Scalp is covered in white waxy substance that my hair is stuck under

[VVSFrick_1314]

So I broke out with a fungal infection all over my body well my scalp was then infected and the whole ordeal was so weird and nothing I ever seen or heard of before it left me so confused . I can’t find anything online about it which is so frustrating cause I have no idea how to treat this . Anyway it started out with somewhat of an itchy scalp with these tiny little dots all over that felt gritty like sand and were mostly around the crown of my head . The 2 days later the dots were gone and I had these dark little hairs shooting straight up all over my scalp which looked so odd well later on that day I noticed my hair line looked like it was shaved off and within an hour it was even further back with more of my hair all from the front of my head missing and looking like it was shaved my hair appeared thin all over like my hair was falling out . I then for some reason decided to take tweezers and pull at the little hairs shooting out of my scalp and what I never was expecting or thought even possible was to pull a full stand of my bright red dyed hair from my scalp !! I started pulling more and more and thick long tuffs of hair were gliding out from my scalp with hardly any effort and I started pulling the hair from my hairline that vanished earlier and when I pulled on them the hair was back again and I had my hairline back and my thin hair was back to being thick but it wouldn’t stay and my hairline was back to missing and looking like it was shaved . So I pulled at the little stubs again to get my hair back this time filming it so I could show anyone because it was so insane I couldn’t believe what was happening. All night I sat in front of the mirror playing tug of war with my hair scared that I wouldn’t be able to keep my hair permanently. The next day after passing out from doing that all night I instantly ran to the mirror and saw all the missing hair from my crown and went to pull it back out but this time there was some resistance and wasn’t gliding out with ease as the night before . Later on that day I could no longer pull any of my hair out and it was like a normal scalp if I pulled there was pain and pulling any harder would rip the hair from the root . I was devastated I was now stuck with bald patches along my entire hairline in the front of my head one patch going back pretty far with no way to cover it up and my right ear completely exposed with no hair to cover my ear . Within a couple of days I noticed my scalp looked really white and felt almost waxy . I decided to wash my hair and use my husbands tar shampoo. When I got out of the shower and dried my hair I could really see how white my scalp was and the weird film it had over it . It literally felt like candle wax I then pulled on the little stubs of hair coming from the missing patched and with some pulling my hair came out I was freaking out again I started pulling more and more hair came out it was now like it was trapped under this sticky feeling substance. So now I realized my scalp was encased In this thick white waxy sticky film and that a lot of my hair got trapped underneath it . There are even some baby hairs that are coming from my face more than my scalp cause it’s skin and I could actually see the fine hairs trapped under my skin but with some pulling can pull them out . Which makes this weird substance on my head so weird cause it’s obviously thick enough to completely cover tuffs of hair without making them visible but thin enough you can’t see it and it looks just like your normal scalp and skin so I’m extremely baffled. Also every time I pull the hair out of the sticky substance it ends up disappearing again . I’ve been showering a lot and using the tar shampoo and also purchased different fungal shampoos and every time I do the scalp becomes less sticky and now it’s very dry with little flakes of dandruff but barely that much and the hair is still sticking underneath. I was hoping if I got it super dryed out it would start to flake and release the hair but it hasn’t worked and now that it’s dryer it’s getting harder to get the hair out . I am so confused I have no idea what I’m dealing with  or even how to treat it I’m scared I’ll never get my hair back and have bald spots all over and thin hair . I’m even starting to get big bumps now from it becoming infected because of the hair being trapped because these are big wads of hair not one little strand . Around my hair line it looks like I have huge thick veins running along my head when it’s actually hair you can actually rub my scalp and feel large bumps and can feel all the hair underneath it’s so weird . My family is so freaked out they can’t believe what’s going on with me we all tried looking endlessly online and can’t find any help I’m getting so tired of this and just hope I can cure this I also noticed the roots of my hairs are all white now like this fungus that’s all over my scalp is growing up the shaft of the hair now . I hope I can get some answers about this and some serious help . Thank you
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .

[VVSFrick_1314]

OP finally here ....
The last time i posted I wanted to make sure that my next post was a solution to get rid of this i was hopeful that i would of figured out a name and a treatment for this and refused to return empty handed . well That never happened and I nervously came back to read my post and let me tell you how god damn upset and horrified I am to see response after response page after page of identical stories and no name or cure just a huge question mark . I m in literal tears reading these comments and reliving the terror when this first happended and being able to feel the fear from all of you and the disbelief of this mystery disease . Im so sorry I dont have any miraculous story of a cure or it disappearing as suddenly as it started... I do have a better understanding of what this could be and how it could of happened . I dont know if my situation will be relevant but i hope you find something useful .

So when this first manifested I did nothing but research every possible skin and hair condition known to man . I read field journals of every medical fungal infection there is and parasites and rare or weird skin diseases . nothing matched with what I was dealing with . there were countless times when i thought i had it pinpointed and then BAM! It completely changed on me and manifested into something else . I literally had to dissociate from the reality of what i was witnessing my body doing because if i didn't i think i would of lost my mind . I had become 100% isolated I had lost all of my confidence and not to toot my own horn but I was a very attractive girl and now i cant even stomach to look in the mirror . my skin is disgusting and aged and covered in lesions . I have no eyebrows or eyelashes because they are covered in a thick film . I wear wigs every day because i have no hair . the hair i do have as of now is wirey dry and completely white or grey (im 30 btw) I buy 300$ human hair wigs every 3 months because whatever this is it eats holes in the lace of the wig and the hair becomes webbed together and literally has the life and color drained from it . it also seems to be able to animate the hair strands on the wig and i can watch them move around . mostly navigating towards my mouth or eyes or even a cup of whatever liquid im drinking,  its disgusting!  . I also have this film coating my actual eyeballs . inside my nasal cavity and my gums and teeth . its a nightmare and has destroyed every aspect of my life . So back to my constant web searches ... I did see one thing constantly come up and that was morgellons but I remember when this first started I only read a tad bit into it and was terrified of it and also was misinformed by the countless websites claiming it was a mental disorder not a disease . So I ignorantly avoided ever looking further into it. Till one day on a forum I saw somebody talking about the waxy film on thier skin like we all have and actually having a name for it they said it was called" biofilm" . After doing a quick google search of what was biofilm i fell down a rabbit hole and finally felt like i knew what i was dealing with finally . This did lead me to the dreadful morgellons disease but this time with actual information and not ******** . I seriously couldn't believe that this "disease" matched every symptom I had . I 100% say for certain that all of you girls are dealing with biofilm but I am not gonna say its morgellons . So biofilms are actually a colony of bacteria that resemble the slippery  pond scum you find on a rock . so biofilms are a slime mold of sorts . they can be found in the bathtub or shower curtains or the bathroom sink . they also dwell in hospitals and medical devices. So biofilm is a nightmare to get rid of because it is completely resistant against any antibiotics , can withstand extreme heat and chemicals . biofilms are protected by a shield of that waxy film we get covered in , and the bacteria thrive underneath unaffected by any treatments because of thier impenetrable shield . biofilms can also mix with other bacterias and fungus which teams up to really wreak havoc on our skin and hair . So doctors are as of now becoming educated on biofilms but not enough to know how to destroy them . Biofilms are actually found in many different diseases infecting different areas of the body . One of those diseases being lyme disease where the biofilm infects externally as well as  internally . Morgellons has also been heavily linked with lymes bacteria with 98% of morgellons suffers being positive for the lymes bacteria . Now I really found this info useful because I suffer from chronic lyme disease and have contacted lymes 3 times one time being so bad i was  hooked up to a I.V all summer with a home nurse . since having lymes my entire life i suffer from a compromised immune system like everyone else . So I think the reason that I have been inflicted with this curse of a disease is because of a beaten down immune system especially after going through a very unfortunate event in my life and being at a very low state plus with a ton of stress on me and working insane hours every day . I believe my body was open to attack from a opportunistic fungus . then not to long after came in contact with biofilm from my grandparents old shower and the combination is causing my body to go nuts in an attempt as a response from my immune system and is causing insane amount of inflammation which in turn my skin is producing an excessive amount of keratin and that mixed with the biofilm and fungus is causing crazy symptoms . I also advised that you take a blacklight and look over your skin and hair and clothes . you most likley will see fluorescent blue hairs or bluish green ones everywhere . i know its not a official wood lamp like they use to detect fungal infections but primarily bacterias and fungals glow fluorescent under blacklights so that should be a big clue to what your dealing with .

So another thing I highly recommend is to immediately join the facebook group morgellons and mold . even if you do not believe you have morgellons join anyway because this is a community of thousands of people all over with identical stories and symptoms to us . I know how isolating this issue is and how it destroys your mind and makes you feel crazy and alone and like no one knows whats wrong with you , but i promise joining this group will help tremendously with those feelings . It has also been the biggest life saver when it comes to information . I have learned so much about this and also awesome remedies to help with the insane symptoms . Like cutting sugar and processed foods from your diet can help a ton . also soaking in the tub with sea salt , baking soda and borox mixture for an hour 3 times a week will literally start melting off the buildup of biofilm . Using liquid collidal silver topically over time has been studied in labs to be the only thing effective with breaking down the biofilms shield.  Also Iodine SSKI works tremendously externally and internally to relieve the terrible skin issues and help fight it from inside as well . also one more recommendation . please look into the F.I.R.M protocol , i wont lie its very expensive but it is the number one thing recommended from suffers alike and has been known to keep symptoms away for years and  possibly all together for some ...

Im really sorry i dont have a solution for all of you like I hoped but I hope some of what I said helps you in anyway finding out what the issue is and maybe how to get on top of it . I know the shoe wont fit for everyone but if all of you have the same symptoms as I do then hopefully the info helps you the same it did for me .

Also if any of you want to reach out for any reason you can email me at ***@****

[Denato777]

Ty for info, will try the suggestions and check out FB.  

[Skinquicksand]

   I’m really sorry to hear that you’re still sinking further into this hell on Earth...not only is it hell, it’s as if nobody else has ever heard, much less experienced, this hell except for a few people on this forum and some fb groups.
   Thank you so much for the pointers on biofilm and lyme disease. I’m considering addressing it with my dermatologist next week since I set up my first appointment with her since this all began, but I’m afraid of people not taking this more seriously than a “mental illness” of ours. Either way, I want you to know that I appreciate your story and the glorious clues fo what this could be for us all. But not everyone is kind enough to listen, especially the first (and last) time I’ll ever be calling any medical emergencies in relation to this hell disease.

