I sent your question over to a member who has been here a while and might be able to help you. Hopefully they show up. That's a frustrating problem and especially involving your infant. Keep the faith and I'll see what I can read on the subject. hugs
Anything involving our beloved babes is VERY stressful. I understand one mom to another. I also have read that stress absolutely can influence the result! And from what I've read, quite a bit. Your ACTH is probably high worrying about this. :>/ They will likely retest. Things may be okay though if stress elevated that number. And presumably, your baby is not under the same stress and therefore, the level will come down, right? When is your doctor's appointment for her?
What about trying to distract her. That's what I did with shots with my sons. I would either hold them and talk and play in one direction or they'd lay them down and I'd do my tried and true best entertaining and they'd sneak in the other direction and get the shot in. Then it is only the second that it is happening and not as dramatic of an experience? That might help with keeping her stress free.
Ya, see what the doctors say. If stress is involved with an elevated number, they may factor that in as all little ones would get stressed during the test. So, you initially sounded the alarm or the doctor noticed himself/herself to do the test because of the darker skin? That is getting better? It would be good to know if the doctor is really concerned or not. And remember that determining if there is something like Addison's going on is to your daughter's benefit because then you know what you are dealing with and can take appropriate action. Diagnosis is always scary and hopefully she won't receive one but on the plus side, knowing gives you what you need to also keep her healthy in the long run. Let us know how the doctor's appointment goes. hugs
Wow, so glad you came back with this detailed update!! And really, super happy to hear that the endocrinologist gave weight to the theory that the test trauma itself caused the test result! That's not going to be the case for everyone but definitely a factor people should be aware of!
So, I'm so happy you have this information from an endo! And that your baby unlikely has addisons!! Your regular doctor sounds a bit of a pain. LOL I like a thorough doctor but that sure put you and your baby through a lot. I would let him know these results and that you were super stressed by it all!!! yeesh.
Anyway, keep us updated on her progress and I'm so pleased it all worked out well for you and your babe. hugs