Forgive my scattered narrative, focus is at a loss these days as well. Perhaps I should just try to list off all symptoms and signs I can without regard to severity duration or onset, just to get it all out there: insomnia, myoclonic jerks, severe constipation with perfect diet, incontinence, urinary frequency, incomplete emptying of bladder, short term memory issues, loss of words and names, mishearing words, emotional lability, short fuse, nightblindness, heat intolerance, cold intolerance, exercise intolerance, numbness tingling extremities with and without obvious circulatory chokepoints, numbness/tingling in neck and back of head, various joint pain and weakness, stiff neck, migraines, sore back-upper and lower alternating, dry eyes, dry mouth, tachycardia vertical and exertional, bradycardia supine, "possible left atrial enlargement" on multiple ekgs, other ekg abnormalities including long QRS and abnormal P and ST, nonrespiratory sinus arrythmias, inner tremble, stabbing chest pain isolated to left side adjoining sternum upper breast area, dull chest pain/weight bilateral upper chest, neuropathy in feet (Dx by neurologist during exam), absent foot seat, extra pelvic face and chest sweat, minimal armpit sweat if at all, motionsickness brought on only while looking at stationary objects, cold hands feet and but almost constantly, "lung butter" if wake up too early or any time cool and damp, low-normal sodium, low anion gap, low-normal AST and ALT, negative Lyme but positive p41, negative ANA sjogrens hiv syphilis, negative occupational heavy metals screening, negative CRP, normal CPK, sedan rate 10, low range cortisol, negative all diabetes/prediabetes tests (no GTT performed), high-normal or barely high hemoglobin hematocrit RDW MCV MCH MCHC, HDL 43 LDL reflex 131, 24hr Holter monitor 19 ectopics total min HR 45 max HR 170 low exertional gardening as biggest activity, TTECHO said normal but mentioned some regurgitation in tricuspid and mitral valves- much of the study says not well visualized EF 57%, carotid doppler 1-39% stenosis but no more specific and called "normal"-leg doppler showed no stenosis at all, MRI &CT scans said normal but I don't buy it and positioning of MRI was horrible so midline looks way off- have full scans of all to check or 2nd opinion due to familial abnormalities of vessels in brain killing previous 2 paternal generations along with 25 yr migraine history, tilt test tester day said "essentially normal" but watching the numbers it certainly was not- 55 acg HR supine vertically 95-110 for first 10 min leveling out 85-100 following 10 test ended after 20 no symptoms- systolic BP only raised slightly from supine(95-105 to 100-117) i.e. normal but diastolic BP raised significantly from 60-65 to 85-90 vertical was told dehydrated bc low BP but low sodium says hypovolemic not dehydration and pulse pressures were only 20-27 while vertical 40 avg supine, all other tests were either normal or not performed yet. Not yet performed: celiac antibodies, paraneoplastic antibodies, chest gastrointestinal or pelvic x-rays etc, other tick borne diseases or repeat lyme, most specific blood tests for autoimmune or mitochondrial, no nutritional panel, no CSF testing, nerve conduction, biopsy other than cervical.
Other relevant info: 23 pack year smoker with bronchial asthma, nondrinker, high fluid consumption, caffeine 3-400 MG/day down from 12-1600/ day 5yrs ago, avid outdoors person active in hunting trapping gardening shooting etc, live near 6mill acre national forest (across road) with other woods bordering property in high lyme risk area, 4 dogs 4 cats full ticks found on animals in past 1 dog had lyme last year but treated, symptoms greatly worsened this summer but many present for 5 up to 30 years, diet high fiber low sugar low saturated fat large vegetable variety high protein increased salt on Dr advice but was never low in diet no empty calories all whole grains home made nonpackaged meals, familial history of cancer and diabetes plus the aforementioned vascular issues. Currently have unattended dental issues and HPV16 with cin2+ (not first time)
Think thats everything but my memory ***** so I write everything down, if I can find it. We've tested many things and many not yet. Does anyone have any insight where to look? Greatly impeding on even the most simple parts of life much less trying to work but as I don't work seems I'm getting blown off and patronized rather than diagnosed so I can return to a productive life, or figure out how to mm I've on without productivity. Can't stand sit exert for any period of time nor retain any sort of schedule with sleep or even showers due to the water and standing/activity required for that. Just need some ideas to help aim drs. Plan on celiac test but they had to look up yet test (???)first which I found 2 min on Google heh, am going to ask for chest gastrointestinal and pelvic x-rays and paraneoplastic antibodies as well due to risk factors and symptoms. Some longterm symptoms may be unrelated or comorbidities so any questions about onset sequence etc I can answer but this has been long enough for 1 post. Thank you any still reading.