I comented already and I had a reason to be scared. My daughter died at 4 months in March 2017. I now have a diagnosis in October 2018. She had a mitochondrial condition. There is no name for it yet but the genetic specialists call the DNA strand TSFM. There are only a handful of babies having this. If anyone has had a child with TSFM please respond.
Hi, my four months baby had the same issue with lactic acid as 12 with no reason being found yet. Please contact me at ***@**** if any one knows more about the reasons. Please.....
Hi there. I am glad i have found you. But to be honest....your post scares me a bit. My daughter is 3 months old and has high lactate. Unexplained. It goes up and down. Mostly goes down when she has less milk. Goes high when she has more milk and drinks well. She also has atrial ectopic tachycardia. But apparently it is a completely separate issue from her lactate. My daughters highest lactate has been a 12.5. Im scared that it will go higher. Im scared that metabolic and geneticists still havent found any answers. So far we are at home. But that can change at any moment. Your email is blocked so i cant email you. Im so sorry for your loss. I cant ever imagine what loosing your child would be like...but i do understand your confusion and desperate need to understand what happened and why. X