What is causing my right sided paresthesias with a left headache? (35 years old)

[ImperfectSituation]

Let me preface my new problem with a brief history. I'm 35 and in good shape, aside from preexisting celiac disease which caused small fiber peripheral neuropathy. That was verified by labs and a very abnormal epithelial nerve fiber density by skin biopsy. This went undiagnosed for 4 years until I had a battery of exams including MRI and MRA of the brain and neck, lumber puncture, and many labs to get to the bottom of why my entire body felt like it was on fire and spasms (I was told it was anxiety. I didnt buy that fortunately sinve the pain became excruciating). That was 4 years ago and I'm about 95% better on a gluten free diet.

Last August I had a weird headache with my right body going numb for a month. We had an MRI brain done which was normal and was told i had atypical migraines. Fine. I'm no stranger to headaches generally.

Now almost 2 months ago, the right side of my face around the mouth, my right forearm, right torso, and right leg (mostly lower leg) are weaker, have tingling paresthesias, and gets tired faster than the left side. Almost 3 weeks ago a upper left sides headache also developed that is with me daily in varying intensity. It DOES go away when i lie down to sleep but aleays returns about 15 minutes of getting up. It feels like a migraine would with pain behind the left eye and growing from a focal spot to diffuse pain on the left side through the day. The headache is no worse with coughing, head down, or any of that. What worries me is that I have a left headache with the right body issues and lasting this long. I know left brain controls right body.

I just saw my neurologist for this. He did a very quick and basic neuro exam and said its my migraines and they can flare up neuropathy. No MRI needed since one was done last august. I was offered monthly injections for migraine prevention. I coincidentally just had an eye exam as well and that was fine too.

Normally I would just accept this, but something seems very wrong to me. Should I get a second opinion or am I overthinking this?

[Paxiled]

If it were me and I had all this happening, I'd probably want a second opinion, yeah.  Can't hurt.  There are also a lot of ways to try to control migraines before you have to go with something as intrusive as injections, I would think.  But as a former migraine sufferer, they don't sound like migraines to me.  I know you've been told they are atypical, and I'm no expert and don't really understand what that means.  Docs being what they are, it could mean they don't really know and so they often come up with that word, atypical, when they are clueless because they can't find what's going on and they don't see anything on diagnostic tests and the symptoms don't match up to anything.  I had a doc who pretty much cured my migraines by telling me to do TM, a form of meditation that was popular with doctors a long time ago.  These days I think the one they know about is mindfulness.  But migraines, unless they've redefined them, are a vascular headache caused by constriction of blood vessels followed by them opening up, which causes unfortunately the larger ones near the head to open up before the smaller ones at the extremities do, forcing the blood there in a rush that causes the visual disturbances and nausea and God awful headache that most of us know as migraines.  Given I saw a lot of doctor time about them before the meditation and I think getting older almost completely cured me of them, your symptoms certainly don't match what I was told about them.  There a lot of new drugs today that weren't available then for migraines, and a lot of natural treatments for them as well, and they are usually helped by exercise, eating regularly, eating properly, sleeping regularly, meditation, biofeedback, etc.  But if what you are experiencing isn't migraines, none of this is going to help you, is it?  Which leads to maybe finding out where the best docs for your problem might be and finding better docs so you're sure.  Also, if you truly have celiac, there's a lot of hidden gluten out there in products, and celiac, when it's correctly diagnosed (it's one of those things that are way overdiagnosed in our society but also underdiagnosed at the same time for those few who truly have it).  I have known several people who also got migraines, and the headache when it comes is truly hideous, and you seem to describe a headache that you can live with.  I might be wrong there, but sounds like that.  Again, we're all different, and neurologists are the experts, not me, but they are also unfortunately known for not actually knowing much.  Brains and nerves are really hard.  Good luck.