Aa
Aa
A
A
A
Close
665881 tn?1248926997

"MS" How does your tingling feel? Where is it located?

Hi, i was wondering how the tingling from multiple sclerosis feels for you.

-If you wouldn't mind, could you please explain:

*How does your tingling feel?
*Where is your tingling located?
*How often do you expirience it?
*Do you only get it on your extremities?
*Do you only get it on your torso?
*Do you get it on both your torso and extremities?

Thankyou very kindly :)
Sammy x x x x
31 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Just responding again as I neglected to tick the "notify me..." option. Which I've now done. :D
Helpful - 0
Avatar universal
I get it (the "tingling" feeling) primarily in my left arm. My neurologist insists that it's "positional" and not related to MS.
I get it very frequently, no matter if I'm laying on my back or sitting up.
I used to play the guitar basically all the time, (at least some every day) but the near loss of gross motor control in my left hand has made this frustrating and rather difficult.
"It" feels very similar to a limb "falling asleep," like it you're laying on it, and it can often be alleviated/mediated by moving my arm about and flexing the various muscles.
Which DOES lend some credence to my neurologist's diagnostic claim of it being "positional." That it occurs, however, regardless of what position that I'm in just makes me wonder...  If it's positional and not MS-related, then why's it happening only on the arm most affected by MS, and even when I am flat on my back..?  Wouldn't either arm be affected?
#MSIssues
Stay positive, stay strong, and (I'm preaching to all who will listen about this, it's really THAT good) ask about Rituxan/Rituximab.
It doesn't do much as far as symptoms, but it has virtually eliminated by relapses, which were debilitating beyond description, brutally agonizing, and had been happening about each month or so.
I hope this helps.
r
Helpful - 0
3 Comments
if i were you if you havent already i would look into vitamins and the anticandida diet and also biofilm disruptors and probiotics.things like citrus incanus t,advance phase 2 bio and candibactin ar.make sauerkraut as a source of probiotics.balance your gut this is where your disease started .it is 80 percent of your immune system .yeast and molds cause many imbalances .if you get your immune system working again it will help immensly.you may be able to eliminate many if not most of your symptoms .ozone therapy has been said to be very effective against ms.by ms sufferers.brian aston  has videos on youtube on how it has eliminated most of his symptoms .he is able to work again he also does lhon therapy wich is restoring his vision.
Jocko I have no idea where you are getting your MS related information from but there is absolutely zero science based evidence that any of the types of remedies you have recommended will reverse or improve brain and or spinal cord damage from demyelinating lesions, nor is there any science based evidence that MS is 'started' from an imbalanced gut!

Leber's hereditary optic neuropathy plus (LHON plus) can cause some very similar symptoms to MS but Lhon is a genetically inherited mitochondrial visual condition predominantly occurring in males (approx 80%) and MS is predominantly occurring in females (approx 70%) and definitely not a genetically inherited mitochondrial visual condition...

"LHON is an inherited form of vision loss. This inheritance applies to genes contained in mitochondrial DNA. Mitochondria produce most of the energy that cells need to function and these inherited mutations disrupt the mitochondria and cause cells in the retina to stop working or die.

These ganglion cells are required to relay visual information from the eyes to the brain (the optic nerve). Egg cells contribute mitochondria to the developing embryo so only females pass mitochondrial conditions to their children (maternal inheritance). Mitochondrial conditions can appear in every generation of a family and can affect both males and females, but fathers do not pass mitochondrial traits to their children.

LHON is the most common mitochondrial condition and about 45 mutations have been linked to LHON.  The most common is the 11778 mutation, accounting for about 50% of all LHON cases.  About 45% of the remaining LHON cases are 14484 or 3460 mutations. Those who have lost their central vision due to LHON are often referred to as ‘affected’ and those with a LHON mutation gene but without vision loss are known as ‘carriers’. In some rare cases, patients do experience a significant recovery of vision and this is more likely to happen if you have the 14484 mutation.

About 40% of individuals affected with LHON do not have a clear family history of this condition. A person may carry a mitochondrial DNA mutation without experiencing any signs or symptoms of vision loss therefore it is hard to predict which members of a family who carry a mutation will eventually become affected. However, it is important to realise that most people do not go completely blind and their peripheral vision allows them to lead an independent life. "
http://lhonsociety.org/about-lhon

Lhon therapy research information : https://www.medpagetoday.com/meetingcoverage/aan/79725