   Just last month I had to take an ambulance for the first time in my life because of this ****. I was driving home from my step mother’s house and was spending the might in a hotel because I couldn’t be without a shower more than every 5 hours or so because the biofilm grew so quickly. Of course the front portion of my entire scalp was buried deep beneath this film and my skin and out of sight. My boyfriend, who I was video chatting after arriving at the hote  (he knows about and is so supportive of my struggles with this mystery illness...bless his heart; we’re getting married in a couple of weeks) and he asked if I was wearing makeup because I looked so different than usual. I don’t wear makeup anymore because it makes this mold even more agitated and my skin looks bumpy and wrinkly and cracked with all of the hair and mold and lesions on my face. But it was not makeup at all, it was the biolfilm. And this was the first time the film had spread completely over my face and neck in one quick sweep. It actually made my skin look much nicer than usual, but I couldn’t appreciate looking decent for once because there was an entire helmet of this **** over all of my facial orifices. The film had gotten so bad that I couldn’t hardly move my facial muscles and when I tried to take a shower to wash it out of my hair & off my skin, the entire hotel bathroom & bedroom I was in completely filled with a a white dust which must definitely have been the biofilm / bacteria mold. So I couldn’t wash it off of me and I didn’t dare run out of the hotel room and have a bunch of strangers possibly  witness one of the lowest points / aspects of my life. My boyfriend, who knows absolutely nothing about this issue as wel, could only watch in horror and begged me to call 911.
   I was quickly being choked by this mold inside my chest from the lungs outward. And of course, my nostrils will blocked with the thick waxy biofilm and so was my mouth and throat. So I ended up giving in and called 911 for the first time in my life.
    And of course, the best looking cop, andd probably the best looking dude in this entire little town I was staying outside of my hometown city at, showed up and witnessed this episode of Hell. He was actually really kind and understanding despite my hysterical mannerisms and sounding absolutely batshit crazy describing what I had thought at the time, was a fungal infection covering my whole body (which is generally more or less one of the usual guesses in this discussion page). I know it’s TMI, but damn, this was definitely NOT a good time for the sexy cop to answer my call. This illness has also plagued every other asect of my health, social health included. It’s bad enough that I didn’t get to wear shorts for a single day this entire summer because my legs are so messed up from the scratching and picking and excessive scrubbing.
   But the paramedics  really killed my self esteem if I had any left. I just turned 22 years old, and am also a pretty attractive young lady I’d like to think. But since this whole mystery disease, my skin has turned to complete ****— nearly every inch of it— including my vagina lips. My hair hasn’t turned to complete ruins (yet) but I’m definitely starting to bald around the front of my hairline, though most of it might still just be from getting stuck under my skin all the time.
   After giving the paramedics my medical information, including my medication list, which was only a single medication at the time (Effexor, an antidepressant) he immediately stopped giving any ***** and just resorted to scoffing at me about how this is all just a side effect of my antidepressants and I just need to get them adjusted a bit.
   The female paramedic wasn’t much better at all,  and she constantly rolled her eyes at me when I was struggling to swallow the buildup of mold in my mouth to be able to answer her questions and talk at all. After I insisted on going to the hospital (no way was I going back into that hotel room before the mold at least settled a bit) she only asked one question on the ambulance ride; “Are you a methhead?”
   I am always juggling my multitude of fears including other people seeing my lesions on my skin and thinking that I’m on drugs, especially  stimulates and the sorts. This fear is so painful because I know that I would think the same thing if I saw myself from a stranger’s eyes without any additional information. And it sucks that I’ve come to look like this without ever even having tried meth before...it’s not fair!
   Anyways, I just whimpered “no..” and started to cry silently inbetween gagging and gulping on the cot for the rest of the ride. At least the salt in the tears kind of helped momentarily reduce a few streaks of it on my face.
   The doctor ended up coming in, taking a full 5-second glance at me, and diagnosed me with ezcema- unspecified.

[Lotus1101]

I've woken up to having a web being sprayed across my face. I'm starting to wonder if this web ( all insects make webs at different stages), is a big part of the problem. If it's covering the skin then the skin and hair won't get enough sunlight. Wouldn't that creat mold? And if they spray a web outside the skin and hair- I can only imagine what it's doing inside the body. I've been thinking morgellons but knew people that suffer from it are decidedly diagnosed as in need of mental help. Do of course I was in denial. But I've thought when reading about it, that just about anything could be caught up in a web. These creatures are sticky so I think that could be a possibility. I also have a friend with fibromyalgia and listening to her made me think that maybe it could be involving a parasite.
I'm actually starting to think that there's probably allot of diseases that could possibly be caused by parasites.

[Lotus1101]

Also talking about going in circles, I started out by getting stung on the head by I'm pretty sure a flying insect. When I went to the emergency room I told them it's something like a bot fly. (Well nothing involved with a bit fly has worked) I was told to use Vaseline (didn't work). Anyway I've been leaning towards miasis. Well come today I googled scree worm and came again to -" similar to catanius migraines

[The_Queen_B]

OMG me too

[Pleasehelp666777]

This is some amazing information. I have found NOTHING in 5 years of obsessively researching this (I mean 5 hours a night for years) that even remotely reflects the symptoms however you describing biofilm already rings true to everything I have been going through.
Like you (even though I refused to see it at the time) I was really quite attractive, I had a large social group of friends, I had a really fun and fulfilling life but it all came crashing down & I’ve isolated myself from everyone for 5 years, I still work because I have to, it’s bloody hard.

Thank you so much for sharing your research, its amazing work & you are helping a lot of people.

[Noelle82]

Demodex
Research all you can about them.
Anti parasite meds

[Cherieavery]

Hey
I’m a bit older than you 37 been suffering for 7years I experience absolutely everything you do i
It is covering me from my head to toe  in and outside vagina
Up nose in ears mouth eyes teeth I also experience the pressure suffocating feeling in chest
I have done the same thing went to the emergency and they just treated me like I was batshit crazy and were like this is the emergency department

[Cherieavery]

I have had blood tests and they always show high inflammation markers and low vit d
I suffer bone and muscle aches  along with everything you mention

[Mareigh]

This is 1000% Morgellons. It’s hell and I have alllllll of these identical symptoms. It feels almost electric too.. has anyone else experienced the snap crackle lol feeling and sounds that it makes as well? If I squeeze mine a particular way they SNAP Loudly over and over again..

[Pleasehelp666777]

Same thing has been happening to me for 4 years ... hair twists and knots itself up on its own - I spend at least two hours a day trying to untangle my hair, some days I make it worse & some days I manage to untangle most of it however the moment I stop, move or sleep (sleep is the worst) is springs back up into a tangled mess ... I thought i was just balding however whenever I spend hours untangling I can clearly see my hair is still all there ... feels sticky, also wax coated & all my hair gets stuck in my face ... like a flat line from the top of my head to my neck, when it flares up it disfigures my face, makes me appear wrinkled and my skin is like orange peel ... then when it’s a good day the hairs stuck in my skin comes out (which you can feel when the hair lifts off the skin) and my hair starts to untangle .. then my hair tangles itself back up & gets trapped again in my skin ... quite literally everything you have all explained is the exact same with me ... I have been to 50 doctors, dermatologists & NONE of them have been able to help. They think it’s all in my head & even though there are thousands of us suffering the EXACT SAME BIZZARE symptoms they still refuse to see we are legitimately suffering.
I have lost everyone but my closest friend ... my family don’t believe me, work doesn’t understand ... It’s so lonely suffering so much while having to convince people you are not going crazy.
My hair twists and pulls so much my head is in agony, it twists my neck, shoulders .. I feel hair and debris in every inch of my body. I just want to look like me again.
Please someone help us ... I honestly can’t go on much longer, I just wish I could make someone listen .. I just don’t want to be here anymore

[Skinquicksand]

Oh my god, you described my exact situation. I have searched the Internet for months now trying to look for any mention of regular head hair just getting sucked into facial skin. Even wjen I try to wear my hair in a bun and wrapped in a toael at home, they still end up submerged in my cheeks and everywhere. I especially have trouble with the crease behind my ears but the entire ear as well yoo. And the creases in the front of my neck and a single mole I have on the middle of my neck. There’s always hair getting wrapped around the mole and getting stuck like a hose being bunched up and hastily thrown back onto the hose stand on the side of a house.

But still, the cheeks drive me the most insane. It’s like there will be little nodules at the end of my hairs in my cheeks and appear exactly like pimples but i can immediately tell if they’re actually the end of hair strands stuck under my skin. And when i try to feel for the direction/lead of the hair strand’s originating folicule on my scalp, my family was always upset at my “picking at my acne obsesovely”
But no matter how I explain it, they can never understand that i’m not picking at acne, and I’m not picking compulsively. I can feel the strands under my skin, especially when my movements tug them from different directions under my skin.
And it feels like bugs crawling under your skin every single day, but people just brush you off as being psychotic.
*sigh* im very sorry to hear that youre suffering from the cruel reality, but I’m glad to see that my experience is not alone by this crazy confession.
If you ever find an accurate diagnosis (if they even is one) please dont mind to share the answer with me on here again! I’ll ditto

[Ts1202_]

I feel you. I started taking all my hair off. It's weird I'd shave it all off and immediately more weird hair would poke through scalp. I have it from head to toe now. Through my skin. I have blurry vision and bad headaches. I use to not go out the house without doing hair and makeup.  I had long beautiful hair...not anymore though and cant do makeup anymore either. This sucks!  Will we ever have our lives back?

[Imnotalone131022]

Exactly what I've asked myself...

[Pleasehelp666777]

OMG mines the same !! The cheeks and everything, it is so uncomfortable and the same spots flare up every time, they all feel connected and I can often see lines in my skin all connected with small red pimple type marks, I think it’s a the skin having a reaction to a foreign body (being our hair) .. behind my ears & all over the lobes are the worst. temperatures seem to flare it up a lot i have found …
I also have resorted to wearing my hair only in a bun (it’s the only way I can wear it now) no matter how tight it is as soon as I sleep they creep back .. I spent 5 years obsessively researching it to no avail, the only thing I found that helped were forums.
I also have a freckle and mole on my neck and on my cheekbone which Ives always thought is related to the issues, they always raise and seem to have hair wrapped around them & 100% same the marks on my cheekbones always were connected to the scalp hair and when I would pick I would see the whole single hair lift off my skin in the direction of the acne and line

And omg seriously the bug feeling … I paid $500 to have a pest guy come through my house because I was sure there must have been bugs hiding in the walls or something, it literally made me go mad. It’s a constant crawling feeling and I often get random nicks and marks on my arms near my wrists … and ofcourse you start talking about bugs crawling on your skin which only helps reaffirm people’s thoughts you are going crazy or they think you are on drugs !

I have recently seen a new dermatologist, I got seen by the top doctor who started the company (well respected) he gave a diagnosis of trichodynia (cutaneous dysesthesia syndrome) cutaneous being skin and the disorder gives symptoms of burning, stinging and itching which can be exacerbated with stress (makes sense given the emotional distress this causes) anyway the doctor explained to me the disorder trichodynia causes pain  to the skin, causes hair to break and fall which I believe causes reactions to the skin and pain to the skin. My hair is also stuck underneath the scalp skin causing the hairs to sit and fall in a non natural pattern which I think causes the skin to react when touched and get stuck underneath the skin because the skin is reacting and fighting. But I also think it’s a hair follicle or overaccumulation of skin problem because I have issues with my eyebrows, eyelashes & the rest of my body hair (even feels like the hair is stuck all the way through my eyes it’s crazy) my ears also flare up.

