I would love to know an update on the symptoms of everyone that's been involved in this thread, no matter when you posted. In a similar situation. Thank you!
Has anyone been diagnosed Interstitial Cystitis?
Hi All,
I'm in the same boar. Did it ever get better for anyone? Need help!
Did this ever go? I’ve experienced the exact same. I had cystitis which got better but still had discomfort & had two more weeks of different antibiotics thrown at me & everything is completely clear but I’m still in discomfort too. Did it pass over time?
Hi everyone,
Sadly I am experiencing the same problem as many of you have. Due to simply not taking good enough care of myself during hectic times resulted in 3 UTIs in a 5 month period. The first two were miserable but cleared up completely after finishing antibiotics, while after my meds finished up along with my burning sensation on the 3rd UTI I noticed a continuous tenderness in my bladder area. My frequent urge to pee even though I had just gone not 20 minutes prior also continued. I have never had such frequent bathroom urges in my life, this is definitely not normal. I was assuming that I might have formed a sensitivity after the last UTI and am simply going so often out of habit but the continuous tenderness and dull aching of my bladder says it might be something more. This has been persisting for over a month now. The dull aching is difficult to ignore at times and makes me feel pretty discouraged at the usual daunting list of daily responsibilities. It is also diminishing my sex drive as the ache is definitely highlighted during intimacy with my boyfriend. I've scheduled an appointment with an OBGYN for this coming friday and will hopefully have a little more clarity of what is going on after then.. I'll make sure to include that based on this thread it appears to be a common and undiagnosed problem. I'll share an update after friday!
P.s. Thanks for the advice of probiotic, D-Mannose, and marshmallow root tea, I've already started on probiotics and will look into the other two and let you know if it helps.
Hope all are able to heal quickly and completely!
Crissia
I had a horrible burning pain in my bladder. Frequent urination. Shaking in pain. 3 ER visits later and a urology appointment, I was diagnosed with a bladder wall infection. Similar symptoms to a UTI but only way to detect is with a scope into your bladder. Can't diagnose with a urine or blood sample. Doctor said to take low dose antibiotic for 4-6 months. Takes around 30 days to get any relief. Follow up after 6 weeks.
You may have pelvic floor dysfunction, which has many of the same symptoms as UTIs but is due to muscle tension rather than an infection. I had the same problem for several years and was on antibiotics all the time without being diagnosed. You can treat with physical therapy and at-home exercises which help to relax your pelvic floor. I suspect this is a very common problem with women that often goes undiagnosed.
Hi, I know this is an old thread but wanted to comment in case people come searching later, I have previously suffered the same problem. It is not uncommon after a nasty UTI to develop chronic inflammation in the urinary tract this is what causes most of the above symptoms. I personally resolved this issue after a few years of suffering by drinking marshmallow root tea, this acts as a mucus forming agent which coats the lining of the bladder etc allowing the body to heal itself and decrease the inflammation.
Also, only get the powder form of dmannose it's more effective than the capsules to flush out bacteria left over from the UTI.
did you ever get better?
I'm being told to wait it out. I'm afraid I'll never be the same again.
have you though it might be IC?
did you ever get better.
I'm being told to wait it out. I'm afraid Ill never be the same again.
I'm in the same boat as most of you. One day I was holding in my urine because the bathroom was in use at work and said "I'll just go at home" 2 hours later after a collision on the highway which delayed me over an hour, I was able to relieve myself. A day or two later my bladder felt like it was going to explode. I went to the bathroom only for a little bit of urine to come out. My Doc put me on anti-biotics because he thought I developed a UTI. 6 months later, I still have this dull pain in my bladder area. I had a colonoscopy done since the Doc wasn't actually able to pinpoint my discomfort to my bladder, also an ultrasound (which didn't find anything) urine tests.. etc. all negative. It seems to flair up every time I have a stool on it's way out so I don't know if it's my bladder being irritated by it. 27 year old male otherwise good health, don't know what else to do. It's really depressing having to live with this.
I began feeling the discomfort in July 2015 it has now been almost half a year that I have been dealing with this pain that leaves me crying in hopelessness. I was diagnosed with a uti in August and was put on two separate medications. Since the uti apparently cleared up I was in constant pain for three weeks. Throbbing pain in my urethra just incessant pain and pressure which is hard to describe because it is inside your body which only makes things worse when trying to speak to doctors! Now six doctor visits later I am experiencing this pain in varying degrees most days of the week. Thank god some days I get some relief. The last Dr. visit I had he came to the conclusion that I have a yeast infection. I am not hopeful! I am on some steroid cream for two weeks. I don't know what I am going to do if this pain doesn't go away I feel so hopeless and the doctors have no idea what is going on how is this such a mystery! I need some help and there are no answers from anyone I cry from the pain and the hopelessness each week this goes on. Moving hurts and work is torture. I'm in pain and discomfort and the people around me are sick of hearing of it. Well I am more sick of it trust me :( I'm 23 and am in otherwise excellent health how are there no answers when it comes to female problems!?
