Aa
Aa
A
A
A
Close
Avatar universal

Mysterious bug under my skin, crawling on my scalp

This is my first post, I've been reading this forum for about a month now, reading about evetything from how to cure scabies to mites.

I'm 27 years old, live in Dallas Texas and here is my story...

First, we've always had a fly problem at every house we go to. You know, the little fruit fly looking things. However, we're not big fruit eaters and don't have any out. They seem to love the trash and the sink (different fly?).

Up to 6 months ago I felt like a bug was crawling on me when I sat on my couch and bed (different apartment), our first assumption was bed bugs and we treated the house (using bombs) for these, the crawling feeling slowed but never fully stopped.

We recently moved (2 months ago) and I felt the same thing on the couch and bed, even worse actually. So much so that we had to throw the couch out. The couch had a mattress in it, it ended up staying out back for a little while until one day I looked out there and it had little black bugs crawling all over it. During this time it seemed I ws being attacked at night by whatever this is, constant crawling all over my head. I usually stay up late to work (upwards of 5AM sometimes) and the entire time this crawling is going on. When I get in the bed it's even worse.

Now here we are at present day. Three days ago I started feeling like whatever this was is now in my skin (I'm certain of it), It's under the skin on my face, my scalp, my back, my toes, and my feet. I can feel it crawling in and out of my anus at times also.

Went to the dermatoligist today and of couse he says it's my imagination, some people get it. He's subscribed me some DEXEPIN for depression. :(  Funny thing is I'm not depressed, my life was quite good until this bug showed up.

I can feel them crawling under my skin, they hang out in my ear (not sure if under the skin or just in the canal) all day, it's gross. No one in the house (my wife and 3 kids) can feel them. My wife has bites all up and down her legs and even a protruded ring looking this on her forearm.

As you might have imagined I'm loosing my mind and life, nothing is the same. And now that the doctor says it's my imagination I cant even get my mom or wide (even though she has a lot of bites) to believe what I'm feeling is real. This makes everything 99.9% harder.

At first I thought it was bird mites (lots of trees around our apartment), then I thought scabies (becuase I can see tracks under my skin), and now I'm thinking it's some kind of fly. There are flys everwhere in this apartment. The disposal was broken when we moved in and it had  flies coming out, they are still around even today (and it's broken again). The bathroom has the flies, in fact, there are several dead in the tub.

I spray the tub down with bleach/water after getting out and noticed when I spray the faucet part some of it turns black (black mold?).

Could this be a bot fly? What do I need to do to get rid of it. Now that the dermatologist was no hope (second doc I've seen, first gave me Pemethrin which did not work) I was thinking of ordering some Stromectol / Ivermectin and Green Kleen Green online.