I was prescribed minoxidil (sublingual tablets) twice a day & bicalutamide (this was to help with the intercranial hypertension the hair twisting caused) once a day. Was expensive and about was about $200 for 7 weeks worth of medication. I was only on it for a month and the hypertension one helped a lot, I didn’t have the minoxidil long to know (my progress got interrupted by a family emergency) i will give you guys an update as soon as I go back (I’m currently back on the waiting list) … I hope that helps or at least gives a basis to go off ..
Also sorry by how late I’ve this message gets to you, I gave up on trying for a long time it just gets too much to keep getting nowhere as you all probably know xx

[Pleasehelp666777]

The blurry vision and massive headaches yes !!!! The bicalutamide  would help you for this.
It also affects my hearing and I’m starting to notice vertigo

[Pleasehelp666777]

The blurry vision and massive headaches yes !!!! The bicalutamide  would help you for this.
It also affects my hearing and I’m starting to notice vertigo

[Pleasehelp666777]

I used to get complimented on my hair and skin everywhere I went. My hair is nothing now, it won’t grow past my shoulders, and the only way I can wear it so it doesn’t look like a twisted mess is in a bun. My skin is also ruined, the texture and way it pulls due to the hair is just insane.
I have also refused to twist or touch my hair and skin for months, this does not help at all. It gets worse no matter how much you maintain but I refuse to start touching it again as it turned into an obsession for me.

[htxhk77]

My hair does this, too. It will coil and paste itself UPWARDS against gravity sometimes, and trap more hair underneath. I can get it loose, but it seems to “react” and re-coil itself as soon as possible.

[Vshines]

Please has anyone figured this out?! This is the first thread I've even found that is related and exactly like my symptoms

[Julietteg6]

September,2023 J. Goodrich in C.T. OMG! The last
few posts have described me exactly! I have been going through hell the last few years with this crazy thing as well. Doctors think' I'm crazy and try to commit me and my head hurts constantly from my hair pulling so tightly and being stuck under my scalp. Sometimes I even think I'm crazy but I know this is real. Hopefully, someday someone will believe us and figure out what is going on. The weirdest thing is when I look in the mirror at my skin I can see it changing and moving right before my eyes. Does this happen to anyone else?

[Wonder7]

Curious is this site just a forum or are there actually medical doctors reading these ,sitting back like were some weird experiment? It's called WebMD! Maybe someone empathic, knowledgeable doctor would find a cure and help milio s from this suffering. I do not think it morgellons because I do not pull threads out more like I am a sticky fly strip and all th crap in the air lint and dust velcro to my scalp and skin. Inflammation decrease and increase with excessive sebum and keratin oils layering up over time causing creasing which residue hardened and feel like a binding sensation. I do believe sugar and processed food is a huge part of it. I take no medications and I am deficient in vitamins D ,potassium and glucose levels are off. Hydration electrolytes are key. I bought a woodslamp and found pink coral dots on every follicle.

[Jbailey81]

Hi also I am going through this!! I’m 40 years old and I’ve been dealing with this for probably a year and a half I’d say when the pandemic even began. It started for me when my hair started to look like it was shaved on the sides. And then on the back of my scalp. So I started scrubbing my hair really good thinking maybe I had ingrown hair or something growing over my scalp here. And then I realized it went around my armpits this weird stretchy sticky kind of hair like substance and went down around my toes. From my backside. I started breaking in sores and I noticed black pointy hairs. And that my hair was basically retracting into a weird pattern on top of my head. I also had long thick hair that went past my shoulders. It was to the point where my ankles were swollen and my fingers get swollen and I lose feeling on one side of my arm. Until I stretch whatever this crap is on my skin around and get feeling back. I try not to be in the bathroom for hours sometimes because my family gets upset but it is so hard not to try to make my skin comfortable and not to feel like I am gross. I can relate to finding broken hair in Lynn and fuzz under these layers.  Also it goes around my eyes around my ears into my fingers like the nail bed. Also I feel like it goes up my nose and down into my gumline. I have seen Dermatologist who wouldn’t give me a chance when I went in there in tears crying and crying . My doctor referred me to my therapist who is trying to diagnose me with the some sort of delusional problem. But the thing is when you look at it sometimes it looks like a long black hair that is trapped under my skin and goes over my skin and under my skin around my neck.  My mother has seen it and my boyfriend has seen it. And I have been told the same thing leave it alone don’t touch don’t pick don’t pull. But again when I leave it alone and think oh maybe it will just go away don’t touch it still there and it wraps around my toes and fingers sometimes so bad that it swells up like sausages. I understand everybody’s stories on here because I relate to every single one of them. And I hate to say it but if it wasn’t for my family I probably would’ve lost it by now and would’ve admitted myself to a mental health facility. It aggravates my every day living I cannot live my days to the fullest like I want to. And I also deal with this and I also deal with anxiety depression I have ADHD also I have back problems that are extremely bad and I have nerve pain everywhere.  I hope someday somebody can take this seriously and figure out even if it is a mental thing or a physical thing and treats it and gives a lot of us some relief. That’s all I want is relief I’ve already come to the fact that I’m probably stuck with whatever this is the rest of my life.  Thank you for reading this I’m glad there are people out there who can relate

[Lotus1101]

I believe you about it wrapping around you. I know that people that deal with livestock have felt with this, so why we are having such a difficult time being helped I just don't get. But maybe you can find out where your local cattleman and farmers get help. I've spoken to people at the local feed store and gotten some helpful suggestions. But I think I'm going to go back and see if they can recommend a doctor

[Wearenotalone]

I can relate to everyone here. I've been trying to deal with it for at least a year. One of my inlaws is a dermatologist and she told me everything was normal and to stop touching it and that I probably have ocd and trichotilomania which is a hair pulling disorder. This upset me because I knew I wasn't pulling out my hair. But apparently it also means picking. I went to a different dermatologist who diagnosed me with trichoptilosis and neurodermatitis. He prescribed Doxepin Hydrochloride capsules to be taken before bed to help calm the nerves, and a topical ointment called Duobrii (halobetasol propionate and tazarotene) Lotion, which helps with itching and irritation and also contains vitamin A which almost immediately helped with calming and smoothing out those "short hairs" that shoot up and have every crazy type of split end which just makes everything worse. What I have found out and have had confirmed by a dermatologist is that it starts with any kind of trauma to the scalp. Maybe I scratched it too hard or picked at some little bump and this trauma caused my body (or at least the scalp) to produce more keratin, which is that clear film that grows over the hair and hardens like that Magic Shell ice cream topping, but much harder! (Apparently turtle's shells are made of keratin, so yeah, it is incredibly hard but also smooth). This over reactive keratin response is what causes all this crazy stuff to happen on the scalp and then starts spreading. Around my ears, into my face, even my eyelids! This is not a delusion. The hair is there, and I think that's where most doctors make the problem worse by not taking the time to actually validate that what the patient feels and sees is actually happening. They seem to skip over that or maybe even say outright that it's a psychological problem, and tell us to just stop touching it. We then go away feeling more isolated and trapped and like we have to keep trying to figure this out on our own. So we keep trying to free the hair that is trapped and it is very hard to stop because sometimes it gives you relief. But it always ends up coming back and the cycle goes on and on. Even though I know now that touching it and picking at it is only helping the problem continue, it is very hard not to get sucked back into that cycle because as soon as you scratch your head or anything like that, you get a little relief, and a lot more itching and irritation and it just feels counterintuitive to stop trying to fix it and to live in turmoil and discomfort. This is the hardest part that I am trying to navigate. I will say that when I have stopped touching it for a day, it stops bothering me and I can tell that it is healing and softening and my scalp is no longer in that traumatized, protective keratin producing mode. After about a day and a half it almost feels like part of the healing process is itchiness, and this is where I haven't been able to get past this point and start over again. It is psychological torture. I feel ashamed for not being able to leave it alone even though I know I am not helping it. Staying busy during the day helps, but it has become such a habit at night, especially since laying down and having those prickly hairs poking back in from being smashed is itchy and irritating. I can immediately feel the keratin go into protective mode which causes more irritation and discomfort. I am going to keep trying and not get too upset with myself when I get sucked back into the cycle. It's very addicting. Think of it like trying to quit smoking. I think we all need a support group.

[ThroughChrist777]

Here’s a weird question...do you get extremely bad armpit odor when you’re messing with your hair (I don’t pick but I’m constantly messing with my scalp trying to untwist some mysterious tangle)...when I mess with my scalp too much I get this body odor armpit smell that smells like cat pee...I don’t do drugs and I don’t have a cat...it reminds me of the book of Isaiah when he talks about the daughters of Zion - sores on their scalp, baldness, and a putrid smell...I think were living through some weird times guys...

[Pleasehelp666777]

That’s insane .. mines the same from the scalp, eyes, eyes brows, gum line, backside and toes - all feels connected EVERYWHERE. I am so glad to see this comment !!!!

[Pleasehelp666777]

In the nostrils, sides of my nose, even on top tine of lips

[Dwagner74]

It is all connected!  I take epsom salt baths and hair comes out of my skin all the time while I soak.  One day 2 long pieces came out from my back that were at least 3 feet long and the hair was like looped together. I’m 4 years in and it seems the more the hair is coming out and unraveling, the more painful it’s becoming, pulling so incredibly hard everywhere!!  It is coming undone though and I recommend trying to soak in epsom salt baths.  It seems to help the hair come out.

[Dwagner74]

After my baths I use tea tree oil, it seems to help break down that weird film that seems to coat the skin, I think the body is producing it to try to protect the skin from the irritation of the twisted hair. Then I use jojoba oil and on the bad scabby and calloused areas I use Vaseline to try to soften everything up so the hair can come out.  Not a cure but seems to be helping.

[Pleasehelp666777]

I used to do the exact same thing, full the tub with Epsom salts, with the tree oil, peroxide, I was even so desperate I used bleach once but yes Epsom salts seems to help but only very slightly.

[Pleasehelp666777]

I 100% agree I think the skin is reacting to a foreign body and trying to fight against it giving us all these bizarre symptoms

[Dwagner74]

I’m sure that that it’s the hair from our head that for some reason has twisted itself extremely tightly around the head and into the skin.  It has to be something that has affected the hair follicles because hair can’t just self animate.  I really think it is a fungal infection down in the follicle that caused this twisting.  I convinced one doctor to give me some anti fungal medication that I took for 2 months and for me that’s when it seemed to stop getting tighter but then the hair  was just stuck in this crazy tangled and twisted situation and now is having to work it’s self out.  I just know that the more you try to untwist and mess with it, the more it hurts.  Like if you get one spot looser it just ends up tighter somewhere else.  

