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Undiagnosed sickness
My son has been sick for over 4 weeks. He started off with a feve and sore throat. He tested negative for strep twice. Broke out in a mild rash and has been fatigued ever since. He runs a very low grade fever every night. He tested negative for mono twice. he is sleeping 18 hours a day and has no energy. He has lost 10 lbs. This was a perfectly healthy active kid 4 weeks ago. I have had blood work done on him 3 x. His WBC is normal. His hemoglobin is normal. All is blood work looks completely normal. Yet, he isn't getting better. Does anyone know what could be wrong with him? Worried mom. Colleen
Excellent advice from "TheLightSeeker". Lyme and co-infections are an excellent but frustrating starting point. An LLMD is a great resource but many don't accept insurance. I would ask your PCP for a Lyme Western Blot and tests for Bartonella, Babesia, Ehrichia. Because of difficult to hit CDC standards it is very possible to test positive yet below the standard for CDC monitoring. As a result, many non Lyme literate doctors will deny you have it. Good luck and keep us updated!
Hi Colleen.
It is tough to see your child suffering like that and having no answers at all makes you feel helpless, right?
Please stay strong for him and try to focus your attention to the solution,
vs the problem.
Trust me, I have been there a few times in my life and this makes a world of difference in the outcome.
OK, what to do now?
Well, for starters you need to rule underlying pathogenic infectious conditions which are hard to detect with standard tests.
The low grade fever, the fatigue, the rash, the weight loss combined with the lack of any findings from all the blood tests, indicate the likely presence of a Pathogenic Mycoplasma infection or co-infection like
Borellia, Bartonella, Babesia, Ehrichia and also any other infection associated with chronic-fatigue... Chronic Clamydia Pneumoniae comes to mind.
There are a few challenges presented here, in dealing with such an investigation.
--Not too many doctors are familiar with these types of infections regarding diagnosis and treatment.
-- The Infectious Disease Society of America (IDSA) and CDC do not recognize the chronic aspect of many of these infections, so most MDs
familiar with them, may follow the IDSA and CDC protocols, leaving the affected patient in limbo after a short course of antibiotics, if a diagnosis is found.
-- Many labs do not have the equipment nor the testing methods for detecting these "evasive" pathogens.
My suggestion is to seek an LLMD (Lyme Literate Medical Doctor) who is knowledgeable in both dx and tx of these infectious conditions-possibly putting his career at risk.
IDN if you have any LLMDs in SC-My opinion is that there aren't any as your medical boards seem to be siding with IDSA and CDC.
To become more familiar with this issue, pls do a search under:
"REMARKS TO THE NORTH CAROLINA MEDICAL BOARD"
by Dr Jemsek -formerly of SC and now runs his clinic out of Washington,DC
Note that most references are on Lymes disease, however, most of the other co-infections I mentioned above, fall in the same category.
I hope this helps and if you have any questions, please post again any time.
Best wishes,
Niko
It is tough to see your child suffering like that and having no answers at all makes you feel helpless, right?
Please stay strong for him and try to focus your attention to the solution,
vs the problem.
Trust me, I have been there a few times in my life and this makes a world of difference in the outcome.
OK, what to do now?
Well, for starters you need to rule underlying pathogenic infectious conditions which are hard to detect with standard tests.
The low grade fever, the fatigue, the rash, the weight loss combined with the lack of any findings from all the blood tests, indicate the likely presence of a Pathogenic Mycoplasma infection or co-infection like
Borellia, Bartonella, Babesia, Ehrichia and also any other infection associated with chronic-fatigue... Chronic Clamydia Pneumoniae comes to mind.
There are a few challenges presented here, in dealing with such an investigation.
--Not too many doctors are familiar with these types of infections regarding diagnosis and treatment.
-- The Infectious Disease Society of America (IDSA) and CDC do not recognize the chronic aspect of many of these infections, so most MDs
familiar with them, may follow the IDSA and CDC protocols, leaving the affected patient in limbo after a short course of antibiotics, if a diagnosis is found.
-- Many labs do not have the equipment nor the testing methods for detecting these "evasive" pathogens.
My suggestion is to seek an LLMD (Lyme Literate Medical Doctor) who is knowledgeable in both dx and tx of these infectious conditions-possibly putting his career at risk.
IDN if you have any LLMDs in SC-My opinion is that there aren't any as your medical boards seem to be siding with IDSA and CDC.
To become more familiar with this issue, pls do a search under:
"REMARKS TO THE NORTH CAROLINA MEDICAL BOARD"
by Dr Jemsek -formerly of SC and now runs his clinic out of Washington,DC
Note that most references are on Lymes disease, however, most of the other co-infections I mentioned above, fall in the same category.
I hope this helps and if you have any questions, please post again any time.
Best wishes,
Niko
Hello Colleen~
I am so sorry that your son is not feeling well.
Have they tested for any food allergies or chemical allergies? Has any doctor recommended vitamin/mineral supplements, sometimes they can help.
I wish I could give more ideas or suggestions, but, unfortunately, I just don't know. I sure hope you get the help and answers you are searching for and that he feels better soon.
God bless you.
I am so sorry that your son is not feeling well.
Have they tested for any food allergies or chemical allergies? Has any doctor recommended vitamin/mineral supplements, sometimes they can help.
I wish I could give more ideas or suggestions, but, unfortunately, I just don't know. I sure hope you get the help and answers you are searching for and that he feels better soon.
God bless you.
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