Recently I had jock itch for the first time in my life, had been taking Gris Peg (Griseofulvin) when this all started to intensify. Please if anyone has been through anything like this offer your sound advice.
416 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi, you have just discribed my story, i believe that the fly thing is possible, i need to see my dr hes from India the best dr for this type of prob, also i found black mold not much but yes every water supply you have needs to b checked, also i had weird moths flying around in my bed and bath rooms where i had opened all of my ebay bought gifts for cmas last yr,  i have have been deathly sick until,,, things to use that really really work Vetericin all animal ANTIMICROBIAL HYDRO GEL ebay has best $ get at least 8oz bottle it will kill them within minutes,  but they lay eggs like cRaZy so must ust everytime you think somethings moving, may apply to scalp hair eye lashes ive even put it on my gums its gross tasting but wow, whitens teeth great too, BORAX instead of shampoo , google for recipe called " No Poo" colloidal silver'to get your bloodstream ph balanced i buy through Swansons 500ppl Apple Cider Vinegar is awesome too apply warm and it will not smell so bad if you can only do 2 things vetericin and borax in warm watee will sooth , heal and balance your ph lebel pn whole outer body, Vetericin kills layer by layer on contact, God bless you,  i pray this helps, your friend in common youre not alone, Tina
Helpful - 2
Avatar universal
I've been dealing with this now for about a month thought I had lice because I was finding what looked like lice eggs and the lice never came......i started finding these fibers in my hair and my arms were always itchy so I looked closely and found the fibers on my skin.....i have what looks like tiny bumps with a little white head on it you pull it out and it's a fiber......i previously seen a post that said he tried alchol and peroxide.....i tried the peroxide and in the spot I tried I found them little string like fibers some even look like salt and pepper sometimes they are red or blue and I can see them under my skin started getting what looked like black beauty marks and low and behold was able yo almost peel them off......my hair is falling out finding hard black hairs that if you pull out the root is a sponge like grey bulb......i wiped my hands with my son's baby wipes and looked very close and pulled off these white fibers that moved......i know that all these posts from people that o have read are not crazy and it's weird because I thought that our carpet had these black bugs but could never get one......idk I'm losing my mind any ideas I'm open too
Helpful - 2
3 Comments
Wow!It truly does remind me of that episode!You definitely need a doctor to take you very seriously. I'd let them know that there has been a case out there where bugs have buried themselves under the skin. I wish I knew what would draw them out if there are any. I just know what happened on that episode of Untold Stories Of The ER. Don't give up on trying to get a doctor to listen to you!! If I come upon anything else, I'll let you know for sure. That's scary. I feel horrible for you.
Ur carpet is also infested with mites and fungus.
This is a fungus. I don't​ have time to post complete experience and explain, more later, I promise. Get antifungal cremes/ sprays immediately, plus all the other advice on here is really good. (** They have discovered that Morgellen's is a fungus, among other things.) I'll try to post soon, (* this is my first time, and I notice this is a year old...)
Avatar universal
I'm in tears finally seeing I'm NOT CRAY AND NOT THE ONLY ONE WITH THIS ISSUE!! I haven't been comfortable in my skin in almost 1 1/2 years ! I have all of these same symptoms and they've been going on for about 17 months. IT IS RUINING MY LIFE. I too have insane cleaning regimentsI do daily as well as I have extreme anxiety and Depression. I can't even go out in public hardly because I'm worried about having an attack! I feel it worst I. My ears. It feels like something is ripping they my ear canal. Also, I am in the car and suddenly it feels like spider webs are on my face and even they've been in my eyes and I've had to pull off the road til I can remove it. Whatever it is, it's naked to the average eye and EVERYONE THINKS IM ON DRUGS OR INSANE! I've even been to the doctors, many different ones, and many times . Even in differs locations and different states. The worst attack I had was in my throats and I went to the ER where I was told I needed to go have a 48 hour evaluation in a mental hospital for mental illness! I'm beside myself, no one listens, doctors dismiss, I'm scared for my life. My husband thinks I'm going crazy, my kids are worried and I DONT KNOW WHAT TO DO! Please anyone tell me what works!? I'm in Phoenix Arizona, if there's a doc out here that knows something and will believe me and listen, I'll do anything- I'll be at their mercy! Please help me out of this hell
Helpful - 2
2 Comments
Please see my answer below. I definitely do not think you are crazy! I'd never think anyone was. Please though do not think I am right either. I am definitely not diagnosing anyone. I'm just pointing something out and basically saying go to more doctors. Look for more signs. It would have been helpful if anyone had seen little holes at some point (& maybe something oozing) and taken photos. I am not intending to scare anyone. It is just what I saw on television (it's on Netflix too).
P.s. I just saw when you commented. Did you find out anything? I didn't realize this was from awhile ago.
Avatar universal
Sorry I forgot to say before I got sick I was staying at my son's and there was mold in the basement I was taking that in it was airborne and when I moved into my new house my life went down hill it took 4 years to find the problem, please people listen I no how you all feel lost husband after 17 years my children alot. And now everybody is sorry, starve that stuff it comes out the body threw the pores also threw hair on scalp
Helpful - 2
Avatar universal
Bottom line: there is no answer and no cure.  What works for one doesn't help the next.  I've suffered 5 years, lost friends, family, and lovers.  Thank goodness she has you.
Helpful - 2
Avatar universal
Hi,

I live in Hawaii and contracted whatever this is---Morgellons, Micro-Miayasis, or by no name yet known to medical science---on 9/30/11 at a Las Vegas hotel suite.  I was bitten five times on the top of my right foot. It was the itchiest bite I've ever experienced.  Upon waking, I knew I was sick.  I could feel a distinct change inside my body had taken place.  My scalp was very itchy.  For the next four months I treated my condition as for lice.  We do not have Lyme disease in Hawaii.  I saw multiple doctors and the dermatologist recommended psychological therapy as part of the protocol for dermatitis.  This ain't dermatitis, folks.  We know this without being doctors.