[KBS456]

It’s hair, a huge, like long overgrowth the waxy aspect is the buildup of dirt oils. Your head probably had a VERY tight spiral of hair, look for “holes” these are the center of the spiral, many of these hairs like the black line you mention are extremely thin, that line you mention- it’s probably 100 +/-

[Labtechs66]

I have the same white waxy scalp with it feeling like a helmet.  I also get a white waxy grainy substance that sheets down my face , hairline to jaw.  It leaves white this build up over my eyebrows, my top lip, corners of my mouth and if there is any break in my skin on my face, it will leak out of it.  The substand feels like a mix of wax and baking soda and is bright white.  

I’ve been search for an answer and all I’ve found is it must be tested properly with a deep biopsy of the scalp that must contain the entire hair follicle.  Also check your eyebrows and see if there is redness or tiny little pustules.

I you have any other symptoms?  Mental cloudiness, night sweats, blurry or double vision, loos of facial or body hair, hair texture gritty and loss of color, feeling of floating, dizziness, stuffy nose, sinusitis, thick while or clear discharge from sinuses, diarrhea and or constipation , itchy or painful scalp, spots in your mouth, white area on your tongue, cravings of sweets, surgery items,  or alcohol?

[Hairgirl32]

I do! I have the same exact thing! Guys this is ruining my life! It started a year ago! Omg I am tearing up, this has been such a lonely and devastating situation for me! I feel crazy! I’m jealous you guys had doctors look at it! Mine prescribed me psych meds! Huge slap in the face! Please help!

[Macattack22]

They tried to prescribe pimozide for me too, treats Tourette’s and delusions.  I told the doctor I’m not taking something to alter my brain that side effect can possible cause me tardic  disconeesea(sp). Anyway I’ve had it now for 2 years and I’m also at a loss bcuz we are not taken seriously!   I told them this is real I’m not imagining it and he says well “sensations are real” ugh!  So dermatologist are not willing to entertain anything other than what they can see.  I’ve showed the pictures of the red sore spots many times and the most I can do is try and stop infections by using the doxycycline he prescribed in the past.

[Lotus1101]

The American dermatology association had a small blip regarding parasite- the rest is all about dillusional parasitosis. In other words they just say you're crazy. There are MANY of us. Maybe we ALL should be contacting these groups like the CDC etc and let them know that this is real. I've had a dermatologist tell me to come back when I stop doing meth!

[Imnotalone131022]

I will follow that movement, if others would get it started. Please contact the CDC. I've suffered since 2017. Feels like forever. Same symptoms more or less, same treatment from doctors and worse spouse and family... No support! No relief!

[Issabissh_87]

I think you have white piedra on scalp and a yeast infection on skin

[Issabissh_87]

Sounds like candidiasis

[SundayStewart]

My email address is ***@****
Unlike everyone on here, this was done to me on purpose, the person even sent me clues as to what exactly he poisoned me with!!!I have all the symptoms that all of you have, including pain in all my joints loss of vision and the feeling that I'm dying it all started with my hair tangling up then falling out I'm bald now. My skin is rapidly aging beauty is gone. Deadly black fungus from a tree frog and the legs and wings of a tiger moth he put in my water and thru my a/c vent. This happened in 2018. So look into deadly black fungus. I will share the pics I was sent if anyone is interested email me. Thanks Sunday

[KBS456]

It’s a lifelong  buildup of hair. The waxy feeling is dirt, oil. Sebum etc. etc.  clinging to it. Try Nair on one of the spots where it is thin. Remember the Nair need oxygen to work so stir it around a bit. DO MOT ISE IT IN YOUR ENTIRE BODY! This hair is networked everywhere it can pull on your neck causing panic and hopefully not worse. Once some of the tention is relived it will start moving around. Get help, work from top down so it doesn’t pull upwards.

[Mareigh]

Yes! Extreme fatigue, nausea, night sweats, hot flashes and chills. Headaches, major joint pain.. it’s exhausting. My dog has all the same symptoms that I can see.

[Denato777]

Have used everything from Apple cider to peroxide and in between for a year now. Have recently been putting povidone  iodine 10% on my scalp.  Just my own experience, it seems to help for the first time. I have a post here too. I believe there are many similar posts to mine w some additional problems.  I believe Morgellions is real and also fungus infections of the skin that spread to scalp.  I definitely know I have problems from fly strike in Texas.  I have also waxy film on scalp plus noticed hard string like shapes too last few months.  Yes this also seems to have spread to my ears especially behind my ear. This acts like fungus to me, spreading this way. I’ve been on Ivermectin to several lice  and dandruff shampoo, w not much help, alcohol and peroxide too.   The povidone Iodine now for a week, 2 time a day spot treatment. Some relief and seems help symptoms for me.  

[Lotus1101]

I was just reading that tobacco made into a paste may help. I know awhile ago I made a tea from tobacco and rinsed my hair. It seemed like it did something that whatever this is, didn't like. I'm going to try it again. I thought of using it before because my grandson got a bee sting and I used tobacco. It's an old remedy and it draws the stinger out. So I'll try again

[Imnotalone131022]

Did the tobacco leave a stronger ordor?

[Lotus1101]

No probably because I rinsed the hair out well. I haven't used it in awhile but I'm going to try again. Lately I've been soaking eyewash on my scalp and it's helping allot because it's got boric acid

[Lotus1101]

Bayer school of medicine in Texas has a parasitology department.

[Lotus1101]

I think mine is filarial worms in the lymph nodes of the neck - and basically anywhere else there's lymph nodes. I can feel this by sprinkling baking soda in the hair and rub a bit to the scalp.then spray apple cider vinegar..it will fizz and loosen this some. Be prepared with Neem oil in case it gets tight again, but you only need a little. I'm learning that many parasites need to be taken care of early, and ivermectin should be used with other medications .

[Trainwreck94]

I've been dealing with this all year.  I've consulted 2 internal med docs and 2 Dermatologists. I not only have the hair trapped under the sticky rubbery substance, much of the rest of my hair is stuck to my head but can be pulled up.  I also have a white lacy coating on my scalp as well as red sore spots and some hardened white crusts..  In addition, I have super-weird things happen, like waxy bumps form and I can cut them open and a bunch of hair will come out, my hair will be weaved into a checkerboard pattern over my head superfast, or braided. If I mess with it, it pulls really tight.  This happened during the first 4-6 months, not so much now.  It feels like and looks like my scalp isn't my sctual scalp.  I've felt at least 3 different surfaces, none of which are my actual scalp as I've had holes in my "scalp" where I can pull a bunch of hair thru it (sometimes feeling it being pulled back under).  There's also been a pattern of circles of hair with a plastic-like coating (like a plastic 6-pk pop can holder) that adheres to my head; and plastic like bars that criss-cross thru the center of my crown all the way down and across my head as well as a a piece that feels like a steak bone but all of these are made from hair, including the different layers of "scalp". The problem is the only way to know any of this is to actually touch it. You can't just look at it and determine what is going on.  I question whether there's a parasite under there though docs don't seem to think so.
    The 1st Dr said to use lice treatment just in case and prescribed a topical steroid for inflammation and ketaconazole shampoo.  Next I went to my PCP who said Alopecia but referred me to a dermatologist.  While waiting for the 1st derm appt I bought a scalp detox shampoo.  First dermatologist looked thru a lighted magnifier and said hair loss from trichotillomania but prescribed ketaconazole shampoo, antibiotic ointment and a different topical steroid both to be used 1x/day 5 days a week.  At this point the majority of my scalp was a gummy substance that I couldn't remove.  The first day of using her Rxs and my detox shampoo, the gummy scalp went away.  However, NOT the stuff covering my hair at the crown and center hairline.  
  The 2nd derm just looked without anything and said Alopecia.  Neither Dr would touch the spots to feel that it was different nor look at pictures that even slightly showed some of the weird things.  This Dr prescribed 6 weeks of an oral antibiotic and antifungal, plus ketaconazole everyday, and a different topical antibiotic as well as topical steroid both 2x daily.  It has been about a week since I saw him and it appears to be helping. I can start to feel the hair under the substance on the crown and can pull it out though it tends to go back.  
  I have tried Apple Cider Vinegar earlier in the year as well as different essential oils.  I am going try Lemon juice/water to see if that gets rid of this.
    I'm hoping that whatever this is, all these meds take care of it. I'm tired of obsessing over getting my hair out from under and being bald.  It would be nice if doctors actually LISTENED to us.I get it, there's a pandemic but they act like they're afraid to learn anything new, or touch a person or look under a microscope. God forbid they take a SAMPLE !
  Sorry for the long post but wanted to share my experience and weird symptoms.
  If this treatment doesn't work, I'm going to a Hair Clinic.

[VVSFrick_1314]

Thank you so much for your response it is honestly relieving in a way to not be the only one in this situation. Finding anything on the internet is impossible I’ve tried every keyword and never could find so much as a name to this horrible condition. I was starting to feel scared cause I thought I was alone .

I made that post in May when it first started and now going into November I am still dealing with this mess . Between that time though my scalp and hair have gone through very weird changes through the months some almost seem impossible.

When I first got this I only had 3 small oval shaped bald spots but the next 4 months the spots got bigger and bigger and this waxy film was layering on top of the spots and my hairline and forehead . I would even witness this waxy substance cover my scalp and then spread into my face and then entire body .  Usually if I took a hot shower or sweating or having anxiety would cause an outbreak . It would start with round white patches all over my skin then my scalp would go rock hard and the hair on my head would lay flat down against my scalp . Some of it disappearing under the waxy spots on my scalp . It also would cover more and more of my face until my eyebrows and eyelashes were completely covered and my hair along my hairline just gone the patches of acne covered . I could feel the heaviness of this waxy stuff around my eyes and cheeks my entire body was covered and I no longer had any body hair . Also any makeup I was wearing would be covered up as well . If I had a loose strand of hair fall on my skin right before, the wax would layer over my skin then the strand of hair would almost appear like a deep scar because the wax would layer over the strand of hair and would cause it to leave strange marks almost like deep indentations . The more layers of this stuff the worst my skin looked my face looked horrible I had huge deep almost burn like scars all along my cheeks all because of the long strands of hair on both sides of ears being completely covered and causing it to look horrible.

I also had the weird waxy bumps on top of my head that when rubbed with tweezers hair just pops out .

So after 4 months and using every antifungal,  medicated even parasite related products the only one that slightly worked was ketaconazole which dried my scalp up . After 4 months I started noticing a random pattern  . Out of nowhere I would feel insanely itchy for like 5 minutes and then it was gone . Then I would have the annoying sensation of a loose hair on my leg but on closer examination I noticed my whole body had random loose hairs , lint , and there would be a musty odor with this and  the waxy layers that built up over months starting to disappear and every time a layer would vanish it would uncover more things stuck under my skin even old makeup on my face was popping through. It took monthsss to loose almost all the layers I finally have body hair again and the weird thing is when I lost the finale layers my arm hair and pubic hair where growing flat and linked together like a fence because of the waxy layers sitting on top of my skin my body hair could only grow flat and pressed together so that was very odd to see .

