Aa
endometrioma same with endometriosis?
Hi I am reese 29 I have some post to ovarian cyst & ovarian cancer forum I am diagnosed with 2 ovarian cysts 10&7 cm. last Dec. 2013 they are stick together my question is endometrioma same with endometriosis? my 2 cysts called endometrioma & endometrial polyp,what is the symptoms of endometriosis? I have pain for 2 months now, my symptoms are severe pain in my abdominal cramps,diarrhea, Dysmenorrhea,feeling bloated,sometimes heartburn I don't know if related on my cysts?fullness even I eat little,pain in my back,weakness,on/off fever for more than 5 weeks but now stop when I have hormone injection last Dec 19 2013 but the pain don't change,I have MRI scan in my abdominal & pelvic it show cysts are stick together my OBGYN said he can't do surgery only in the big hospital like medical team do surgery& I have a slipped disc in back it is related in my cysts? & I have a blood test my CA 125 result 137? my CA 19-9 result 74 I read its not normal right? I ask him if my cysts turn to tumour or a cancer he can't say yes till the biopsy, he said he will sent my result to my GP then my GP will make an appointment for surgery in royal London hospital I will wait for 4 to 5 weeks, I am scared for Cancer I don't have family history of cancer even tumour,I am sorry for my long post ...I know I am not the only one to have pain like this I am depressed :(
Mr Cutner private centre BSGE accredited at King Edwards VII was shut 2021. Cutner no longer in accredited centres list
Anyone know why?
Anyone know why?
Hi..thicked thanks for the reply,Homerton hospital request for the disc of my MRI scan from my Gyne. when they get all the report MDT will suggest what is the next step, my next appointment is Feb,25 I will wait again :(
Ugh so frustrating that is why it's so important to keep all your records no matter what. Bring your own advocate is important and crucial. So what happens now?
Hi..Thicked I went to my hospital appointment for acute gyne today but still NO good news they don't have a copy of my report that why they don't know what they doing,weird because why my GP set an appointment to the hospital then he don't sent my report to the hospital? luckily I bring the copy also I give it to him I told him I have MRI scan & blood test done,he only have 1 letter from my GP but in the letter I need to meet MDT? & they need a copy of my MRI & blood test but its already in the letter I don't understand,its look like I will get started again still no appointment if I can have a surgery I told him I have 10&7 cysts and endometriosis and he did checked me he said its look like I have endometriosis..I understand what the doctor mean even I have surgery I still have endometriosis all I want is to have surgery for my cysts because I still have lots of pain 3 months now I am tired waiting for nothing my next appointment feb.25 & sent me to another hospital..
Try to get in contact with the UK org and read over that info and maybe go back in to see the GP again. Let me know if this helps
Best thing is to keep pushing and this is where it comes so hard for us dealing with this disease. You have to fight for your own health.
Try speaking to someone here http://www.endometriosis-uk.org/ they might be able to help you out.
Here is another UK article about talking to your GP
http://shetrust.org.uk/wp-content/uploads/2012/10/Approaching-your-doctor1.pdf
Try speaking to someone here http://www.endometriosis-uk.org/ they might be able to help you out.
Here is another UK article about talking to your GP
http://shetrust.org.uk/wp-content/uploads/2012/10/Approaching-your-doctor1.pdf
Hi Thicked its me again Reese sorry for disturbing you again & I hope you understand my bad English too... my GP called me today about my operation he gave me an appointment to another hospital homerton hospital & I asked him if possible to refer me to UCLH specialist for endometriosis and he said homerton hospital they know what they doing for me I don't want to complain because I am new here in London I have 2 years visa that why I have free hospital treatment I have an appointment for check up on Feb.04 to homerton hospital, I am scared you said if not endo specialist do a surgery it will come back I don't want to have bad pain everyday, I read no cure for this disease only stop the pain,I can't do anything ....only cried for this pain.
Thank you so much I will ask to my GP about that Doctor & hospital I really appreciate your helped again thank you :)
Hi Thicked thank you for your response, when my tube removed my gyn don't say anything about cyst only she said is twisted & I ignored because I don't have idea also about cyst I thought already finish because I have surgery done I didn't know it will came back & worst pain, when my period started at 13 I already have worse pain I don't go school always happen when my period will come I am in bed for 3 days, May 2011 my tube removed then I go to other gyn for checked my surgery she press my abdomen then she suggest me to tranviginal ultra sound this is the result my ultrasound from 2011 & 2013
JULY 2011 IMPRESSION: MYOMA UTERI WITH THICKENED ENDOMETRIAL LINING. NORMAL BOTH OVARIES
DEC.03 2013 COMMENT: Likely Endometrial polyps.Two large endometriomas posterion to the uterus and extending into adnexa.
