I've been suffering disabling symptoms which have gone undiagnosed for almost 3 years. I was 19 years old when I was struck by extreme constant nausea, upper abdominal ache, approx 2 inches above belly button. I went from being extremely active to having barely enough energy to make the stairs. I always have very cold feet externally but feel extremely hot to me, dizziness, extreme bloating, heat intolerance, weakness (especially in legs), brain fog, inability to sleep unless I take sleeping tablets.
My stomach makes this sound when I press lightly on it
https://vimeo.com/manage/videos/604330807
I had a 3 day heart rate variability monitor which showed no parasympathetic activity during the day, and it fluctuates between sympathetic and parasympathetic during sleep.
The possibility of autonomic dysfunction has been mentioned and I've just had a breath test for gastroparesis which came back negative. But would this cause such debilitating symptoms?
Another doctor mentioned the possibility of POTS and Ehlers Danlos???
I've had thyroid tests, tests for Addisons disease, MRCP, brain CT scan, barium meal, various blood tests and an ultrasound, none of which found anything.
I take the strongest anti nausea medication, but nothing works.
Would really appreciate any help! Thanks in advance.