Cheers.........JJ
Thanks very much to BOTH jocko AND supermum!
You have gifted me a wealth of things to research, and subjects to question my neurologist about.
I'm of the opinion that all knowledge is power in one way or another.
While the hard, fact/science based input from supermum certainly caters to that aspect of me...
I try very hard not to be blinded to the more anecdotal side of things, such as the things mentioned by jocko.
After all, someone like Montel Williams, who's referring to himself as "cured" by large doses of CBD extract, shouldn't be roundly dismissed just because their ideas don't fit the standard MO.
Again, thanks to you both!
MS sucks, and in the end all we have is each other (I've virtually no family/friends) and our doctors to help us navigate our way through this journey.
Stay strong, positive, and (you're both helping with this part) informed.
All the best,

MS_Phil
Avatar universal
I meant "attention seeking". Who wants that kind of attention?
Helpful - 0
Avatar universal
You all sound just like me....and I am still undiagnosed after 37 yrs, but I did have a negative LP when I was 20 yrs old because my Neurologist suspected MS due to seizures, falling down, weakness. But since the LP was negative I was basically written off as it being attended seeking/drug seeking/all in my head.  Well, it has progressed for 37 yrs & I have been permanently disabled since age 24. I am finally being seen by an MS specialist next month. Still waiting patiently... and I KNOW it's not all in my head...maybe in my spine too!
Helpful - 0
1 Comments
This is what I’m afraid of ! Being written off . I just know these feelings are not in my head .
Avatar universal
hello, sammycung
same as you i have also same tingling problem in all body part please if you have any solution please tell me
thanks
Tej
Helpful - 0
Avatar universal
hc1
Oh my gosh, finally you said exactly what I've been feeling but couldn't describe!  The numbness feels like it's on the inside because I can still feel everything on the outside!  Thanks for that.  My face has been that way for 3 days.
Helpful - 0
1350533 tn?1276790198
I get pin and needles, tingling and numbness in my hands, feet and sometimes in my arms and shoulders. I notice that it happens more often on my right side. Also the numbness feels like its in the inside because I can still feel everything that touches me. It comes and goes throughout the day. My right side of my face has also tingled a few times, but it has never went numb. My coordination and balance has really been off the past couple of day. I'll start walking then stumble.
Helpful - 0
8969979 tn?1400905436
Hi I know this is old. But I have been looking for someone that get a line on the back right about in the area of the bra line. You are the first that I found. Mine only happen once, but i thought it would never go away. But i was under a lot of stress at the time bc of my daughter who was 8 months at the time was in the hospital. that was over 5 months ago. And I had serve weekness in my right leg.
Helpful - 0
4083235 tn?1351032252
I get the "buzzing" feeling too! :)  
Helpful - 0
Avatar universal
You are the only other person I have read anything by, that also uses the term buzzed, that is how I would explain my ms tingling or whatever is a buzzing feeling
Helpful - 0
6795181 tn?1384878502
   Its feels sort of like electric tingles and it travels from my scalp down to the
     very tip of my spine. I only experienced it once just now and can someone
    tell me what it is?? And does anyone even know??
Helpful - 0
Avatar universal
I have the identical feeling on my calf (feels like i forgot to dry it) and then sometimes there is a hot sensation.  I would love to to hear what your doctors tell you about it.  I hear that Germany has some of the best health care in Europe.  You can email me at ***@****
Helpful - 0
3129818 tn?1342453419
can you tell me why you have them
anna
Helpful - 0
3129818 tn?1342453419
all the stories i have read sounds like me. i just went to a doctor because i thought i was going crazy. numbness in patches throughout my head time tand tingling like its sleeping.my spine in all  areas my left arm and both my legs and feet/the doctor wants to run all sorts of test, but i am so burned out/ i have been in and out of the hospitals like a revolving door.i have had so many cat scans and mri's my hair is starting to fall out. its comforting to see other people experiecing the same thing,so i don't feel like i;am going nuts
Helpful - 0
Avatar universal
I started experiencing that same thing just few weeks ago, is it MS? Should I go to a doctor?
Helpful - 0
704043 tn?1298056844
  well  that  muscle pain  could b  from  a  spasum - i have had them  where it goes clear  2  the bone!??  - hurt  very  bad-

so  it could b  a  nu.  of things  i  hope!  let  us know!  hugs  tick
Helpful - 0
562511 tn?1285904160
Hi.  Your comment is at the end of this thread.  More people will see your post and have an opportunity to comment if you create a new question.

Welcome. Looking forward to your "Post a Question."
Helpful - 0
Avatar universal
Hi, I'm new here. I'm 35 years old and  am terrified of MS. My left pinky and sometimes one foot or the other feels "weird". I can still walk and control them though. This has been going on for at least 12 years. Don't seem to have numbness or tingling in my body. Have had eyelid twitching and major muscle pain. Wonder if it's Fibromyalgia rather than Ms. Any ideas?
Helpful - 0
Avatar universal
Let's see:

How does my tingling feel?  It feels mostly like pins and needles, though sometimes I get a wet feeling, twitching or stabbing pains.  