Anyway now I no longer have the waxy soft spots on my scalp but I have small white scales all over my scalp and all my hair is in a cross stitch pattern pin to my scalp just like you mentioned I can feel layers and layers of hair my hair almost feels like it was felted together in one giant web . I also noticed the hair under all the layers is completely white now and feels brittle . Also when I use the flat end of the tweezers and rub back and fourth along my hair line a bunch of strands of hair will sprout out like a plant from my skin it’s so weird .

I’ve also tried so many times to brush out my hair cause the annoying part of this all is everyone thinks I lost my hair or I’m going bald mind you I just turned 30 but I know for fact I never lost a strand I have all my hair it’s just twisted together so tight in weird directions all over my head and I have managed to brush a large amount of hair out and had my hair down past my chest only for it to all of a sudden snap and twist up so fast and tight I looked like I had huge shaved spots again . No matter what the hair just twist back up and looks as though I have none and that part is extremely frustrating because no one understands that and thinks I have some hair lost problems.

I’m sorry for the long message as well it’s just so relieving to talk to someone who knows what I’m going through I haven’t left the house since May because of this it’s ruined my self confidence and is making me insane I can easily spend 12 hours straight in the mirror obsessing over this and even developed ocd because if it . I just hope we both can get rid of this for good for are sanity .

[Trainwreck94]

I agree. It is nice to just have someone to talk to about it that understands what you're going through.  It's a very lonely situation to be in because of the weird things that happen that only you can feel.  All I get is "it's an infection" or "stop pulling your hair out" without so much as a skin scraping or having them look closely at the spots with rubbery stuff where it can clearly be seen there's hair trapped under it.
I have these (what feels like) protective waxy bumps all over my head with striations from hair and with two tiny holes in each (almost like air holes). I can rub them away (they disintegrate) but they come right back and there's so many, it's impossible to get rid of all of them. Sometimes they go away on their own, but they come back and it feels like there's a cast on my head. I get a burning feeling too-like they excrete some protective substance. I also get the ones you're talking about where there's hair inside.  
I don't have it all over like you do. I can't imagine that.   So far I only have it on my head, but it feels like whatever is in there, has crawled into the back of my neck. It aches. I don't have skin symptoms as it seems they like the hair.
  I too obsess over it...especially when it feels like all my hair has been wound up and pulled in tight. I have to take a fine tooth comb to loosen it and get it back out.  Otherwise it leaves very little hair. I'm blonde and have always had very fine hair as it is. Whatever this is, it leaves a brown residue on the surface and on my hair that seems to go on to the comb.  
  Thank you so much for responding. Please keep in touch w your progress be it new symptoms or solutions.  I'll do the same. It seems we as consumers have to help each other as it doesn't look like the medical community has any answers on this one!

[Lmb06090622]

Hello. I’ve been in the same boat as you guys! This started almost 2 years ago and no one seems to want to help me or figure out! My family thinks I’m crazy and I’ve been fired from two jobs over the past two years. My husband just thinks I’m lazy and don’t want to help around the house. But whenever I touch something it seems to be damaged. If I try to fold clothes, they end up with strings hanging off of them and my floors have “wet, oily looking spots” on them, tile in the kitchen, bathrooms and even our hardwood floor. Our carpet has black spots on it that appear to be damp at times. We have a guy coming into check for mold next week. If we don’t have mold in our house, I don’t have a clue what to do anymore… I’m so glad to find out that there are others going through this, although I would never wish this on anyone, even my worst enemy.

[Trainwreck94]

So, an update... I'm 5 weeks into the antibiotics, antifungal and topical steroids. I return to the 2nd derm on Monday. I'm sure he's going to fuss at me because there are red spots and suggest I'm picking at my skin. Those are spots where I believe whatever this are attached and are irritating the skin with some of those protective wax bumps. (Guessing).
Anyway, I FINALLY got rid of the majority of the last rubbery spot covering hair (I can feel hair there now!). But when using my phone  camera or usb cam, I can still see hair buried under some of the film so I'm not totally there but it's progress. What I have been doing is using a mixture of about 2 oz lemon juice to 6 oz water in a squirt bottle and applying it with the ketaconazole shampoo, massaging it in and letting it sit for ~5 min and rinse.  I do that daily.  I also decided to go back to the Apple Cider Vinegar/water in a squirt bottle (same ratio as lemon juice). I use that at random, applied to wet or dry hair. It can burn sometimes which is why I set the ratio 1:3 ACV:Water (you could increase it if you want).   It soothes the scalp, helps w/ stickiness especially after pulling embedded hair out, and hair dryness. Can also use it as a clarifier and it seems to help soften hair and work on the small white scales you mentioned. I have that on parts of my scalp still.  I probably should leave it in for 30 minutes before rinsing it out but the whole process takes so long as it is, I don't have the time.  I also use Pantene DAMAGE DETOX SCALP CARE Shampoo ($2.99 @ Ollies) after the other stuff when I have time (leave in for 10 min).. It really makes your hair and scalp feel so much better.  I'm still struggling with the embedded hairs, waxy stuff, the hardening, and the weird soft waxlike banding underneath that also has hair inside and puffs up when I "make it mad" lol. I have been able to bust thru the top of these bands that crisscross but the bottom of it is "glued" and I haven't figured out how to get that off.  So,  continue to obsess 12-18 hrs/day and hope one of us comes across a miracle cure or a Dr that listens!

[denadevo]

Hi guys.  I am having the same exact problems.  My hair is making "sand" which has now formed a concrete helmet for my head.  Feels like there are staples inbedded in the hair, but when I pull them out they disintegrate.  Hair magicly forms a razor thin waxy coat to cover little fluff pillows and if you can get to the fluff pillows they transform into sand.  My family does not believe me so I have stopped communicating about this with them.  The back of my neck aches and I can sleep for 10-12 hours a night.  This all started when my scalp started oozing liquid sebum.  I was poking holes in the sebum and trying to sqeeze it out.  I now have some cuts on my head which were just confirmed for mrsa today.  Also I had a yeast infection; I think it has something to do with yeast.  I am praying this is not Morgellons Disease.  I just put in a leave of absence at work because I am so stressed out.  Other symptoms are depression and post menopausal stuff like hot flashes.  Also I don't eat well and live on diet coke, coffee and puff bars.  Oh and no appetite.  The pounds are coming off of me.  Someone suggested clove oil to me... I will try it and post the results.  Take care, Dena :-(

[Trainwreck94]

Hi denaevo. Do you feel like those "staples" are being shot into your head?  I had that early on and it was quite painful. Some would dissolve and others were like a crust stuck in my head. Along with that my hair would be woven into a net so fast and if I tried to undo it, it would be pulled tighter, also horribly painful. I've never experienced anything like this in my entire life.

[RACHELLYNN1984]

So everything that you described fits my problem to a T and I believe it started about 4 years ago, its like whatever this stick, waxy, hair crap is, I felt it start and for about 2-3 monthsI was in a constant 24/7 state of terror because I thought bugs/worms were crawling under my skin. Before the crawling feeling started, one night I was popping a pimple on my cheek and I saw a clump of these nasty little hairs start to pop out but then went back in very quickly so I indeed thought it was a little white worm.  After a while the crawling feeling subsided, and up until recently I thought it was just a period if time that I was going through a mental break. But now for the past 3 months the lint stuff you mentioned along with the wax, and very sticky white stuff has been coming out of my skin and I dont know if this makes sense or not but it looks exactly like what I could have been feeling. It even feels like its inside of me, I have the feeling of hair in my throat and feels like my esophagus  is clogged up with it. When I'm able to get it up, i spit in a water bottle because it just doesn't feel right and I've wanted to see what it is and its is that linty, hairy sticky stuff. Sometimes its so bad that I have to use a flashlight and my tweezer to pull it out of my throat. These hairs are on my eyelids, going down into my eyes,, in my ears, and everywhere else you can think of. Sometimes I feel like my body is being smothered In the thick web like hairs you mentioned. Its so bazaar and so miserable, especially being ive been totally alone with it as everybody thinks im crazy and hallucinating all this. You mentioned air pockets, and that is absolutely what they are. I told my derm that its like little tunnels are running through my skin and she looked at me like I was bat **** crazy. The other night I was picking these nasty little hairs out and it brought me to a spot on the corner of my hair line and it was like a candle. I was able to dig my tweezers down into it and it went all the way to the middle of my forehead so I was digging the **** out, and the next day it didn't look cut up or anything. I have this crap from head to toe, in my finger and toenails, whatever it is, it blocks my nails from growing so I've been getting a lot of ingrown nails. I have no eyebrows because they ended up getting pulled out as I was pulling what I thought were ingrown hairs out. Its been a while now that ive had my face destroyed, but I figured out by looking very closely at these strange circle patterns, and after you pluck a couple of the hairs, just keep following the pattern as more will pop out as you keep plucking and after a while more and more will come out and if that nasty waxy stuff starts use a toner with salicylic acid which devolves it, and almost turns it into these weird hairs. Ive stopped using the expensive meaningful beauty face wash and went back to good ole noxzema, followed by salicylic acid toner then Neutrogena rapid wrinkle repair lotion which has collagen in it and that all on its own has been a god send. Once or twice a week i do the Aztec clay healing mask. It hasn't gone away but it's drastically improved. Even though my face is still a mess from fresh scars and whatnot,, I feel like my face is starting to look healthy and soft again.  I've given up talking to people about it because they look at me with disgust, its very lonely, I spend the majority of my time in the mirror, I hate it so much, I cant even sit and enjoy doing my make up because anytime I even lightly touch my face, I have to go and the tweezers because the touch made stuff start coming out.  I have OCD because of it, I feel like whatever this is has come out and is all over the house, as I see that damn strange pattern in everything now. Im scared and so worried its going to my organs because of the way I feel. The other night I was frantically searching the internet and I finally came across an auto immune thing called systematic scleroderma and localized scleroderma, and it effects both skin and body, the pictures i saw looked exactly like everything we all have described. It gave me a little bit of relief but I won't be 100%   relieved until I get a diagnosis. The other thing I came across years ago was morgellons but that is so controversial on whether its a real physical problem or a mental problem, but reading people descriptions, it fits. I realize I'm commenting on an old post and hope everybody has found some relief

[RACHELLYNN1984]

I forgot to add that I also have these clumps of nasty little sharp hairs. Just touching them makes me cringe and when I pull them out it bleeds so bad, but after I get them out, the spot looks better

[RACHELLYNN1984]

I forgot to add that I also have these clumps of nasty little sharp hairs. Just touching them makes me cringe and when I pull them out it bleeds so bad, but after I get them out, the spot looks better

[RACHELLYNN1984]

it has totally consumed my life, I was fired from my job because I was late everyday from try to get my skin to look somewhat presentable, and after I finally made it into work I was extremely distracted. I cant enjoy time with my kids because I cant get out of the mirror, when I try to distract myself I get itchy, or feel hairs coming out and im right back to the mirror, these weird flowy almost spiderweb like hairs are all over my clothes, bed, car EVERYWHERE. Im constantly washing my hands, wiping stuff down and disinfecting everything just for it all to return. I am so exhausted from it all, I have constant anxiety, when I have to go out to a store I keep a beanie on so nobody sees my tore up eyebrowless face. My kids let me talk to them about it but I think they're even getting tired of hearing me talk about it, and seeing me in the mirror destroying myself. I am constantly trying to think of different things from my past that could have caused this and some of it makes sense, but I feel like I'm really grasping at straws majority of the time, ive even used blue dawn as body wash and shampoo as its a decreased lol. Im at a loss, I've already made 3 different posts in the same thread about itwithin the last 20 minutes and im not even certain anyone will read it because it's an old post, but this is the first thing I've ever come across thats identical to my issue,, its somewhat relieving that im not alone or crazy, but at the same time I wouldn't wish this crap on anybody.

