pituitary tumor or ms

[plinta]

Hello,
In 2009 I was diagnosed with nonfunctioning pituitary macroadenoma(11 mm). For the past 7 years I feel horrible, my symptoms are getting worse. I am lightheaded, very sleepy and fatigue. I yawn all the time, I have sleeping attacks, heavy eyelids and there is nothing I can do to stay awake. Very often I have visual disturbances, I feel like drunk. Moreover, nausea, that comes and goes away, chills, facial pain. I had tons of blood work, everything came out normal. I had sleep study, I saw neurologists, laryngologists, rheumatologists, couple of times I ended up on ER. For the past few days I feel much worse. I have horrible burning in my head, on the top, on both sides, sometimes facial and arm burning. Headaches is also located on the top, under my eyes. My head is dull, i can't concentrate on anything, I can't think, I feel like dumb. Sometimes I can't talk, I can't listen. The pressure in my head, between my eyes  are the worse symptoms, those make me feel really sick. I was prescribed Verapamil, today I'm on first pill. MRI showed multiple lesions. What should I do? Is it the tumor that makes me feel like that? Is it something else? I really worry about MS. Please help me!!! I know I don't have depression, I saw psychologist and psychiatrists, they both said it's not depression. Please help me with any advice.

[Dr. Kokil Mathur]

Hi
Welcome to the MedHelp forum!
I am not sure what the lesions are but yes, MS is a diagnosis. A 11mm tumor of pituitary could also ne pressing on certain areas. I suggest you get your MRI evaluated by a neurologist and a neurosurgeon. You definitely have some neurological symptoms like burning, headache etc.
If you are a female then PCOD should be ruled out. Also multiple endocrine disorder should be looked into if anemia, hypothyroidism, liver and kidney dysfunction and sleep disorders are ruled out. You need to consult an endocrine specialist for this.
Take care!

[NattyK]

I had a 2cm (yes cm) macroadenoma that was undiagnosed for years.  I was told I was depressed and needed to lose weight over and over.  I am worried about the lesions, but some of your symptoms were similar to mine.  The fatigue was awful, lots pain and generalized muscle pain and spasms, sometimes I would feel ok, then suddenly need to pull over to sleep if I was driving this was especially annoying, burning muscles, hair loss, loss of short term memory.  My bloodwork also showed "nothing", everything low but normal, or my hormones were are post menopausal, at 31!!  Yeah right!  Was told I was depressed, yes because I had a big TUMOR that no one diagnosed!  The only thing slightly elevated was prolactin.  Are you having the tumor removed?  Go to an experienced neurosurgeon and you won't regret it. Research your surgeon well, they will hold your life literally in their hands.  Make sure they have never encroached an artery or optic nerve. I was not even a functioning human being but the symptoms sneak up on you!  I am grateful for my neurosurgeon every day!  I felt better THE DAY of the surgery in the SICU!  Good Luck!

[DEB5100]

Hello

What did you find out?

[Achybreaky84]

I had a pituatary adenoma (7mm) and was given Parlodel.  This medication had me feeling dizzy and always on a verge of passing out.  Once off of it I was fine but that is when the adenoma grew larger (started at 3mm) I had surgery and I am better.  My point is , the ademoma growth can impair you with pinching on optic nerve, causing blindness if untreated.
Check your prolactin levels for comparisions and check for MS.  Once you know tackle it.  Good luck.

[DEB5100]

If an MRI showed multiple lesions than i hate to say that it might very well be MS because that is how i found out that i had it. If you are diagnosed with MS i just want to let you know that i am here for you. I had it for 4 1/2 yeas now and i am doing great.

Good luck and hope everything turns out well for you.