I'm 18,Chronic joint pain with no swelling. My doctor said I shouldnt have pain.

[Ka90c]

I am 18 years old and have chronic joint pain for as long as I can remember, when I was about 10 we went to the doctor for tests (blood tests) and they found nothing, telling me that I shouldnt have joint pain. The joints that are commonly effected are the hips, knees, ankles,elbows and wrists, less commonly my finger joints. I am not normally sore when I wake up and my joints seem to randomly act up thoughout the day, movement does not help the pain, it worsens it. There is no visual inflammation, they are not red, not hot to the touch but they do seem to react to inflammatory foods and pressure drops(rain). I have not had any sexual relationships ever, I have MRKH so I couldn't have sex even if I wanted to. The only thing that seems to reduce the pain is taking advil or things like advil. I also have hypermobility in some of my joints. Is there any disorder or cause that you might think of with my symptoms, and please if you have any more questions.

[kradford0611]

fibromyalgia

[Ka90c]

I have actually found a diagnosis!  I have a blood condition called juvenile hematomacrosis! It's a blood condition that makes my body absorb too much iron and it collects in my joints causing pain. I just found out yesterday so I don't know much about treatment but I thought I'd update this post!

[Ken_PA]

Hey, congratulations! It's about time you had some good luck, huh? :)

I see that treatment mainly involves drawing blood once or twice a week to reduce iron.

Thanks for posting the update, that might help somebody else down the line. It's also nice to see a case that ends well. Bravo.

[Sara_MHModerator]

Hello and welcome to MedHelp's forums.  Thanks for your question and sorry for this ongoing problem of joint pain you have been experiencing. It has been 10 years since you've discussed this issue with your doctor?  I would suggest a full physical exam.  There are many things that cause joint pain and here is a list. https://www.mayoclinic.org/symptoms/joint-pain/basics/causes/sym-20050668.  You ARE very young but this doesn't mean you can't have juvenile arthritis.  How is your weight and lifestyle?

[Ka90c]

I am 5'4" and 126lb, I don't specifically work out but I do stretches and strength building that I got from a physiotherapist. I eat quite healthy and don't usually eat junk food. Because of how it effects my joints I try to avoid wheat and other inflammatory foods. I haven't brought it up again with my doctor because at the time they just told me that there is no reason that I should be having joint pain and kind of just shrugged it off, when they tested it last time my doctor was a sports injury specialist and she moved my legs and arms around asking if it hurt(which it didn't because the pain starts almost randomly and lasts for hours if I don't take advil) and ordered a blood test. Because of my age I don't know what the blood test actually said but they didn't follow up saying it was anything.

[YSI]

Do you think of your limbs as floppy or loosey-goosey? Sometime's teens get referred to a sports clinic because the knees (due to wt bearing and activity level) are most affected, and they rule out muscle/tendon/ligament injuries.

I remember a neighbor kid was kind of floppy, and we were all fascinated by her hands-every finger was 'double-jointed.' I wonder now if she maybe had Ehlers-Danlos or Charcot-Marie-Tooth disease.

Ehlers-Danlos has become a boutique niche in the medicine-for-profit world.

Keep up with the physical therapy-use it or lose it.

[Ka90c]

I'm not sure how I would describe them. Eds doesn't sound like me, my joints don't pop out of place they just hyperextend. For example my elbows, if I straighten my arms they actually look Bend back a bit more and look somewhat broken? I think that's a common trait. I haven't heard of Charcot-Marie-Tooth disease before.

I live in a rural area and it just happened to be my family doctor who used to be a sports injury specialist, I wasn't referred to them specifically for that.

Yeah! Physio is really great, I used to walk really funny because of my joints (I looked very knock-kneed and my feet would swing around and hit each other walking on a straight line) and we have strengthened them quite a bit so I can walk normally. The reason is my physiotherapist said that I have hyperflexibility in my joints but because of me being not very active as a kid the muscles around my hips became very tight and locked so we have to loosen and strengthen them. Though the pain in them has just stayed the same.

[Ka90c]

I have actually found a diagnosis!  I have a blood condition called juvenile hematomacrosis! I just found out yesterday so I don't know much about treatment but I thought I'd update this post!