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motion sickness like that is worse at night

Dizziness,motion sickness like  that is worse at night and not associated with positional change. It wakes me up several times every night and keeps me awake. Even though it has some BPPV symptoms, such as dizziness or vertigo, lightheadedness, imbalance, and nausea I do not believe it is BPPV. 2012 examination by an excellent ENT from Germany ruled out BPPV. 2010 brain/neck MRI were normal.  No outside spinning sensation either. Imbalance or dizziness is NOT worse with a head movement.  Motor, sensory, reflexes, cranial nerves and mental status are normal.
I have been having lightheadedness, imbalance on and off since 2008, but never had it at night time.  I have been doing vestibular,balance exercises every day for a month now (just in case). Meclizine eases symptoms,makes me able to function somewhat,and so does Diazepam,but makes me lethargic and brain-fogged.  But it still wakes me up every night. The other  symptoms-sensation of falling into an air pocket,as if a rug was pulled from under me for a split second,or free fall sensation for a  brief moment,or as "electric outage",when all lights go off for a split second.
Important details. About a month ago I woke up and shifted in bed and was immediately "sucked into a violent Whirlpool" with complete incapacitation. As if I was paralyzed and spinning inside my head. It continued on and off for 4 hours, with positional change (slight head movement) and without. I believe I blacked out couple of times during these 4 hours. I was in bed  the entire 4 hours unable to do function.
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1530171 tn?1448129593
So what is preventing you from getting properly diagnosed for hypothyroidism and get your thyroid function regulated, if indeed you are hypothyroid?

Just ask for the tests I mentioned and meanwhile you can do on your own:
Dr. Barnes Basal Temperature Test. Just do a search and follow the simple instructions precisely.

The MMA test is more popular than the CSF homocysteine test for methylocobalamin testing, however,   high urinary MMA can also be caused by kidney dysfunction. and high serum MMA can be because of  intestinal bacterial overgrowth.
I personally take  1,000 mcg  of sublingual methylcobalamin  daily.

One thing you may want to try for your night time dizziness, is going gluten-free. Please bear with me for a minute to explain this-->
There  appears to be a  link between gluten and GAD65 enzymes.
GAD 65 is an enzyme used to  catalyze glutamate to GABA and CO2.
When gluten is removed from the diet, GAD 65 antibodies seem to decrease. GAD 65 antibodies to the body's own GAD 65 enzymes,
have been implicated in some Autoimmune diseases.
Autoimmune response against GAD 65 may cause anxiety, blood sugar issues, or cerebellar symptoms such as nausea & vertigo.
Please note that at least 50% of people sensitive to gluten are also
sensitive to dairy due to cross-reaction.
Gluten and dairy elimination, might be worthy of consideration, however,
gluten effects may linger in the body for months after going gluten-free.

Hope this helps.
Niko
Helpful - 0
Avatar universal
Thank you.
I do these maneuvers, just in case.
I am aware of low thyroid function which I probably have,based on a tendency to be cold in 77F room and having cold extremities. Hypothyroidism can't be diagnosed via blood tests.
Here are 5 Thyroid Patterns That Won’t Show Up On Standard Lab Tests:
1. HYPOTHYROIDISM CAUSED BY PITUITARY DYSFUNCTION
This pattern is caused by elevated cortisol, which is in turn caused by active infection,blood sugar imbalances, chronic stress, pregnancy, hypoglycemia or insulin resistance.
These stressors fatigue the pituitary gland at the base of the brain so that it can no longer  signal the thyroid to release enough thyroid hormone. There may be nothing wrong with the thyroid gland itself. The pituitary isn’t sending it the right messages.
With this pattern, you’ll have hypothyroid symptoms and a TSH below the functional range (1.8 – 3.0) but within the standard range (0.5 – 5.0). The T4 will be low in the functional range (and possibly the lab range too).
2. UNDER-CONVERSION OF T4 TO T3
T4 is the inactive form of thyroid hormone. It must be converted to T3 before the body can use it. More than 90% of thyroid hormone produced is T4.
This common pattern is caused by inflammation and elevated cortisol levels. T4 to T3 conversion happens in cell membranes. Inflammatory cytokines damage cell membranes and impair the body’s ability to convert T4 to T3. High cortisol also suppresses the conversion of T4 to T3.
With this pattern you’ll have hypothyroid symptoms, but your TSH and T4 will be normal. If you have your T3 tested, which it rarely is in conventional settings, it will be low.
3. HYPOTHYROIDISM CAUSED BY ELEVATED TBG
Thyroid binding globulin (TBG) is the protein that transports thyroid hormone through the blood. When thyroid hormone is bound to TBG, it is inactive and unavailable to the tissues. When TBG levels are high, levels of unbound (free) thyroid hormone will be low,leading to hypothyroid symptoms.
With this pattern, TSH and T4 will be normal. If tested, T3 will be low, and  T3 uptake and TBG will be high.
Elevated TBG is caused by high estrogen levels, which are often often associated with birth control pills or estrogen replacement (i.e. Premarin or estrogen creams). To treat this pattern, excess estrogen must be cleared from the body.
4. HYPOTHYROIDISM CAUSED BY DECREASED TBG
This is the mirror image of the pattern above. When TBG levels are low, levels of free thyroid hormone will be high. You might think this would cause hyperthyroid symptoms.
But too much free thyroid hormone in the bloodstream causes the cells to develop resistance to it. So, even though there’s more than enough thyroid hormone, the cells can’t use it and you’ll have hypothyroid – not hyperthyroid – symptoms.
With this pattern, TSH and T4 will be normal. If tested, T3 will be high, and T3 uptake and TBG will be low.
Decreased TBG is caused by high testosterone levels. In women, it is commonly associated with PCOS and insulin resistance. Reversing insulin resistance and restoring blood sugar balance is the key to treating this pattern.
5. THYROID RESISTANCE
In this pattern, both the thyroid and pituitary glands are functioning normally, but the hormones aren’t getting into the cells where they’re needed. This causes hypothyroid symptoms.
Note that all lab test markers will be normal in this pattern, because we don’t have a way to test the function of cellular receptors directly.
Thyroid resistance is usually caused by chronic stress and high cortisol levels. It can also be caused by high homocysteine and genetic factors.
The five patterns above are only a partial list. Several others also cause hypothyroidsymptoms and don’t show up on standard lab tests. If you have hypothyroid symptoms,but your lab tests are normal, it’s likely you have one of them.

I regularly take methylocobalamin and methylfolate  and MMA is a better test for B12 deficiency.

There is also an opinion that undiagnosed dizziness can be autoimmune in origin.
But why is it worse at night and prevents me from sleeping?
Helpful - 0
1530171 tn?1448129593
Hi Sam

High energy demand organs like the brain may be affected by low levels of
Niacin (B3).

If I were you, I would do a particle repositioning maneuver challenge, like the
Epley and/or Semont maneuver, in the event that you may have a BPPV
variant, which falls just outside standard diagnostic criteria.

Another thing to consider is low thyroid function, by testing Free T3, Free T4 and Reverse T3. Standard tests on show serum levels,not function!

Finally B12 methylocobalamin and methylfolate levels (neurological forms of B12 & folate) should be checked by a Homocysteine CSF test.

I'll continue another time, as something just came up. GTG!

Cheers,
Niko
Helpful - 0
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