentist in Texas is working with us copying Dr. Stack's work. I have a couple questions
1) How long did it take to see a significant difference in your tics?
2) We are having issues getting him to eat with it in. Any tips?
3) now he has an ulcer from the appliance, he can't leave it in right now till it heals - will this mess things up? So far the changes we are seeing are in his disposition, much more tolerant of everyday life. Been more active and engaged in life and friends :).
1) How long did it take to see a significant difference in your tics?
2) We are having issues getting him to eat with it in. Any tips?
3) now he has an ulcer from the appliance, he can't leave it in right now till it heals - will this mess things up? So far the changes we are seeing are in his disposition, much more tolerant of everyday life. Been more active and engaged in life and friends :).
Hello there,
I realize that the thought of having an appliance in your mouth may not be a comfortable thought. However, I do not go around with my jaw jutting out all the time. In fact, over two years in now, I often will only wear it when I sleep, and maybe for an hour during the day.
Given the side effects you are recounting, I would greatly recommend at least trying it out.
I had taken haliperodol, resperadone, and tetrabenezine for years (obviously not at the same time) and have experienced the numbing side effects of these drugs.
Currently, I take none - at all - and will, it seems, never have to go back on them.
Further, once the appliance has been worn for some time, as you will find in posts above, they can often adjust the jaw through braces, removing the need for a mouth appliance.
I haven't had it done, but it is performed.
I hope this clarifies the issue.
warm regards,
Rob
I realize that the thought of having an appliance in your mouth may not be a comfortable thought. However, I do not go around with my jaw jutting out all the time. In fact, over two years in now, I often will only wear it when I sleep, and maybe for an hour during the day.
Given the side effects you are recounting, I would greatly recommend at least trying it out.
I had taken haliperodol, resperadone, and tetrabenezine for years (obviously not at the same time) and have experienced the numbing side effects of these drugs.
Currently, I take none - at all - and will, it seems, never have to go back on them.
Further, once the appliance has been worn for some time, as you will find in posts above, they can often adjust the jaw through braces, removing the need for a mouth appliance.
I haven't had it done, but it is performed.
I hope this clarifies the issue.
warm regards,
Rob
Hi, I haven't tried to appliance. I'm a 35 year old male that's had tourettes/ocd since around 8 or 9. My suggestion would be to try a glutamate antagonist...like memantine or riluzole. They seem to have less side effects than the typical med's used to treat ocd/tics. I've been on paxil since I was 15 and risperdal since I was about 20. They both just basically kept the edge off. The sexual side effect ***** though. No sex life at all. And I'm still not half as productive as I could be if it wasn't for the ocd and tics. From what I've read glutamate antagonists get more to the root of the problem..as ocd and tourettes patients have high levels in certain parts of the brain. Unfortunately I don't have insurance...so I can't afford any glutamate antagonists. I would try Dr. Sims solution, but it doesn't seem very practical to go around for the rest of my life with an appliance holding my jaw open and out....which I have to open my jaw and jutt it out quite a ways to get relief. Anyways, I hope your daughter finds something that helps her soon. I know how tough this condition can be.
Does anyone have a teen with Tourette's struggling academically. Please any suggestions on how or where to get them help catching up.
Thank you
Lorenrose
Thank you
Lorenrose
Hello rob
I got my daughter the appliance, she has been wearing it for two weeks now although she won't wear it to school but as soon as she gets home wears it till the next day. It has not helped her. My question to you is how quick did this relieve you from having to tic. We went to get it adjusted already and to no help at all. Any suggestions
Sincerely
Lorenrose
I got my daughter the appliance, she has been wearing it for two weeks now although she won't wear it to school but as soon as she gets home wears it till the next day. It has not helped her. My question to you is how quick did this relieve you from having to tic. We went to get it adjusted already and to no help at all. Any suggestions
Sincerely
Lorenrose
I just wanted to chime in on this discussion because my daughter is a patient of Dr. Sims. She also had seizures, insomnia and various other neuro symptoms that have been greatly improved with the appliance. Her case is still very much a work in progress, but I can attest to his wisdom and quality of care. For anyone undecided, you could try various heights of popsicle sticks at home. If you experiment, bring your lower jaw forward as you bite down on the sticks and test this for a period of time to see if it reduces the symptoms. You can see testimonials under the YouTube channels: DoctorStack, Anthony Sims
I would like to know if anyone with Tourette's or child with Tourette's has had struggles academically. My daughter is in the ninth grade and is so far behind school just does not much more to offer. I wanted to know if anyone has heard of any place or anything else I can do to help her improve.
Thanks
Loren
Thanks
Loren
Hi Loren-
I think it's good to look in to the least physically stressful removal which might not be possible. Mine was pulled and I wish I'd had it surgically extracted. I think more people than not have had no issues with dental extractions. I'm in the 1% of....oops. No fun, but things happen.
Tom
I think it's good to look in to the least physically stressful removal which might not be possible. Mine was pulled and I wish I'd had it surgically extracted. I think more people than not have had no issues with dental extractions. I'm in the 1% of....oops. No fun, but things happen.
Tom
Wow I'm about to have my daughters wisdom teeth pulled. It frightense and saddens me to hear what happened to you. Do you think it's a bad idea then to have wisdoms teeth pulled.
Thanks Loren
Thanks Loren
Thanks for the reply Rob. I'm still undecided about this due to the costs and lack of patient's "testimonies" online.
Glad you're doing well with the TS.
Tom
Glad you're doing well with the TS.
Tom
Dear Tom,
I apologize, I had to look up dystonia in order to know what you were speaking of. And, while I battled with chronic insomnia prior to using the mouth appliance, I no longer have that issue either - for the most part.
I am happy to hear that you had some positive effects when attempting the simple test. God willing, this will help you.
As for his move, I am not sure. I never actually spoke to, nor worked with Dr. Sims, or his colleague. I only had an appliance built from the academic paper, and a conversation he had with my specialist in BC.
I really wish I could help my friend. Apologies that I cannot.
Best of luck with your treatment.
warm regards,
Rob
I apologize, I had to look up dystonia in order to know what you were speaking of. And, while I battled with chronic insomnia prior to using the mouth appliance, I no longer have that issue either - for the most part.
I am happy to hear that you had some positive effects when attempting the simple test. God willing, this will help you.
As for his move, I am not sure. I never actually spoke to, nor worked with Dr. Sims, or his colleague. I only had an appliance built from the academic paper, and a conversation he had with my specialist in BC.
I really wish I could help my friend. Apologies that I cannot.
Best of luck with your treatment.
warm regards,
Rob
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