Congratulation on your new baby girl. My daughter was born without a thyroid gland and she is 10 now and normal. Although there have been a few issues here and there with medication and diet and weight and other hypothyroid symptoms, as far as intelligence and growth, she's above and beyond! My daughter started Synthroid when she was 3 weeks old. She was on this until trhe age of 8, but we had some complications and had to change to a different med. for thyroid hormone replacement. Being born without a thyroid gland is not to be taken lightly as it is an important gland that has an affect on just about everything in the body. Your baby must have enough thyroid hormone for the brain to grow and the body to develop. Stay on top of things, and go to labs and always get a copy of the lab slip. Start a journal where you record all info. from doctors visits and keep track of milestones. Always give her her meds. If nursing, I'd continue. I nursed for 1 year. There is traces of thyroid hormone in breast milk and many other good things. Never use soy formula. Never skip her medication as it is very important. Last but not least, try not to worry to much but be deligent and learn all you can. The doctors won't teach you much, so you must teach yourself. If you have any specific questions you can private message me and I'd be glad to share anything I can as we've been dealing with this for 10 years now. God Bless!
My daughter is now 2 weeks old. The pead did the TSH test when she was born, as her count was very high (over 100), they thought it might still have been my hormones impacting, but did the test again later and the count was still so high. They started medication on day 2, and she's been taking it since then. When talking to people and reading about this condition it seems that if found early and treated correctly she will suffer no long term damage, but it is still unsettling, though (I think it only really hit me this week).
It is comforting to come across people who have the same condition and are fine.
Hi.. I am 28 years old am the mother of a 16 month old baby girl who is perfectly healthy by the way and am expecting the arrival of my son due in August. My hypothyroidism was detected first through the PKU test in 1982 then confirmed to have no thyroid through radioactive iodine uptake scan. I have been taking synthroid since I was 1 week old. I was a bit overweight while growing up but I am not sure if my mom knew how the things we put in our body can affect our hormones. It may have been the result of a little girl who loved sugar? As an adult, I eat healthy and exercise very regularly and have very little trouble with my hormone levels or weight. During pregnancy it can be a bit tricky as everything changes from trimester to trimester.
Hello! Welcome to med. help. My daughter was born without a thyroid gland in 2000. I'm happy to hear that you had a baby with no issues. My daughter has asked me before if her kids will also be born without a thyroid gland? Weight and blood sugar issues have been an issue for my daughter in the past as well as many other hypothyroid issues when on t4 only Synthroid. She could not convert enough of the t4 into t3 and it was really beginning to take its toll on her health over time. I switched her to desiccated thyroid hormone over a year ago and slowly but surly all her hypo health issues have resolved themself with the addition of the t3 that she so despretly needed. We have also made lots of changes in diet (gluten and yeast/fungal free) We focus on organic and non toxic as much as possible and avoid sugars,regular milk, artificial sweeteners,peanuts and processed carbohydrates. We try to eat real food without all the additives as much as possible, with lots of lean protein, fresh fruits and veggies in her diet. Her food cravings and excess hunger are gone (blood sugar more balanced) and her weight is decreasing slightly as she is growing taller! I think we are finally on the right track for the first time in her life! She is doing great! Would love to hear a little more on your experience of living life without a thyroid gland. You can send me a message or post it here if you'd like to share any advice with us. Thanks so much and it's been nice meeting someone else like my daughter! (It is a rare find as you probably know!)