So I guess I'll start with the fact that we have family history that I only found out about now after my child broke her 2nd bone in 5 years (just by smacking her shin)
My daughter has had issues since she was an infant. She had severe global delays, is flat footed and wore AFOs for her ankles being wobbly, she was in EI for 3 years and then in special needs preschool, her skin is very very pale and you can map out most of her veins, she's got wide set large eyes and 0 nasal bridge, she's hyper flexible, and her fingers, wrists, elbows, and knees over extend, she has chronic pain which we were told is 'growing pains'
When she was 4 she went to a genetic doctor who took blood, did xrays, and said she was fine. Then she broke her wrist by falling off the couch, now she's broken her leg.
Her skin is very stretchy and bruises so easily.
My father and half sister both have EDS. I've got SI joint dysfunction, extreme chronic pain. And I just don't know where to go from here?
Who do I take my daughter to see now? How do I find a doctor?
I'm attaching a photo and you can see her over extended finger joins on her first few fingers. Her thumb can touch her arm when she bends that too.