My nightmare began 7 yrs ago with a bug flying out of my outer top right ear. The Dr. laughed at me and told me he didn't have time for this. Over 3 dozen Drs and Specialists later , I still have no answers. They either don't believe me, think I'm crazy or don't know what to do.
After only 6 months my hair began to be brittle and eventually broke off.I have been wearing wigs ever since. But whatever it is that has infected me also infects my wigs. A synthetic wig would last me at least one month at the beginning, then went to lasting 2 weeks , eventually now to only one use. I say lasting, meaning they would tangle up and become ratty, unfixable to wear. I'm grateful to have been able to use a wig inorder to look " normal", but would love to have my own hair back. And take a break with beanies.
Next began the nose and ear infections. Just recently leading to the destruction of all my teeth within a 7 month period. I look like a freak now. When I try to seek medical help ,I'm being stereotyped as a stoner because of the way I look. I try to explain and have gotten nowhere. Just this past year is when the pain started kicking in. I had given up on the Dr's. But decided to give them another chance. Recently I saw an ENT who laughed at me. But was given hope with a Dermatologist who agreed to perform several biopsies on my scalp. I thought for sure finally we are going to get answers and I'm going to be treated. I really thought the nightmare was over. Something would have to come up. Its impossible not to since they are in every centimeter of my body now.
To my surprise, Nothing. Prescribed a solution, that's all. Ive shown the following clips to my physicians that i'm going to post and still they can't assist me. I'm in the process of submitting my application to the Undiagnosed Disease Network, in hopes that they will accept and treat me. If anyone can shed some light into my condition, Or see something familiar. I would be so grateful. Anything . I would be interested in hearing. I appreciate you listening and giving me your time.
Sincerely,
Rachee26
https://youtu. be/MNs-6KYxS2Y