[Buffy_3]

OMG-- I am having the exact same problem however mine start on my eyebrows and has covered my whole face and is on my scalp by not to the level it is on my face and back, They are treating it as a folliculitis and stated that the "excretions" from the bacteria are what caused the wax however I have only been on doxycycline for 4 days and and starting tacrolimus ointment tonight. I do not feel this is what I have. Do y'all have areas that are so hard that they are literally like pulling a dang fingernail out of the thick waxy skin? And I had some attach to the tips of my ears that I could NOT pull off. I feel as if I am wearing a mask and get claustrophobic feeling sometimes - I HATE THIS. It really went crazy when I cam e down with COVID about a month ago. Did you ever find anything that worked well on it?

[KNottahypocontreeaddict]

Oh my God I can't believe that somebody else has the same thing going on. It's the most insane thing that's ever happened in my life did the doctors the same thing they give me topical treatment I wanted every different kind of shampoo off the Internet freaky thing is it's a problem called sebum I actually saw it like my scalp morph into what look like skin after I remove this stuff it was like a horror movie where did skin just I covered my head Hey can take it off but you can't see it is invisible. I tried to explain it to people and they think I lost my mind. Well if I lost my mind at least I know I got company. all these doctors have an answer. Nothing works it's just morphs into different problems. Demodex mites.
Did anybody try a parasite treatment? I read a comment on a blog had the person said that the treatment for parasites worked for those little bitty pieces of stone that you find on your scalp. It's now coming up on a year this probably is not solved! If I'm not nuts from this after dealing with it for a year I will be soon. If you guys find a solution please let me know.

[M1m1_k]

I had very similar problems on my arms and legs.  There were pimples from possible folliculitis, dough Ali gator skin, the the hairs got involved.  Whole sections would disappear as I watched.  The long long fine hairs would cross cross my skin like cobwebs.  The dark hairs made what I called train tracks and then the crop circles.   Pimples got infected, I started seeing bugs that were like hairs swimming under my skin.  The whole time I was trying to get into my Dr and finally started begging for a video appointment.  After more than a month I got into my doctor…with no skin samples taken I was at sent to psych under form 1 and after talking with admitting Dr at hospital was under a form 45 to psych ward for 72 hours minimum but could have been indefinite.  I had no phone, no friends could be called, my emergency contact was not called…it was impossible.  Nursing staff wouldn’t help, they laughed at me as I was under form and so on.  I couldn’t believe I was in Canada.  I did get out after the 72 hours,  although  problem still exists and no way am I telling anyone.  The bugs are gone as I now know they were never there.  But a medication can help with that, I think the mess of my admittance to hospital was the cure.  Regardless who knows how to fix this over the counter.  I’m using head and shoulders all over my body and UriSec 22% on tough legs.  
If a hair from my head lands on my arm or leg it is sucked right into the skin and the other hairs bind it down.  I get the braided effect too  and it all distorts my skin and feels constricting.  I tried to burn some to stop the growths of hair coming from the pimples.  I couldn’t keep up and I was sure the hairs it was sending out were spreading the sores.  
I did have chills and sweats, constant sugar cravings, vertigo, very low blood pressure where I couldn’t stand up at times.  Vision problems…

[Lotus1101]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809994/
This is what I thought I had but everything I read said it was only in Africa and south America. Well now there's cases in the US. I think it's strange that apparently it skipped the south.
These nematodes according to the article, can get in the spine. I've been waking up to a stiff neck and now my back also. This is something recent. I've been suffering for five years from this when I was bit by a flying insect.
I think the hair gets shorter and longer because they are coiled and it seems if I lightly tug it lets out some of my hair. Then especially in cold, it coils up again.
I was prescribed ivermectin once for three days and it seemed to stun them because they didn't move. But exactly at the end of the prescription- I felt like Medusa. I can't get the doctor to prescribe more though. I guess she thinks it should kill it with just one prescription

[Imnotalone131022]

Exactly how I feel..

[Theens]

How did you use the ketaconazole? What was your routine? When I apply it my hair either immediately separates it and it ends up in a clump in my shower cap. If I don’t wear a cap it just runs off and ends up all over the floor. I’ll keep trying if it worked for you, mine says to use once every two weeks. How often did you use it?

[KBS456]

The “air holes” are the center of huge, extremely tight spirals of hair. Once you cut into it they will be able to be shaved with. Trimmer, when you think it is all off you will realize there is an other layer (because it’s so tight. GO SLOW it (literally) all started at the spirals (holes) on your head. Nair will be helpful and enlightening, remember all of the pressure this is under has made it do pressure will create/release with every hair cut.
It’s just a decades old tangle. It’s skin colored because of how tight it became, dirt, oils product and dead skin cells. Once you remove all the hair on the head, remember as you go down they get extremely thin when you are at the end you probably have more to do, work slowly. Just do your head, everything else will slowly resolve.

[Dwagner74]

So are you all better from this now??  I have cut mine super short but still have the long tight twisted hair around my head and it constantly is moving and hurts so bad!  I can feel long hairs just hanging off my back and the back of my neck is so tight and my face and ears are in agony.  A lot has come out of the rest of my body but it still goes down my back and around my chest and stomach between my legs, everywhere  really.  It gets so tight around my head and neck that I feel like I can’t possibly take it anymore.

[envy6454]

Morgellons and u have morgellons and u have it.. And u and u and yep u too. It gets better. Read and listen. Follow. Leave it alone. It acts alive if u mess with it

[ThroughChrist777]

This…I am starting to believe this! How long do I not mess with it before it gets better? I’m actually so over all of it that I am ready to not mess with it if that makes sense? The more I pull the worse it gets…so like…what if I stop pulling and picking haha.

[Lotus1101]

I think the more you mess with this, the more of this film it will create. Just my opinion but I think it feels threatened and creates the"film". This could be possibly like say a paste it makes out of our skin and it's"saliva"? Or I believe it may be able to create keratin like we do. That would help it practically disappear or mix with or skin and scalp.
I haven't found anything to get rid of it but to me it gets sticky after a bit. That's how it sticks to our scalp. I find that Pond's cold cream works at that point.
I had used sulphur shampoo but it seems to dry out the skin. But I think it helped them because it seemed to make a really really tough shell they use for armor.

[Theens]

Yes, I’ve noticed the same thing myself. Any petroleum based product seems to be used against me. Oils, Vaseline etc form a coating like… fried chicken is the only way I can describe it. It’s as if it’s not soaking in, but adding a very uncomfortable layer to the film. To others it looks like it’s soaked in though, which is one of the most frustrating things about this. No one believes it exists because they can’t see it. Well, I can’t see if a person has a bad liver either but that doesn’t mean they’re imagining the symptoms they’re experiencing.

[Dddwww123]

Anyone see any improvements with aloe Vera

[Issabissh_87]

I think you have white piedra on scalp and sounds like a yeast infection on skin

[KBS456]

The film is hair, VERY VERY fine hair (like cilia) you can see it though. I y is from an extremely tight overgrowth of hair which seems to have quite literally become my outer layer of skin, check, feel exam your scalp, it will probably be “waxy,” remember as soon as you remove/shave away a piece it will move bind in others. This can be terrifying, ***@****
Let’s talk about it

I have most of the answers to the how/what of the matter, fixing it has been horrendous, every time I think I’ve got it figured out there is some other hell attached to it, the “hell” makes sense afterwards. If this seems psychological it is because certainly started to be highly upsetting/anxiety producing, it’s not psychosis
though sometimes I wish it was…

[Flumdogmillionaire]

So Im 27 F , & I have been dealing with this problem for almost a year. I actually went through an entire pregnancy while it progressively got worse.. my doctor used to pull me aside to ask if I was using drugs while pregnant, and I had never been so embarrassed and mortified. But I couldn’t blame her for asking, I looked awful! Waxy skin from head to toe that only seemed to get thicker after every shower. Red ulcerated lesions covered my arms, legs, and even my belly.  Peroxide, apple vinegar, tea tree oil.. I tried them all!

And then my son was born and immediately we noticed that he had some white patches in his mouth. Asking the nurse of it, she says it was oral thrush (yeast infection of the mouth.)

I went home and thought nothing of it until a couple months later, we bought a humidifier to help the baby breathe.  After a few days,  my son’s whole body began to break out in red bumps and sticky skin. My own rash got even worse to where I looked like I had gotten extremely sunburnt everywhere.  my boyfriend wrote it off as regular allergies, but I knew better. I began searching my home for whatever my sons skin was reacting to, and then I discovered mold scattered around here and there.

Immediately we all went to the doctors and I asked if it was possible that both our rashes were related. TMI, but He asked me if tended to have frequent yeast infections. Which I had had several through out my pregnancy..

He said that with pregnancy, my immune system was compromised, thus making me prone to any infections, especially fungal. And with mold in my home, it would’ve only amplified my infection by causing a yeast overgrowth covering my entire body. My son being born with yeast, as well as breastfeeding with constant skin contact,  when we used that humidifier, it only applied our infections by creating moisture in the air. Systemic candidiasis.

I was given 1 dose of oral fluconozole. I bought a couple boxes of “Monistat: Vaginal Yeast Infection cream” and applied it after bathing to both of our entire bodies. His son cleared up in just hours. My own was a bit tougher to crack, so I also began taking daily AZO Yeast Plus tablets. After a week, my skin has calmed down tremendously. My hair looks slightly fuller, and still using apple cider in the shower, I now can feel the thick coating falling off my skin when I rinse. I’m almost hopeful that in a couple weeks, I might be my old self again.

