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Variety of severe symptoms, no answers

Hello,

I am posting on behalf of my mother who has been sick for over 4 years and no doctor has been able to properly diagnose her.  Her symptoms are uncontrolled and she seems to be getting worse and worse.  She is 65 yrs old and here are a list of current symptoms:

Severe hot flashes
Shakes
Profuse sweating & chills
Headaches
Burning pain across whole body and at times lasting for hours, pain is excruciating
Low energy after activity, she becomes weak and short of breath, can only walk short distances
Stomach aches and nausea

She has had the following tests done:
Cat scan of abdomen - negative
Nuclear medicine xrays - negative
Multiple blood work - came back abnormal with excessive adrenalin in blood

The only thing that seems to help a little bit is eating at least every 2 hours or less.  She will eat until she starts feeling better and the more she eats, the better she feels but only for a short period of time.  She tends to feel the best late afternoon, into the evening.

She has an excellent doctor who is trying to help but unfortunately he has run out of ideas on how to treat her.  She has tried many different medications including ketamine treatments.  Some of the meds have worked for a while but then they eventually stop working.

Each day her symptoms are different.

PLEASE if anyone can help, we are in desperate need of direction/help.

Thank you
2 Responses
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14967740 tn?1437614975
Hello.
I'm sorry to hear your mom is going through so much. I know trying to figure out the problem can be so hard on the person suffering but also the family and  loved ones.
I've suffered with Lupus, Budd-Chiari of the liver, Lupus Myocarditis, pericardial effusion, and blood clotting syndrome. Each time I begin to feel ill, my instincts, in regards to my illness, are always right. First and foremost, it is always so important to keep the pressure on her physician and any other doctor she visits.
I suffer with the same symptoms on a daily basis but they are kept under control with medication and frequent doctor visits. The cause of my symptoms is my heart. Since October 2014, I have been in the hospital six times staying 4+ days at a time. The cause of my cold skin, sweating, fatigue, tightness in my chest, emotional distress, headaches, twitching thoughtout my body, burning in my back (this symptom is due to previous blood clots in my liver), and nausea is the myocarditis. Myocarditis is where a portion of my heart, and the muscle, are not keeping up with the surrounding heart muscles. This is a very serious condition and can cause death if it goes untreated for too  long.
I would definitely requst an MRI on her heart WITH contrast as well as an ultrasound. The doctors originally weren't looking at the outer part of my heart but only the inner lining. So, when my triponin levels were coming back at extremely high leves and I had not suffered a heart attack, I questioned if they had looked at the outside of my heart. I had already had a cardiac cath done and was told there was nothing wrong with my heart...um...that wasn't okay with me so I was persistant and it paid off...big time.
I hope you get some definitive answers quickly and she starts to feel better.
Brandi
Helpful - 0
Avatar universal
im not saying I am right but I have a friend who has all of these symptoms and she has diabetes. on her, the symptoms usually happen worse when her sugar is low. have you had her tested for diabetes? im not saying im right but this could be a possibility if you haven't already ruled it out.
Helpful - 0
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