Undiagnosed Symptoms Community
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Avatar universal

The doctors can't find anything wrong with me, yet something is seriously wrong?

So for a large portion of my life, I've had abdominal pain. In recent years, so around the last 4 or 5 years its gotten much worse and more and more symptoms keep appearing. The ones I've noticed most frequently are;
-mild to severe abdominal pain
-weakness or lack of strength
-constantly tired
-blood from the rectum
-inflammation markers in blood tests
-abdominal pain after ingesting food

To name all the ones I can think of currently. Unfortunately, no matter how many times I go to the hospital, they can't diagnose me. My half-sister has crohn's disease, my grandmother has diverticulitis and my Father is just lactose intolerant. So gastrointestinal issues run in our family, however no matter how many tests I have, the doctors can't diagnose it.
I've had gluten, fructose and lactose intolerance tests done, ultra sounds, blood tests(which mostly come back with slightly elevated inflammation), upper and lower gastric scopes, and radiology tests. Which have all turned up nothing. Yet the symptoms are there. Most doctors I have, just tell me to go home and take over the counter pain medication like advil. Which I have found does not help in the slightest. Any help would be appreciated!
2 Responses
1756321 tn?1547095325
There is no blood test that can diagnose a food intolerance. The gold standard for food intolerances is the elimination diet. You can find elimination diets online.

I have lactose intolerance actually. If you do have lactose intolerance you have up to 12 grams of lactose before symptoms show up. The good news is butter and cheese are very low in lactose. And I love my butter and cheese!  I can drink a glass of milk without symptoms but too much milk has me going to the bathroom! Yeah..TMI lol.
The blood tests showed inflammation. The intolerance tests were completely different. They'd take lactose or the fructose and make you drink it (which is completely gross) and then they make you breath into a bag. Every few hours. Its generally pretty accurate. So I had those done and nothing came up.
Avatar universal
A friend of mine has been having the same problems for the past 20 years. She was recently diagnosed with multiple Vascular Compression Syndromes including Nutcracker Syndrome (Left Renal Vein Compression), SMA Syndrome (Supeior Mesenteric Artery Compression) and May-Thurner Syndrome (Left Iliac Vein Compression).

Having both Nutcracker Syndrome and SMA Syndrome would explain all the problems that you're describing. I would recommend joining a Nutcracker Syndrome and SMA Syndrome Groups on Facebook and read their stories. Most doctors don't even know these condtions exist so they often go undiagnosed. Vascular Specialists are the kind of doctors that deal with these condtions. Good luck! Feel free to ask any questions.
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