Back of my brain shakes when I walk.

[bekman]

Back of my brain(occipital lobe) shakes and gets hurt when I walk. Particularly when I step on my heels. Also as I ride a bike it shakes and gets hurt on most of the road bumps. So when I walk back of the brain hurts and my right eye gets a little heavy coz of the occipital lobe's lower part shaking. Please solebody help with advice.

[Leebarn82]

Hi,does the back of your brain still feel like jelly when you walk?

[bekman]

Ah, by the way, there were reports that psilocybin might help brain recover from injuries. Why not research into that a little???

I think we should look everywhere.
Best regards

[bekman]

Hi, again I wrote a long reply and it got deleted.

So to make it brief, vinpo is bad, m'kay. Better ditch it as it can decrease white blood cells which can and did make me sick. Almost caught bad cold. Ditched it yesterday. Was taking caffeine pills along with it. Those are still good.

By the way, there is a Reginokine or blood spinning therapy in Duseldorf, might be worth trying. They do it in US too, i think.
Also there is some oxygen therapy that ** PENN used to do.
I read some stories related to brain injury recovery, and they mentioned barric oxygen and large amounts of omega 3 fats.

I think that's all for now. If you find something, please let me know.
Best regards!

[Ball123]

Oh, and i have another test for you if you want. You sit down and take your pulse. Then stand up and try to stand still. After one minute of standing you take your pulse again in this standing position. If the pulse goes up more than 30 beats per minute from sitting to standing this can indicate some kind of blood pooling problem, like POTS (google it). Could be interesting.

[Ball123]

Hi! I am a male. I don t think it is a sinus problem because I went to this ENT. He could be wrong but it wouldn t be my first guess. But sure, anti-inflammatory drugs could be worth trying. Propranolol and the other drug you mentioned too. Anti-depressants, they might work. I have Always felt like the blood vessels in my head are too wide somehow. And if this is caused by some imbalance in signal substances the antidepressants might work. Then I think you should try some SSNRI drugs, that is Serotonin-norepinephrin reuptake inhibitors. They are sometimes very good at bringing the substances back to "balance". And when these drugs are used for other purposes than fighting depressions they typically give good results in very small doses. So you don't need to take normal doses. But I think you should discuss this with a doctor to get the dosage correctly. Maybe you shouldn t try all the drugs at once. Start with one and try it for some weeks, then change.  

[bekman]

correction: there are 5 sinus cavities in the skull/the head, not the brain.

[bekman]

Also, I think in this kind of case when one gets headaches from brain shakes, the person sometimes might need some anti-depressants, right?
if you had any good experience with one, could you suggest it?
I usually drink monster energy. Of course, though, the best anti-depressant is being rich and having enough resource to fix your problems. I would guess. )

[bekman]

Hi!
Good to hear from you. Actually, I did check my pulse when I first read your comment about the pulse thing, and it was around 60-70 beats per minutes. Same result just now. By the way, I had a monster energy drink today, so I wonder if that affects the result. 35 beats per minute seems pretty low. Do you think you might have anemia?  Btw, are you a male/female?

Also, could you again describe your symptoms in more details just to compare. I ordered Vinpocetine and Propranolol, will see how it works. vinpocetine is supposed to improve the blood flow to the brain and oxygen supply, so it might help overall. Also, I started taking headache meds with ibuprofen and caffeine in it. Made in japan. I take one pill a day. Sometimes two. It is supposed to reduce swelling, inflammation, alleviate pain, etc and the caffeine in it helps keep you warm in winter. Also, I'd suggest eating broccoli daily. It is a question of will, coz many people don't like broccoli.

By the way, have you ever tried Keppra? If you get a chance, you may wanna give it a shot. It is supposed to increase the number of neurotransmitters in your brain, etc.

Also, you mentioned something about sinus problem, and I wonder if it has any root to this problem. Coz there are like 5 sinus cavities in our brain, maybe it's somehow related.

Although, I don't exactly remember if I had these symptoms before I fell and hit the back of my head. But a year ago, I could feel the brain in the back of my head shake when I walked, but I didn't feel pain, I wonder why. Maybe I didn't pay enough attention to and took headaches as a normal thing.

Anyway, if you find out anything, please share with us. Looking forward. And lets "ganbarou"! as japanese say. :)

[Ball123]

Hi!

So, I have been to the heart doctor. I have very low pulse; sometimes around 35 beats per minute. But the doctors are not sure if the head stuff is caused by that. (Otherwise the low pulse doesn't bother me so much). If you want to you can check your pulse and blood pressure so we can compare? Normal is considered 60 to 100 beats per minute during resting. But it is maybe not connected..

[bekman]

Hi!