I may have seen the doctors too early.  The physical evidence was not as developed as it is now.  I now use the Rid red lice comb dipped in vinegar and comb lesions scabs from my scalp nightly.  I clean the comb with a toothbrush under running water after each stroke.  If they could see what I now comb out from my lesions (I view it through an 8x microscope), they would faint.  They don't want to see any more samples of "skin flakes."  It started off as taking only an hour.  Last night it took five hours.  After the scab is scraped off (oddly, no blood), I find layers of what is now familiar-looking matter/organisms.  Some come out as a pinkish or white ball of intertwining, moist, grapefruit pulp-shaped material.  Repeated combings of the same lesion immediately following produce egg-like objects, anywhere from several to over a dozen, all consistent in shape, size, color, and texture.   Somewhere in the combing will be an object, whether hard scab or soft tissue-like material, with a hard, white, tube-shaped object attached.  Once I can get that "tube" and the "eggs" out, the crawly/poking feeling subsides.  Maybe the bugs leave for another location on my scalp?

I do have the colored fibers of Morgellons.  The lesions are painful and increasing in size and numbers, and I am very exhausted, but no specific pain in body parts.  I see gnats often flying around my head, regardless of my location, and lint-like material flying in the air, apparently originating at about eye level.

I went through the emotional trauma that I'm sure many of you have experienced in trying to deal with having such a bizarre disorder, but not receiving either appropriate medical help and/or support.  I am a member of the health organization that the CDC contracted to study Morgellons.  The fact that Hawaii does not have Lyme disease and, after reading the results of the lab study, I've decided to enlist the out-of-pocket help of a group of doctors in California.  I was referred to one of those doctors by Ginger Savely in Washington D.C. (and Texas)..  

It seems the doctors that are more familiar with Morgellons-like symptoms have a specific battery of blood tests, some with special handling/processing requirements in addition to using a particular lab.  My health care provider locally has not heard of some of these tests.

I have found that adding Borax to my laundry soap eliminates the itch.  I daily wipe my face with a vinegar-soaked paper towel and immediately afterwards wash or rinse my face to remove the vinegar.  I use a cpttpm swab fpr nose and ears, also being careful to rinse the vinegar off delicate tissue.  I use Melaleuca's Dermatin fungal creme for my face.

After experiencing the initial emotional trauma due to a series of doctors issuing a DOP diagnosis, I have decided that I need to focus on fully getting back into life as before my condition existed (as much as time permits) while still focusing on my condition and seeking the help I need when I need to.

I don't know if all or most of us are experiencing the same condition, mutations of the same condition, or a related condition.  I do know that being brushed aside by the medical community is not an option.  It begs the question, "You're a doctor for WHAT reason?"

Whether this is an infectious disease or not, I strongly believe it needs to be addressed.  We are enduring needless suffering.  The WHO, CDC, etc. can have a huge impact on our medical community and vice versa.  One large voice can be heard farther than many small ones.  If this condition is infectious, another option is to just wait until enough persons in the medical field themselves are infected.  I guarantee they will jump up and down for a cure.  I would be only too tempted to suggest they see a therapist.  Just kidding.  

My sympathies extend to anyone befallen with such a condition.  Keep pushing the cause loudly and stay strong.  A cure will come.  Do NOT give up.      
Helpful - 2
1 Comments
I too live in Hawaii. Have been suffering since 2016. My hair was once to my knees now I'm usually buzz cut. My fiance won't allow me to cut my hair anymore. He ignores my "mental bugs"and all my symptoms. And refuses to hear me vent or talk about my hell. I am positive he has it too. Just lives in self denial and has a greater tolerance for the burning crawling itch. I am so exhausted.  
Have an Answer?

You are reading content posted in the Undiagnosed Symptoms Community

Top General Health Answerers
363281 tn?1643235611
Nelson, New Zealand
1756321 tn?1547095325
Queensland, Australia
19694731 tn?1482849837
AL
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Discharge often isn't normal, and could mean an infection or an STD.
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.