I feel for you, I had issues for at least 12 years but I am starting to think they go back to birth! The only cure is gluten free diet! I believe you could have Non Celiac Gluten Sensitivity! God Bless you!
Sounds like CIRS - Chronic Inflammatory Response Syndrome also known as mould illness. I have this condition. :(
You sound very much like me and my daughter. I have fibromyalgia and my daughter has Fibromyalgia and M.E. (or Myalgic Encepholomylitis = chronic fatigue syndrome).
Suggest these to your GP. I have all your symptoms as does my daughter. Didnt stop the pain, exhaustion and discomfort to get the diagnosis but it was a modicum of relief to know what was wrong. Good wishes.
A few nonspecific oligoclonal bands in gamma region- it means your immune system is fighting against something using antibodies (also called Immunoglobulins, there are many types of them, the most common is Immunoglobulin Gamma (IgG)). It could be an infection or autoimmune disease. The "nonspecific oligoclonal" means its not a B-Cell-Lymphoma (where a monoclonal=from single tumor cell derived Immunoglobulins are produced without any reason and are usually deffective). Basically this shows the aforementioned:
Globulines too much, albumine not enough, thus wrong ratio. Nothing ground braking though. Not enough albumine can cause swellings. Just to be sure, kidneys should be tested, to know if you are not losing albumin.
The dizziness could be because of iron defficiency.
The stiffness and pain of your back is because of the wrong neck curvature, which the muscles try to overcompensate. An orthopedic could help.
All in all I get a hunch about 2 things:
1) some autoimmune disease. Maybe some autoimmune thyreoiditis (lymphnodes in your neck region). A rheumatologist is an expert here.
2) iron, vitamin and protein defficiency. Do you eat healthy? Do you eat meat? Do you take vitamin and iron supplements?
Get well soon!
I agree that you need further tests to figure out what the issue is. I’d suspect it’s not so “rare”, just that your doctor isn’t necessarily ordering the right tests.
Paxiled is right… TSH is a hormone produced by the pituitary gland that stimulates the thyroid to produce the actual thyroid hormones. TSH w/Reflex is an outdated test that tells the lab to test TSH and if it’s “normal” that’s all they need to do, but if it’s abnormal (either high or low), then they should go ahead and test T4. The problem is that we don’t just want T4, we want FREE T4 “and” FREE T3… It’s not known yet what T1 and T2 do in the body or how important they are.
Your iron level is WAY too low, even though it’s within the “normal” ranges and an iron panel is not complete without Ferritin.
I agree that your issue could range anywhere from Lyme Disease to an autoimmune.
Were there any other tests done for thyroid function… such as the actual thyroid hormones (Free T4 and Free T3), antibody tests, etc? If so, what were those results? Also, when posting lab results, please post reference ranges, since ranges vary from lab to lab.
Your list of family history lists “thyroid” - what thyroid disease is present?
What other tests were done with the iron saturation? Was there an actual iron test? If so, what was it, with reference range? Just because some parameters might be in the lab’s “normal” range, that doesn’t mean they are normal for you.
I also would like to add that I also have a lot of tenderness in my neck, upper(trapezius and upper back is always tight and knotted), and lower back and top of butt is VERY sensitive. Also my pelvic bone hurts often(specifically the right side). It gets to the point where it hurts to walk and I can’t sit/stand/lay for too long. I’ve been to physical therapy and alternative pain therapy with only temporary relief(it temporarily helps with stiffness but soreness/tenderness never goes away).