Good to hear you are getting the necessary tests. You might wanna consider a second opinion on your ears and nose, if you feel like that might be the case. Keep us updated :)

[Ball123]

Hi!
The ear doctor said that my ears and sinuses are fine. The problems can not come from these, he said. But my other doctor thinks it is a heart problem so now she sent me to the cardiologist. I already had an ultra sound test of my heart and soon i will have a 24 hour ECG plus many more tests. I am of coarse grateful that they do all these tests on me, but i rather think they should focus on the head instead. But who knows..

[bekman]

Hi, Ball123, hope you are well.
I doubt it can be caused by sinusitis. I had sinus problems my whole life, and I didn't have serious issues with it except left nostril being closed almost always. But a nasal spray helps it. Also supplements with zinc+calcium+vitamin D and broccoli. Hope this helps. Also this might be a unconventional medicine, but when I wear a magnetic necklace on my left shoulder, yes shoulder, not neck haha, it helps the sinus problem.
Or it can be just a placebo effect. I discovered that when I strained my shoulder and had to wear a magnet loop on it to alleviate the pain.

[bekman]

Hi, Sam.
Sincerely hope you are better.
I have done some research, and found this http://www.madsci.org/posts/archives/1998-02/884706981.An.r.html  

It is a very interesting post related to this issue. It might be Subdural hematoma. Back of my head feels like jelly which is easily shaken.
It also might be because Galen vein at the back of the head is filled with blood. The symptom is when I step on my heels I feel back of my head shake a bit like jelly and it causes headaches. Yes, as you mentioned, it can be alleviated by wearing insoles but not 100%. Honestly it made me very sad when I found out that an activity which I very like ( simply walking) can cause headaches. Also I used to like shadow boxing and taekwondo, can't do that too much now.

But anyway, it seems like you have access to many doctors and maybe if you find out more, I'd like to know about that. Please don't forget to share . Cheers

[Ball123]

Hi!
Honestly I don't know if I have the same stuff as you guys because I don't really recognize this with the eyes. But anyway I saw a new doctor today. She reacted on my low pulse and said that this might be what is causing my symptoms. Therefore it would be interesting to know if you guys have bradycardia (low pulse) too? Or if you don't, that would of coarse be equally interesting:).
Anyway, soon I will see the ear doctor too.
Have a nice day!

[SamPCS]

Interesting you mentioned about your head injury.  I had a closed head injury 4 years ago, hit the back of my head and have similar problem.  Saw about 20 specialists (not exaggerating) and no one can find a cause besides my brain trauma.  Tried so many therapies and meds (very long list)

Now for the past 3 weeks I have trying insoles which helps a lot with heavy feeling of eyes and for my balance(also affected because of this).  I am even surprised it works and it costs only few dollars (I spent thousands of dollars for other treatment with no positive results).  I am going to be back to the Physical Director at rehab center and pursue this.  My issue seems more like physiological than mental.  I am seriously thinking about getting some occipital nerve blocks.

[Ball123]

Hi! I didn't get MRI yet. But now I think that it might be connected with the nose problem. I read that people with sinusitis can have very mysterious symptoms so I will go to an ENT next week and hear what he says about it. Maybe it is an infection.

[bekman]

Ball123, yes, by the way, I do have plugged nose, the left side.  Any sense of dusty air and it gets closed. Anyway, talk later)

[bekman]

Ball123,  thanks for the kind wishes!
by the way, what were your guesses? did you get MRI?
any details?)

[bekman]

Doc, one more question, back of my head, the occipital lobe feels like jelly kind of matter. easily shaken. is it supposed to be like that? Also, about 4 years ago I slipped and hit back of my head, could it be the reason.
Doc, hope you are well. Thanks for your reply!

[Ball123]

Hi!
I thought I had some idea for a while but now I am not so sure. But if you don't want to do a x-ray or MRI then there is a medicine called Indomethacin that might work, or Propranolol. Maybe you can check that with your university doc. But ask your doc first. May I ask you if you have any other symptoms, a plugged or runny nose for example. Is your heart rate and blood pressure normal?
Good luck with the exams!

[bekman]

Hi! Sorry for late reply, I actually wrote an elaborate reply to you once before, but it got deleted coz my phone froze )).
also I've been busy with exams, etc. So how are you?
I haven't been to doctors except to my university doc. Coz u know, it's a bit pricy. But I was planning to go, but then different plans, etc. So I bought insoles for my shoes to step lightly. Also eating veggies, etc. How are you? What did you find out? )

[Ball123]

Hi!
Have you got any results yet?

[Ball123]

Maybe we have the same thing..
I have some ideas. I will get back to you!

[bekman]

Thanks, doc! I appreciate your insight! thanks!