Just thinking how most of us are women, and Yeast is far more common with us then men. Having fungus in your home, could very well make a fungal infection more severe. Hope this helps someone!!  

[VioletHeaven]

I've been experiencing scalp and body itching with most of the same symptoms. I keep my hair short and still have a hard time combing out tangles that never existed until sometime near the end of 2020. It started with a case of athlete's foot symptoms that I struggled to get rid of since 2018 or so. Within a few months or so I started getting sticky patches of dark colored wax spots that would stick to my feet. and inner soles of shoes. It didn't hurt but wasn't sure what it was exactly. Had a raised crusty area in the scalp near forehead that started getting short hairs. My dog, come to find out, had itchy bald patches with strange black course corkscrew like hairs coming out. I didn't know what to think and husband told me they were part of some plant debris outside. My cat had it too along with a bald patch on his neck that almost got infected. I couldn't afford 2 new vet bills at the time so tried a few different shampoos,one for cats and one for dogs, and mashed it into their scalps using a silicone brush. Sulphur seems to work well for this along with an acid that can take the top layers of dead skin cells off. 3-4 times a week, I bathed them at first. Husband argued that it was mange and not a fungal infection. The symptoms are so similar, even the vet couldn't tell but put them on antiparasite meds. Woods lamp light test couldn't see enough  to make a call, I guess. The shampoos were working, she said . I started using the antiparasitic/antifungal dog shampoo by Veterinary Formula. Salicylic acid, sulphur and coal tar together helped the itching a lot, especially when using my own silicone scalp brush. Dries my hair out though.Brushing or combing your hair out before washing is helpful as well.  I do it over the bathtub to prevent dreading anything and disinfect areas where hair has been in contact Mine got so bad that my ears, nose and eyelashes were also effected.  I used Tiger Balm with a q-tip lightly above lash line to soothe and kills pathogens. Worked great.
After a lot of trial and error solutions, Borax is a must have for laundry and carpet steam cleaning. At least half a cup in either with hot water/highest heat dry, soak mode cycle for 20 min+ in wash.This and vinegar work better than anything on fungi or molds. Used it to clean the strange cobweb things off the walls and ceilings too. Colloidal silver and probiotics for internal parasites and immune health. Silver works better than any of these antifungal meds but be sure to choose a quality product like Sovereign Silver . I spray it on my scalp before applying tea tree and castor or coconut  as carriers for my dry hair. meningitis.  Silver cI can't use much silver on my dog because it interfere with his thyroid medication.

[Denato777]

Sounds similar to my condition.  Fly strike from large black fly, loud buzzing noise.  Dealing w this and cannot get help from Dr’s.  Would not even known this fly was in my hair if not found next day in my towel, after washing my hair.  Dealing w this on my own, no help from physician’s. Even ER would not check my scalp, stayed across the room and this is unbelievable.  

[Imnotalone131022]

ER here helped me like I was delusional. That it was all in my head

[Spacecrazy0023]

I found out that my dermatologist (2nd, sent there by the 1st to "get a second opinion") diagnosed me with:

1. Delusional parasitosis,
2.Somatoform disorder (psychosomatic)

Covered her bases alright. Imaginary, and if not, still subconsciously my own making. Wtf? And, a derm RN qualified to diagnose psych now? Silly.

Meanwhile, almost 2 years, and nothing. Just getting progressively worse!!

[Lotus1101]

Just went to an internist today and she tried to give me something to slow my heartbeat! There's nothing wrong with my heart. They're really quick to give psych meds for something they can't see, but when my hair is practically glued to my scalp andy neck is swollen on one side - they can't see anything therefore they can't prescribe any treatment. This is the same doctor that originally gave me ivermectin for a few days. I told her I think it started to work so maybe we need to keep treating. So she gave me doxycycline which did nothing. I'm trying to get a referral to a parasitologist in Texas at Bayer School of Medicine, they have a parasitology wing. Apparently an internist can't do a referral for this type of doctor. Makes no sense to me

[Imnotalone131022]

I've suffered now since 2016

[htxhk77]

Hi, all.

This is the first place online I’ve found anything resembling what’s going on with me.

It started for my in my lady-bits area, with little folds of skin on the exterior that seemed to get “stitched” together with what I assumed at the time was hair. It progressed to flattening down the body hair and covering it in some places, or getting it all snarled up under the surface of something that felt like rubbery skin but wasn’t my skin. Sometimes hairs would grow through my skin trying to get out, though. Then it deformed and glued together some anatomy inside the labia and grew a rubbery film over my leg creases that trapped hair there.

Other places on my body would get a film-like patch that was textured oddly, or strands of kind of gummy film. It could be peeled off to relieve itching, which works for a while and then it would come back.

It finally got on my head, where it is the most reactive and aggressive. I’m bald in some spots now. My dermatologist thinks I’m pulling my own hair out. I’m not!  I get hair stuck under “skin” (?) on the back of my neck, my cheeks and forehead, the corners of my eyes, behind my ears, IN my ears… in some places I can nick a fingernail under and peel a hair out. In others (the big bald spots) the hair really seems to all be gone, and a lot of the follicles too.

How many of you are still dealing with this? I feel like we need some way of keeping in touch better so we can talk about what works/doesn’t and share information. Maybe a Facebook group, idk. What do you think?

[Dwagner74]

I’m so sorry you are having to deal with this awful affliction.  I’m 4 years in and even though mine is seemingly reversing and coming out, it is excruciating and slow going.  No doctors have helped and all think I’m doing this to myself somehow.  You can private message your email on here if you want to talk more about it.

[MK_ulcered]

Wish I could have answered you sooner.  The following video explains the infection and describes a protocol to alleviate and even cure the condition.  Listen carefully and take notes, nobody is going to help you fix this but yourself so be diligent.  "2017 The End of Electronic Harassment Symptoms" on youtube by channel "lookoutfacharlie."  

[ThroughChrist777]

Has anyone had any luck with this issue? You all have described everything I am going through for the past year and a half. It’s devastating. I’ve resorted to head wraps and am saving up for a high quality wig.

I was reading through this thread last night and it honestly put me in such a foul mood. To read that everyone else suffering with this weird issue received nothing but mockery from the medical community breaks my heart (it honestly feels like there is a spiritual aspect to it at times, like I’m under attack. I have definitely become Christian through out this whole ordeal). I stopped going to the doctor, because every time I went they didn’t even look at my scalp, they just prescribed me antidepressants and anti anxiety medication. I have felt suicidal with how much this mystery disease has disfigured me. I used to be beautiful and now I have this weird mullet hairdo. Anyways, I have found the salycilic acid works a bit, but high strength salycilic acid. The 2% or 3% found in shampoos and toners don’t do the job. I started buying, believe it or not, wort remover, it has 17% salycilic acid. I put coconut oil on my scalp (which is hard because my scalp is covered by the same kind of “net” you all talk about) I let the oil sit for 30 minutes, then I apply the wort remover and let it sit for 10. I will have this white sheet like papery substance fall from my scalp. I comb out what I can then I wash the rest off with warm water. Has it fixed my problem? No, but it is removing something. I’m sure it’s terrible for my hair, but at this point I don’t really care, I just want this crap off my scalp. I am willing to do anything honestly, I feel trapped and consumed by this mystery disease. Oh I also found the heat helps a bit, I will sometimes run a flat iron through my hair close to the root and it causes the wax to melt, but, per usual, it doesn’t get rid of it.

[Imnotalone131022]

I discovered heat as well! I fire lighters let them get hot, then I press on scalp where I feel strong tension on my scalp. The burn actually feels good to me.
That can't be good. Right?

[Theens]

I don’t even feel the heat from lighters, water etc. I keep waiting for a burn but nothing so far. Sometimes when I’m not “webbed” tightly, I do feel the heat so I have to always be aware of that day’s progression.  But my feet feel strangely…magnetic, or staticky I’m not aiew how to describe it.

[Theens]

I’m not sure* how to describe it. Sorry about the typo.

[Lotus1101]

Try soaking your scalp with eyewash, it's got boric acid. It's helping me allot..

[Dwagner74]

Is the eye wash soak making the hair loosen?

[Lotus1101]

Yes. First I soak my scalp with eyewash and let it dry a bit. Then run my fingers through in an upward direction..then sprinkle diatrametheus earth in at all angles and run the fingers through again. It's not an overnight cure but it seems to help me allot

[Hmmmamanda]

Wow, we need to talk. I don’t know that you’ll receive this message even, as maybe it’s cleared up by now… but I AM GOING THROUGH THIS AND NO ONE KNOWS WHAT IS HAPPENING. I’m on Month 10 of this dreadful experience that’s manifested itself in so many other strange isn’t even the word ways… I’d  like to give you my email if you get this. Take care

[Lotus1101]

I've been suffering for five years with this. I don't see where anyone has said how they think this started. Mine started one evening walking my dog who wanted to check out a tree in the yard of the new duplex we had just moved to. I noticed quite a few dragon flies and didn't think much of that but something BIG flew towards me and started to what felt like drilling on my head. I ran into the house and started itching but I felt like I was getting hit by sparks all over falling from my head. My boyfriend only saw a small bump.
I learned that the people who lived on the other side of the duplex had two dogs and a cat and they all regularly spent time near the tree at a fire pit. And when they would leave raccoons would hang out there.

I kept feeling the"sparks" and when showering it felt like they were bouncing off the walls and right back to me. I found diatramethious earth and sprinkled it on my bed and hair but I was sooo exhausted I could have slept through anything.

I went to the doctor and was laughed at. The doctor did do a biopsy but said it was only my hair. (Seemed like they made the biopsy more painful than necessary).  Went to the emergency room and was told to put Vaseline on it- already tried that! Went to a dermatologist my mom's doctor recommended. She "inspected' from a distance. After making me get undressed, she told me- "come back when you stop doing meth' ! I've never done drugs in my life.

I finally got a doctor that rx ivermectin and doxycycline- for three days. It seemed to help- until day three. The moment the meds wore off, I felt like Medusa! I hadn't felt anything wiggle until then.  Well I couldn't get the doctor to prescribe more. So here I am.

I've done research and think the hair and scalp are suffering from "piedra". I think these things are making a paste out of my skin and using that for covering.

I went to a trichologist who saw nothing. But- if I go again I will tell her to get the hair wet. That's how I discovered that all my hair is still there. I have a swimming pool I get in every day because I get overheated easily- feeling like I am wearing a wool hat. The water loosens it and I can untangle my hair. But as soon as I stop my hair goes right back. At the start of this um.. adventure my hair was waist length. Now it's above my ears and hurts all the time. It's like having your ponytail waaay to tight.

