Thanks for the book information. I have many triggers for my migraines :
MSG, red wine, sulfur dioxide they put in dried fruit here, flashing lights, the wrong kind of lights, stress, lack of sleep, I don't know what else. I'll take a look at the book you recommended. I like Amazon too.
Good talking with you as well.
mkh9
I'm glad Jim had no pain. It is bad enough losing someone, but when they are in pain, and you can do nothing for them, it is so upsetting. I'm so sorry for you and your family.
My Nan used to suffer from migraines, I remember back in the 50's when I was a nipper and worried about her. She used to tell me it's okay, only intelligent people get them. But that isn't a lot of comfort. I hope yours stop soon. 27 years is far too long.
I have ordered a book by 'Russell L. Blaylock' a retired neurosurgeon and author: called, 'Excitotoxins: The Taste That Kills' this was recommended by another user of this site. If you are interested I found it cheapest on 'Amazon'.
There aren't many people that agree with me. I can sometimes see it in their faces. So it has been really nice talking to you.
Kind regards, mummygiles
Thanks. Yes we do miss Jim a lot. No he really never had pain, no headaches or seizures.. He did have fatigue and in the end lost use of one eye and one arm. Yes I hate MSG. Speaking of migrianes I had an aura this morning. I get a lot of visuals auras, flying lights and sometimes double vision. The headaches are less frequent. Yes I hope the migraines and the visuals stop. They have been my companion for 27 years though. By the way there are definite links to certain types of radio waves,certain chemicals, radiation and possibly cell phones to BT's. So, I wouldn't doubt that they just haven't studies MSG as a possible cause. If it triggers migrianes and seizures in the brain it is possible that over time may cause a BT. Good talking with you as well.
mkh9
I'm so sorry about your Brother-in -Law, I do hope he wasn't in pain. You and your husband must miss him so much.
Thank you for the information on MSG, from what you say it seems we will never stop it, no matter how many people get hurt.
Myself and a lot of other people thought the US had banned it. It was lucky I asked before we eat.
I am going to look for more information, although my nurse at Kings College Hosp in London always finds time for me.
Many thanks for taking the time to talk, I wish you well and hope your migraines stop forever.
Well, I hope that your tumor is benign and stays small. I agree even a benign tumor can be very bad if it is in a very sensitive part of the brain. Yes there are lots of types of bt's like meningiomas, and oligodendros etc. Some more treatable than others and cause less problems. There is a whole lot of information that they need to learn but not much money for research. A lot of restuarants in the U.S. use MSG too and frozen dinners or processed foods. I try not to go to those restuarants as it triggers my migraines. My husbands brother had glioblastoma multiforme grade IV a very aggressive type of malignant primary brain tumor. He only lasted 15 months even after surgical removal, chemo and radiation therapy. But for benign and slow growing tumors people survive a long time, many years even without surgery or procedures depending on what your symptoms are so I hope that yours stays stabile. If you get any more seizures you could go on steroids if you have to.
take care,
mkh9
Thank you for taking the time to read my report. From what I know there is a natural MSG that is present in our bodies. The MSG that I'm sure could be the problem is the artificial flavour enhancer which is used widely in the UK by Chinese restaurants and takeaways. It is also found in stock cubes, a lot of seasoning’s,and some crisp manufacturers also use it. It is also known as E621.
I have had a Chinese meal when I went with my daughter to New York about 3 years ago. I did ask the restaurant staff if they used MSG, they looked at me as if I was mad and said "no not at all". I was fine afterwards and also didn't feel thirsty as soon as I had eaten it.
My daughter also remarked that she didn't feel as if she could eat more when we had finished, this is something that MSG I am told is quite common in the UK.
As far as I know there has been some MSG testing, but only over two days. What I experience, happens 5 or 6 days after I have eaten it.
Thank you so much for the information on 'Russell L. Blaylock ' I am so pleased that there could be someone out there that could agree with me. I will be interested in knowing more about him, so thank you for that lead.
Thank you for your reply. The Doctors at Kings College Hospital London think The tumour is a low grade,slow growing one. I am going to need another MRI scan in September, then they should know more. I am told there over 150 different tumours. Some are very rare, I have not had surgery, so at the moment I don't know if it is cancerous. Even a biopsy could disturb it and cause brain damage. In September they should know a bit more after the scan.
The brain tumour is situated on my right side and is between my eye and ear. I have spoken to my nurse at Kings about my concerns with MSG and she said there is no evidence of a connection between Brain Tumours and MSG. The only way to find out is to do tests. But I am far too scared to be involved in tests as the seizure nearly killed me. And I've got my family to think of, I couldn't put them through any more stress. I honestly think if I had no loved ones, then I would have any tests that were needed.
Apart from that I'm not sure that the NHS would be that interested, even though eventually if I'm right, it could save thousands of pounds.
Like you I am looking for answers. Sorry for the delay in answering you. But I get very tearful and stressed when I think of what might have happened and what is going to happen next.
Please give my regards to your Brother-in -law. I hope he is coping.
I read that Glutamic acid and MSG are essential for the body and for neural transmission. not sure whether they are actually produced by the body but they are found in many common natural foods. theoretically though they reach the brain only in the form of Glutamine.
There's a doctor who claims that MSG can instead pass the Brain-blood barrier and cause problems.
"Russell L. Blaylock is a retired neurosurgeon and author. He is a former clinical assistant professor of neurosurgery at the University of Mississippi Medical Center and is currently a visiting professor in the biology department at Belhaven College.[1] He is the author of a number of books and papers, including Excitotoxins: The Taste That Kills (1994), Health and Nutrition Secrets That Can Save Your Life (2002), and Natural Strategies for Cancer Patients (2003), and writes a monthly newsletter, the Blaylock Wellness Report."
"Blaylock has been quoted several times in media outlets regarding his position that MSG is toxic to the brain.[11][12][13] He also states that the widely used artificial sweetener aspartame is toxic[14][15] and may be the cause of multiple sclerosis.[16] He has additionally cautioned against heavy use of the artificial sweetener Splenda (sucralose).[17] These positions are not supported by scientific consensus or regulatory bodies, as extensive studies support the safety of aspartame, sucralose, and MSG"
I also read that there could be a link between Glutamate and convulsions
"Anticonvulsant and neuroprotective effects of agonist and antagonist of metabotropic glutamate receptors (mGluRs) have been known for more than 10 years from multiple studies. "
Sorry you have a brain tumor. I haven't seen any links to MSG and brain tumors. MSG does cause migraines and probably triggers a seizure. My husbands brother had a brain tumor and read everything we could as to why he got it and the latest treatments. If I can help with that let me know. Is it a benign tumor or malignant? Where is it located? Have you had surgery for it or are you going to?