Hi, sorry i'm writing back so long after your post but did not get any notifications.
I'm sorry to hear you were going through such discomfort, believe me i know how horrible it is :( After my post i went to several urologists and carried out several tests and everything turned out negative. I thought i was going crazy cos i was still uncomfortable and the doctors looked at me like i was being paranoid and almost making it up.
The feeling of needing to pee even when i don't really need to never completely went away. Since my post I got another UTI (about 3 weeks ago) and stmptoms are the same. I guess I just got used to ignoring the feeling when i knew for sure i didnt really have to pee. I noticed the feeling of needing to pee was more frequent when i was stressed or anxious so I learned to calm myself down and occupy myself when i felt it.
It's not easy but i learned to live with it i guess.
One urologist thought actually gave me some good advice which might seem really basic and obvious but for me it was helpful. She told me to DRINK LOTS OF WATER ( i always have a bad habit of not drinking enough) and avoid drinking fizzy drinks and acidic drinks like juices for long periods of time, so like its ok to drink soda but avoid spending a whole day of drinking soda only, cos that might iritate the urethra.
I hope i helped even though cant really give u a solution. I too get bummed out sometimes knowing that i have to live with this but sometimes when my life is eventful and busy i realise that a few days passed and hadn't felt the discomfort once, so thats encouraging :)
Take good care xx
Hi guys... I know it's been a while but did your symptoms clear up? I hate this feeling of wanting to pee :( I'm from South Africa xxx
UTI may trigger either overactive bladder (frequent urge to urinate but no pain) or interstitial cystitis (an inflammation of the bladder with discomfort or pain in the bladder area — typically, the discomfort is worse than the bladder is filling and relieved when it's empty).
In most cases, both conditions are diagnosed by exclusion of other urological conditions.
I know your post was almost a year ago, but was wondering by chance if you could provide an update on your discomfort? I had a UTI in November 2013. The doctor said it was E. coli and put me on cipro. After completing the medication, I still felt like the infection wasn't 100% gone. My doctor then put me on Macrobid thinking that my infection wasn't responding to the cipro. Even after completing the Macrobid, I still had discomfort. It's 5 months later and I still have discomfort. I have been to so many doctors that tell me it's inflammation and irriation that will go away on it's own. I am currently on amtitriplyine for chronic pain and it appears to be helping but again it's not 100% gone. Will this ever go away?
Hi I know this post was ages ago in 2007 and it is now 2013. But i seem to currently be going through the same symptoms as you described and was wondering how things turned out for you?
I had uti about a month ago and was given cipro for 10 days and i've done a sample urine test after that and results show that i'm all clear and no longer have infection but i still feel slight discomfort down there especially after I pee! My doctor just told me my urethra might be irritation and a bit scarred after the uti so it just needs time to settle and heal on its own but its been about 2 weeks now :(
Will this discomfort persist? or did it stop for you after a while ? I'd really appreciate some help since i'm trying to do some online research on this and your description is the best i've found similar to what i have but don't seem to be finding any answers!
Also - I have recently read a comment by a doctor (it might have been even on this forum, but I can not find it), that basically you may still have some infection although your urine culture is negative.
I forgot to say how glad I am that your ultrasound was normal.
All the best to you,
Oshkosh
Cynthia - yes I will keep you posted. Obviously, since we do not have blood in urine , it can not be that bad, can it?
Have you tried Uva Ursi tea - it helps me calm it down. You can find it in the health stores, it is really very good for the urological things.
All the best to you, and I will talk to you later
oskgosh,
I'm in the same boat as you. I just got the ultrasound done and a urine test and they found nothing. I too have to follow up with the urologist. Keep me posted on your own findings.
Sincerely,
Cynthia
Thank you for sharing your experience.
I haven't gotten an ultrasound done but hope to asap. I'm glad you did the ultrasound. It's frustrating to have to wait and take all these different tests. I guess we just have to keep ruling out things until we find out the cause of our throbbing discomfort.
I had to give up coffee and dairy in order to calm my IBS systems. That did help a great deal. Hopefully we can get some answers and relief from a urologist in the near future. Lets keep in touch.
Sincerely,
Cynthia
Cynthia,
The same here. It has been four weeks for me . When I first felt it , I went to the general doctor, and she saw little blood and stuff (some bacteria), gave me three day CIPRO. Did not really work. She then gave me a week of Amoxicilin, and in the meantime my urine culture came back negative. But I still feel it : exactly as you say - little throbbing, not really pain, but some discomfort,and frequent urination. In the meantime I had pelvic/vaginal ultrasound, and my OBGYN said I had a small, benign cyst that he says will probably go away on its own. But he added that my urinal problems are not really connected to it. He also did my urine analysis, and it was clean. I do not know what to do , and I am planning on seeing an urologist. I should mention that I was diagnosed with IBS a year ago (my colonoscopy was normal), and they said that urinary urgency can be a part of it. I do not know.
I know I did not help much, but just wanted to share it with you.