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Trigeminal Neuralgia

Hi, my name is Keith and I was diagnosed with TN a few years ago, but I think I've had it most of my life.  I don't have the typical facial pain, but have it in the back of my head, and the top of my head feels like it's sunburned all the time.  I don't know what triggers the pain, but the sun and the heat intensifies it.  Even a little bit of wind, or just touching my hair causes pain.  My left eye is also tired a lot of the time.  Does anyone else have these symptoms?  I was on Tegretol and am currently on Carbatrol, but they don't work well.  I also tried physical therapy and chiropractic care, but they haven't worked either.  
Has anyone had injections to relieve the pain?  Has anyone had the surgery or the glycerol injections?  I'm seeing a pain specialist next week.  Any suggestions?
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I see a Pain Specialist and I have had TN for several years.  It all started when my lower jaw bone died and started to break up.  I have TN in all 6 regions.   My extreme pain is unrelenting.  I have tried all of the medications and most of the treatments, I have ever heard mentioned.  I take what seems to be handfuls of pills every day.  My entire life revolves around TN and treating and surviving it.  About a year ago, my Pain Specialist started deep injects of Ketamine in my face in front of my ears. 120mg in 4 injections in 2 hours every 2 weeks.  The injections are done in his office.  This is the only relief I have ever really gotten from this horrible disease.  I have somewhat regained my normal life.  Don't get me wrong, I know when it is time to get another injection because the pain returns with a vengeance.  But it gives me great hope for the future.  My pain doctor is going to try specially formulated Ketamine nasal spray.  He says I will use it at home every 2 days.  I will let you know how it goes, if you would like.  I believe there is hope.

Linda
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180749 tn?1443595232
To to get relief from Tn trigeminal neuralgia naturally, the full pranayam exercises are described below.You can do this alongside any medication.Your feedback at some point will help others.
This works gradually, so allow time (3 months to 9 months) and concentrate fully on the breathing. Keep a record of episodes and how you are feeling. This will show you a trend.Avoid cold drinks and drink warm water.

Build up your timing gradually.If you feel tired or dizzy, stop and resume after 1 minute.
Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 10 to 20 minutes twice a day. Not for pregnant women. Seriously ill people do it gently.

Anulom Vilom -  Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for  15 to 30  minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep breaths into the lungs.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 21 times

After you are better, continue the pranayam once a day, to keep the Tn away.
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