DEC.19-2013 Large Bilateral pelvic masse, 2 ovary cysts [10&7 cm]? nature,thick endometrium 2.2 cm chronic pelvic pain [urgent]
that my result, my question I am from NHS do you think that hospital allow to treat even I am from NHS? thank you again.
JULY 2011 IMPRESSION: MYOMA UTERI WITH THICKENED ENDOMETRIAL LINING. NORMAL BOTH OVARIES
DEC.03 2013 COMMENT: Likely Endometrial polyps.Two large endometriomas posterion to the uterus and extending into adnexa.
DEC.19-2013 Large Bilateral pelvic masse, 2 ovary cysts [10&7 cm]? nature,thick endometrium 2.2 cm chronic pelvic pain [urgent]
that my result, my question I am from NHS do you think that hospital allow to treat even I am from NHS? thank you again.
Okay so an Endosister go back to me and she had a case in which I think would be similar to yours stage IV which I think yours is and she said this doctor is amazing and speaks really highly of him
Dr. Alfred Cutner,
UCLH Endometriosis Centre*,
University College Hospital,
235 Euston Road,
London, NW1 2BU
T: 0845 155 5000
*BSGE accredited endometriosis centre
As for your other questions yes all could be related for sure depending on the severity of your Endo and honestly when I read your symptoms and findings it sounds like Stage IV to me but you can only tell by surgery. In 2011 did the surgeon not mention Endo??
I would definitely ask your GP to send the referral to the place and dr above to start. Please don't take the risk of going to a surgeon that does not know what they are doing. This is something I express to everyone that hasn't had surgery yet or even has. Excision by an Endo specialist is Key to pain relief.
Dr. Alfred Cutner,
UCLH Endometriosis Centre*,
University College Hospital,
235 Euston Road,
London, NW1 2BU
T: 0845 155 5000
*BSGE accredited endometriosis centre
As for your other questions yes all could be related for sure depending on the severity of your Endo and honestly when I read your symptoms and findings it sounds like Stage IV to me but you can only tell by surgery. In 2011 did the surgeon not mention Endo??
I would definitely ask your GP to send the referral to the place and dr above to start. Please don't take the risk of going to a surgeon that does not know what they are doing. This is something I express to everyone that hasn't had surgery yet or even has. Excision by an Endo specialist is Key to pain relief.
Hi Thicked Thank you very much for your reply, I live here in Central London City my post code N1 6TX ,yes you are right my gyn said he can't do a surgery only the medical team will do, he will sent my all reports to my GP & my GP will set an appointment in ROYAL LONDON HOSPITAL,did you think in that hospital the right to do a surgery?& I have a surgery done before last May 2011 removed my right fallopian tube twisted, and about my slipped disc in my back do you think it is related in my cysts? thank you Thicked for your helped..
Reese
Reese
Yes if you have an Endometriosis that is a blood filled cyst and it is an indicator of moderate to severe disease. All the symptoms you have are symptoms of Endo.
The position you are in is where I was in 2006 and that is was led me here. My CA-125 was 78 however a CA-125 is used for multiple things not just cancer. To me it sounds for sure like Endo and severe possible Frozen pelvis which means everything is glued together inside with adhesions as well.
The only way to remove is through excision surgery. Where do you live? I can find you the best Endo surgeon in your area. I say this as this is very very important. Your first surgery for this disease has to be done by an Endo specialist and no other. I mean no Gyno no OBGYN none of that. You will thank me later trust me. Do not let a mickey mouse surgeon operate on you because if you do you will end up like many and I mean I have met women that have had over 24 surgeries for this disease and if done right by the right surgeon could be 1 or 2 max. So please let me know
The position you are in is where I was in 2006 and that is was led me here. My CA-125 was 78 however a CA-125 is used for multiple things not just cancer. To me it sounds for sure like Endo and severe possible Frozen pelvis which means everything is glued together inside with adhesions as well.
The only way to remove is through excision surgery. Where do you live? I can find you the best Endo surgeon in your area. I say this as this is very very important. Your first surgery for this disease has to be done by an Endo specialist and no other. I mean no Gyno no OBGYN none of that. You will thank me later trust me. Do not let a mickey mouse surgeon operate on you because if you do you will end up like many and I mean I have met women that have had over 24 surgeries for this disease and if done right by the right surgeon could be 1 or 2 max. So please let me know
Have an Answer?
You are reading content posted in the Endometriosis Community
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
Normal vaginal discharge varies in color, smell, texture and amount.
Bumps in the genital area might be STDs, but are usually not serious.
Chlamydia, an STI, often has no symptoms, but must be treated.
From skin changes to weight loss to unusual bleeding, here are 15 cancer warning signs that women tend to ignore.
