Hi..have they tested her for Ehlers-Danlos Syndrome? It is a connective tissue disorder that can cause joints to sublux and move this can be painful....and it can also cause one to bruise easily and we heal very slowly....she may have sprained her ankle or it may have popped out of joint.....Has she ever been considered to be "double jointed" ?
Those with EDS also are prone to have Raynauds phenomenon which causes an issue with circulation and results in cold extremities....and dealing with the cold can be difficult as it hurts.
Not knowing where you are from to suggest where to go, but try a rheumatoid Dr for the EDS and start there .....
Yes I agree with Selma and the details in your post point to the classic
EDS types which affect typically the skin, joints and blood vessels.
There's no medical cure for EDS at this point, only symptom management.
Should she get an EDS dx, please let me know, as I have some information on a holistic treatment, which may help.
Now that you mention that, her pediatrician did have her bend over to touch her toes. Seeing if maybe she was really flexible. So I gues EDS is out.
I suggest you ask for a skin biopsy also , before you accept this determination as final just by this simple test.
And come to think of it, wouldn't a Rheumatologist be the doctor to properly diagnose or rule out EDS, since the suspicion is some sort of a connective tissue disorder?
I believe that our next step is a visit to a rheumatologist. I'm sure that will take forever to get an appointment too.
Put your name down on the cancellation list, to be called when there's a cancellation.
Rheumatologists deal with a lot of elderly patients (mainly due to arthritic conditions) and there are usually above average medical appointment cancellations in this age group.
While you're waiting for an appointment you can look into an abstract of a study titled:
"A novel therapeutic strategy for Ehlers-Danlos syndrome based on nutritional supplements".
Search under: PMID: 15607555 [PubMed}
I may have a more recent and expanded report on this study saved ...somewhere.