Avatar universal

Hope this helps someone

I want to share my story in hopes that it will be helpful to someone else. Six months ago it was as if someone flipped a switch and I became what I call “woozy” all of the sudden. It came on at work one day and has not gone away since. I feel like I am moving or that I may lose my balance and fall. A couple of weeks after this started, my legs began to feel “weak-like”, increasing my feeling of falling. In the past six months, I have been to two emergency rooms, my primary care doctor, my ENT, an opthamologist, and three neurologists. I had an MRI, MRA, BAER, EEG, EKG, CT, VNG, and several other tests done. Everything came back normal. I was given a different diagnoses from each: sinus infection, migraine headaches, latent hyperopia, Meniere’s disease and anxiety. Now, I do have a history of anxiety and this feeling of wooziness triggered it for me. I could tell that almost every doctor I saw thought there was nothing wrong with me and it must be anxiety. The second neuro I saw referred me to the Mayo clinic. After an extremely disappointing visit with their neuro, she diagnosed me with Chronic Subjective Dizziness due to anxiety and was told to take an SSRI. I was not satisfied with my visit there and made two complaint calls back to her office. After I begged for something more, the only thing she would offer me was a referral to their ENT. At the Mayo in Jacksonville, I had multiple tests done and a CT scan that is specifically for looking at the ears. I finally have a diagnoses of Dehiscent Superior Semi-circular canal. Basically, I have a hole in my inner ear canal bone, which is causing my problems. However, after much research into Chronic Subjective Dizziness, I do believe that I may be experiencing some of this as well. But I knew there was more than just anxiety. Please don’t give up on your search to find out what is wrong. I believe that all things happen for a reason. This trial has brought me closer to Jesus and has finally prompted me to get counseling for my anxiety. I hope this is able to help someone. Keep praying and God Bless.
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Avatar universal
You are lucky, I have ENT problem 3+ years and no firm diagnosis. I have been reading some posts here and think I may have a perilymph fistula. I was also seen at Mayo but what I think I have will not show up on many tests. Also I have tinnitus with it, which is a symptom, however it also comes with an RX of  "get used to it". Doctors don't want to listen or try just blame it on you. Are you going to have surgery? My condition has just about ruined by ear drum and I had to have graft tympanoplasty, it is helping the eardrum but the leak from the fistula is burning throat. I don't know how to pull this one off as ENT is very opinionated and I don't dare suggest a diagnosis. If you go to Mayo, tell them expatient has it figured out but don't know how to prove it. They also that I had SCD but scan said no, however have since found out that this fistula can also be mistaken for SCD, but scan won't show it. It is basically a clinical call. Be sure to post your cure.
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144586 tn?1284666164
Thank you for sharing.
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1530171 tn?1448129593
It seems that your diagnosis of  Dehiscent Superior Semi-circular canal,
in the absence of head trauma, is a congenital condition, caused likely by
impaired osteogenesis, but remained in latency until about six months ago, as you mentioned.
The good news is that, if you meet the qualifying criteria for reconstructive surgery(soft tissue grafting is the most recent method developed), this condition can be treated.

Anxiety disorders were found to be linked to 60% of the chronic dizziness cases, a likelihood that hits "home" for you. Right?

One underlying causative or contributing factor in both  conditions
(Dehiscent Superior Semi-circular canal &  Chronic Subjective Dizziness ) could be low thyroid function, possibly present as secondary to adrenal
insufficiency, due to unresolved biological stress.

I hope things work out for you for the best and thanks for sharing your story.

Best wishes,

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