Where are they located?  Face: scalp, tongue, uvula, lips & eye lids.  Torso: left side of upper back.  Limbs: left arm, both feet, and left leg up to my knee.

How often?  Every single day for my feet.  The other areas maybe every other day or so.  My facial ones are the least often.  However, I might feel this way because I'm better able to ignore them now that I know why I have them.

HTH,

ST
Helpful - 0
941625 tn?1263581782
Hi there,

I get lots of tingling in my left leg, foot and side. It feels more like a constant thrumming vibration but fairly mild.

I recently went through a period of "firework" like tingling in my scalp, calf and stomach where it felt like a small firework bursting with a tingle then fading out to the thrumming feeling.

I have tremors in my head and left hand now too. Periods of numbness in my foot, burning feeling on various parts of my body. And to add today, I have on and off felt like I have a wet leg. My lower leg feels like I just got out of the shower and forgot to dry off that leg ... strange.

These things can really drive you crazy, huh? I'm undergoing diagnosis now ... delayed some at my fear of needles and my dislike for the doctors here in Germany.

Hang in there. I know it's all so strange. There are great folks on here who can definitely identify with the strange things you are feeling.

Blessing,
ArmyGirl73
Helpful - 0
989689 tn?1333548520
I am brand new MS, so I'm not sure which tingling deals with what.  There is a few different I feel. But the most frequent feels like it starts around my chest, and in a straight down across my body, feels like one line of vibration shoots down to around my knees. Happens a couple times an hour minimum. Sometimes it happens 2-3 times a minute. The others haven't happened enough for me to really figure out where exactly it is or what if feels like. Just know that it had happened and took me by suprise.
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hi Sammy,

I wont go into everything but.........

Q. How does your tingling feel?
A. pins and needles, numb, dead limbs to pain, hot to cold

Q. *Where is your tingling located?
A. Both legs, Both arms, both hands (thumbs & 2 fingers), both feet, nose tip, left cheek, right crows feet area, buttock, left waist between ribs and hip, left ribs (baby hugs)

Q.*How often do you expirience it?
A. Legs everyday for about 20 years, arms everyday for about 15 years, everything else only during episodes starting 6 years ago and adding to my list of weird things

Q. *Do you only get it on your extremities?
A. Mostly but now have the face tingles, baby hugs started 2008, tingle between rib and hip is new to this episode

Q. *Do you only get it on your torso?
A. See above [note: baby hugs for me are both tingling and preasure]

Q.*Do you get it on both your torso and extremities?
A. Yes [see above]

I too am not dx but unless a new disease with my name on it comes along, it's looking like i've had MS for half my life, i'll know at the end of the month.

Cheers.....JJ
Helpful - 0
338416 tn?1420045702
I get tingling on my back, as I said - it's usually in a line around my torso, a little bit above the braline.  

It's in the same area that also gets muscle cramps, and it's in a line with the esophageal spasms I get right behind my sternum.  So my 'uneducated' guess is that I have a lesion there, but my oh-so-wise neuro believes I do not, after looking at the .7T MRI results that he scheduled me for.  No, I'm not bitter!
Helpful - 0
665881 tn?1248926997
Wow, thanks for all your replys guys, you all have such different symptoms, i can relate to the goose bumps in weired parts of my body, they appear in little patches, and i'm not cold when they happen. I get the hot and cold patches of skin, it sometimes feels like someone is putting warm water on my skin, or my skin feels like it is near a heater.

I also get muscle twitches in almost any part of my body and i too can see then just by looking at them.
My tingling sometimes comes in waves over my scalp and down my body but more commonly i get little tingles all over my body but not at the same time.
I get it on my legs, feet, arms, hands, stomach, ribs, underarms, hips etc.
I have not even been diagnosed with MS yet, I'm sure that i have it though.

None of you guys seem to get tingling on your torso???

I have so many other symptoms but i would be here forever....balance, vertigo, buzzing, spasms, etc etc etc....blah blah blah!
Helpful - 0
2 Comments
Hey Sammy, I have many of the same symptoms as you, however, I was diagnosed with viral myelitis.  Basically, a virus attacked my spinal cord they believe.  I have tingling across my back, hands, feet, hot spots around my body, both knees felt wet like they were submerged in water, body wide muscle twitching...among other things. Until you have a MRI on your brain, cervical and thoracic, it'll be hard to say.  BUT, it could be simple things like lack of vitamin D, or B6 toxicity if you're taking supplements.  Shoot me a message if you want to chat more.  Good luck!
Just letting you know that sammycung hasn't posted anywhere on medhelp since 2010 so is very unlikely to respond to your post to her. Cheers....JJ
2
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease