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Avatar universal

What could cause such an array of symptoms for such a long period of time?

Hi, I'm a 21 year old female. My health has always been on the poor side and I have type 1 diabetes (diagnosed at age 3). Another recent problem which I feel I should mention is that I was hospitalized for c. diff back in May. I was not on antibiotics and have no idea how I acquired it. I'm not sure if it has relation to what my current problem is though, but I felt it should be mentioned.

So, for the past 5 months or so I've had some rather debilitating symptoms, I've been to so many doctors appointments and had so many tests done I can't believe it with absolutely no resolution and I'm very close to my breaking point. So what's been going on is:

Swollen lymph nodes and glands - about 4 months, started with multiple swollen+tender areas and facial swelling, large lymph node under the left submandibular area and a large one directly on the right of my windpipe area are the ones I'm most concerned about and haven't shrunk. As well as some on the back of my neck, underarms, and groin, these specific areas have seemed to go down over time. I had an ultrasound of my neck (just the front although i have swelling on the back of my neck as well) and the results were that I had "multiple palpable abnormalities, 2 swollen lymph nodes (about 2cm) most likely reactive" All are mobile except for the one to the right of my windpipe which I can't seem to move

I've been noticing blood in my saliva after washing my face. I don't cough it up, and it only happens after I've washed my face which I believe is because I've been bent forward. I suspect it's coming from the nasopharyngeal area as it only happens if I kind of "suck" the saliva from the back of my throat. If I don't do that + haven't had my head foward my saliva is clear. Had a chest xray which I was told is fine.

Throat irritation with some redness, bumps at the back of my throat, and small granule like bumps on my soft palette.

I've had a HORRIBLE smell and taste emanating from the back of my throat

Headaches
Severe fatigue
Poor appetite/not being able to eat full meals
Constant low grade fever
Chills
Congestion
Feeling as if I've had a never ending cold or flu
Ringing in the ears
Pain in and around the ears
Nausea
Constipation
Dizziness
Feeling faint
joint aches/diffuse pain


And in the last few days I've noticed several randomly burst blood vessels and petechiae. I've had them on my feet, fingertip, the heel of my hand, and the smaller petechiae in diffuse areas like arms or tops of the hands.

I've had multiple CBCs, CMPs, two full lyme panels, a throat culture, chest xray, sinus xray and ct scan, SED rate, CRP, a test for swelling in the muscles or something like that, a holter monitior, ECG, EKG, a test for mono, among other things that I can't remember, all completely normal according to my doctors. I did have mono as a child probably 10 years ago or so. I've been told that I have extremely red nasal passageways and fluid in my ears. I've lost a couple pounds but nothing drastic so far, I don't have night sweats. I'm waiting on labs about CMV and STD tests (I've only had one partner but at this point I'm looking at everything) the only labs that are abnormal is something that the nurse called low ANA titers and low iron levels. I know ANA titers are related to autoimmune disorders, but I was told by my doctor that she believes my likelihood of having a rheumatoid disorder is low.

I'm just so at a loss and I'm about to break down from the stress of this. I feel so horrible and no one is helping me and I'm so scared that there is something seriously wrong with me like cancer. I've considered everything from mumps to lymphoma to sarcoidosis. I have no idea whats going on and I'm terrified. I know the internet is not the best place for medical advice but I'm at my wits end. Any ideas or advice anyone could give would be amazing, thank you.
1 Responses
Avatar universal
Those could all be symptoms of ME/CFS or Chronic Fatigue Syndrome. There actually is a condition that is known to cause CFS. It's called Nutcracker Syndrome (Left Renal Vein Compression). Google Nutcracker Syndrome and Chronic Fatigue Syndrome together. There is actually a lot of info that this condtion can cause CFS and all the symptoms that you have. Unfortunately most doctors have never heard of this condition so it's rarely diagnosed. I would recommend joining a Nutcracker Syndrome group on Facebook. There are some very knowledgeable individuals in these groups. Vascular Specialist are the kind of doctors that deal with this condtion.
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