Fibrous Cranial Dysplasia

[lulou]

Where can we find Doctors who specialize in Fibrous Cranial Dysplasia.  We live in Central Wisconsin and would like to find someone nearest to us.

[Jorl]

I have FD also. I had a tumor removed from being sandwiched between my skull and frontal sinus bone. I still have horrible headaches daily but no more sinus issues due to extensive sinus repairs. I had been referred to
Dr. Woodworth at (UAB)  University of Alabama. He is educated on how to treat anything related to what I had and if there was anything that would go wrong during surgery.  

[bnbeats]

i am a 31 y/o male with cranial FD and i live in south east wisconsin.  i have had very little luck finding any doctors in the area who are familiar with this.  please let me know if you find anything, and i will do the same for you...

ben.***@****

good luck...

ben