I've been using apple cider vinegar and diatramethious earth and ponds cold cream helps but it's getting worse.
I read where a woman was going through the same thing and she said she did all the same stuff. Then one day she woke up and it was gone. I'm really hoping for the same outcome but I don't think so soon. I've been waking up nauseous- and I absolutely know it's not that sort of morning sickness. I've also been waking up more exhausted than when I went to bed. I have purple marks on my legs that look like something under the skin stitched itself up nicely under my skin. I feel like I have needles or skinny toothpicks under my skin that snap when I move. My boyfriend did pull what looks like hooks from my scalp. But taking anything you might find to show a doctor is pointless. They tried to send me to a psychiatrist but I insisted that isn't the problem. I have marks all over my shoulders and arms that are either dark spots or lighter than my skin spots- or lines or c shaped with lines.

Now I'm having stomach pains very sharp. I suspect they are in my gallbladder and moving on. I woke up last week feeling like I am wearing heavy droopy sox and the brains are bulging. But other places on my legs feel the same- the places where there are purple lines+ pairs of lines that curve at the ends.

I've been waking up lately with a super stiff neck and feel like these are hanging in my glands. Today I noticed one side seems like it got empty because it curves in now instead of bulging out like it has been.
I want to see a doctor especially with the pain in my stomach but I don't want to have my gallbladder removed- when removing parasites would do the trick much better.
Oh and I've developed a strange cough
Why doctors ignore the possibility that we can get parasites, is just unbelievable. I'm in Florida. Seems they only have parasitologists- for crops! Like no people can get this?!
Any suggestions or help would be greatly appreciated

[Lotus1101]

I saw where someone suggested noxema. It definitely just made mine worse. I've used with the apple cider vinegar when not using tea tree oil so I thought it might work. Also because I've been using ponds original cold cream. I woke up with what felt like my hair shorter. So today I'm trying they shampoo. Feeling like a n experiment

[Imnotalone131022]

Right!

[Newlifeash18]

I am experiencing these symptoms right now as well!. I have these black waxy hard strands on my scalp...my hairline looked like it was shaved off...my hair is twisting up in this weird pattern. When I come my hair...it snaps back down like elastic...I have also discovered this thin film coming my skin. Whenever I get the film off, hair is found underneath it. It is all on my face and when I rub what I thought where acne scars, turns out to be hair from my scalp on my face. I am freaking out and nobody believes me!

[Ts1202_]

I believe you! Same thing here. 4 yrs now.

[Imnotalone131022]

Me too!

[Sassystacie]

Oh i belive.  I've been having same issues for 2 years. Had 3 ft long hair.  Had beautiful blue eyes with long eyelashes had good skin my hair I shaved off bald a year later I finally have some hair that has the same crud in it as when I cut it off my skin appears to have a film of some sort that's sticky will not come off I don't care what cleaner you use I've tried every trick in the book I've done culture I've done apple cider vinegar Green Tree medicated shampoo you name it I've done it all nothing cheers it I have been flagged as a crazy I have lost friends I have been accused of being a druggie when the whole time I have been very sick I spent hours a day just trying to get my hair out from my scalp it just keeps growing over it and then if you get it out it's so wet it'll never dry it doesn't absorb water I've been to two dermatologists for five doctors been thrown out of ER thousands and thousands of dollars later no diagnosis I even had a scout biopsy said it was consistent with dermatitis I have no red scally patches. Fungal testing was done with the biopsy I'm not sure wh. I have requested for blood test or or scrapings to see if there's a yeast in what strain and how to treat it I don't know why but they won't do the testing my eyes ooze white liquid out of them it's very painful it builds up pressure behind my eyes half the time I can't see. I do believe it is a biofilm of some fungi I too also have a swimming pool that got very bath water warm which would allow for anything to grow I'm also water haul I live out in the desert I need to see about testing the water that I have to haul to the home I hope we find a cure people I have gone downhill so fast in 2 years I don't look anything like I used to look I look terrible I feel terrible people criticize it make you feel even more terrible I can so relate may God help us

[Newlifeash18]

So I don't know how safe it is...but I finally just said F it. I shaved my head  completely bald and I washed my hair with the fish tank cleaner and algae growth stuff and it has worked wonders. My hair is growing back thicker and faster than it ever has! My skin is glowing and I feel like as if I have gotten my life back! I truly feel beautiful again. All after a 10$ fix at Walmart.

[pmcfarland4]

Greetings Fellow Sufferer,

I realize that it’s been over here since you posted disinformation and I’m not sure if you’ve already been able to treat it but it’s not, I received some amazing information from a very intelligent educated individual and I’m going to share the treatment options that was you it with me. This is by No means, to be considered a sure fire cure, since everyone is different & I am by no means a professional doctor or specialist.

Yes it’s just what I’ve done so far and have experience finishing in the affects my condition. I’m going to link a few things BELOW and you can do with it what you want with this information, I really hope that this works for you, as well for you as it has for me.

Reference 1:
https://www.amazon.com/hz/wishlist/ls/8CD09G5T49U9?ref_=wl_share

Reference 2:
https://health-matrix.net/2011/03/15/dmso-the-real-miracle-solution/

Reference 3:
https://organicbiomama.com/dmso-safety-handling-recipes

[Bballgirl25]

Do you have some directions how to use?

[Spacecrazy0023]

I've tried Albendazole (parasite stuff), but it doesn't seem to make too much of a difference.   I got Dermarest Psoriasis, that seems to work better than anything else. Also a combo of rosemary, lavender, oregano and jojoba oil. Neem oil is great in general, as is triphala. Turmeric mixed with jojoba or coconut oils.
I was also prescribed doxycycline and some steroid, but would rather not use the steroid due to side effects.
As for scleroderma, that's a possibility, but not my issue, as I was tested for it earlier this year (different medical issue, though now I'm convinced it's all related).
Yes, the docs treating me like I'm nuts definitely sucks...

[Lotus1101]

I'm thinking it's a t least one worm/nematode that's coiled and may be sticky so it's taking our hair with it. I've heard that they gmo"d nematodes which may explain why there's no getting rid of it. I also think I'm getting sick as a reaction to the parasite. I spray apple cider vinegar at night and let it dry a bit then sprinkle diatramethious earth. My hair seems to be in one big swirl around my head but it seems to be slowly coming undone. My hair was down my back but now it's above my ears

[Ts1202_]

I thought the same as you in the beginning  ..a nematode but no...I have done every test and they show nothing. It took me until this year to figure out that this is a beetle insect. There is no test for it and these beetles use mimicry to hide themselves..its their defense mechanism. I also believe there is a black mold along with it and it has a connection to morgellons.  I take activated charcoal. I also use bentonite clay on my skin to pull this crap out. Oh and Epsom salt baths. But I think it will continue to start over and over in our body until the adult beetles are dead. The infective larvae stage I think is the hardest...

[Imnotalone131022]

I have scratched and dug into my scalp for hours, and a couple times I had a single dead oval dark brown buggy  Looked the size of a ric grain but with legs

[Theens]

I have seen these bugs as well, quite frequently now actually. Vinegar, while being helpful in moving the cells away from an area, also seems to bring these bugs to the surface. I can’t stomach seeing one of them pop out anymore so I try to avoid vinegar unless absolutely necessary. But I do use a spray of ACV and filtered water on my glasses. If I don’t use it my glasses fall off and hair is twisted all over the arms. But the worst part is that it’s as if the arms are a path for it to travel with. I developed deep creases from my ears to my eyes and on my nose where my glasses sit I now have an internal opening for the hair. My nose, which was perfectly fine before this, looks like it’s been broken 10 times and never treated by a “dr.” I can’t blow my nose even though it’s  constantly f red inning it dripping. I I can feel a rubbery strip from the corner if my mouth to my nose thst nothing will penetrate. Honestly, after all the experiences I’ve had with drs concerning this, it probably wouldn’t help to see one if I did break my nose in reality. They don’t examine anything and I wonder how many people walk around with lice or conditions like it because a dermatologist decided from 10 feet away that because they couldn’t see anything then nothing existed.

[Theens]

Also, I don’t know if anyone else notices this but my phone gets covered in skin flakes and various other disgusting things when I use it. I  was replacing phones every six months or so until I finally realized it was blocking areas of it. I have a brand new phone in its box because it won’t enter the number I tap for the passcode. It just brings up a different number or doesn’t redd add pins at all. After carefully experimenting with it, I now coat my glove with peroxide or vinegar and that keeps any areas of contact free of this crap. If I set my phone on a paper towel (which I don’t advise using paper anymore than absolutely necessary) sprayed with peroxide or vinegar it all rises to the top where I wipe it with a screen cleaner. I always get the extra warranty but with the amount of “accidents” ranging from an obstructed port needing replacement to it “slipping” out of my hand I’m afraid I will probably be rejected soon from further coverage.

I believe my condition is quite advanced at this point and to be perfectly honest I’m just counting the days now because I just want to be at peace. It will come to time that showering is one if the most painful events of the day. And least productive. I dread it because I know what I will be going through. The pain of adjusting to the excruciating pain of dry skin and the various infections everywhere when I am done is a torture I think about all day. Once the film has adjusted and is hardened that particular pain is gone but it’s replaced with terrible burning all over. And just like that, magically all of the sores and areas of  infection disappear.  

That’s why everyone thinks I’m crazy, they can’t see anything. And I lost all credibility when I first became aware of this. I was so confused and they all got tired of looking at something I was “imagining” because they couldn’t see it. I am an atheist but I do wonder at times if I’m in a hell created by the universe. Maybe I won’t ever escape this.

[Lotus1101]

Beatles can carry filarial worms that carry the bacteria causing Lyme or a form of Lyme disease

[LivefromHell]

Have you tried a shampoo with Ketoconizole?  It works a lot better than coal tar shampoo for fungal infections.  But in all honesty, you really need to see a doctor because from the symptoms you describe you will need a oral antifungal as well as topical treatment.  Medication has to be determined by the type of fungus you have and that requires sample testing. You will feel a lot less anxious about what you are going through once you start taking action through a medical professional.  Trust me, you will just drive yourself batty trying to manage this on your own.  

[Labtechs66]

I have had the exact same thing with addition of my facial skin will turn to extreme orange peel like texture and then the white, grainy, waxy sun stand sheets down my face from scalp descending to my chin.  Afterward there are blister along my forehead hairline filled with the same substance.  The same for my eyebrows and any are on my face that had open skin.  The substance build up around the corners of my mouth, above my eyebrow on the bones ridge and my lips.

I feel awful and antibiotics don’t treat as they only treat the secondary infection.  I’m mentally cloudy, poor memory, night sweats,  feeling of floating, intestinal bloating and gas, headache, blurry vision, double vision, scalp infections, skin infections, waxy skin, white waxy skin on ears, scabs have one to two hole around them which furry substance grows out.  

[Allgone1]

Okay everyone after 30 plus years of having this cb web on my scalp and face . Waxy substance on face and scalp and oily skin, pimples you name it . And more also 5 biopsies on scalp , told I need psych help and blah blah blah! I found out how to help u all out. I was on fluconizola 1 x for 6 weeks and I bought cold pressed pure neem oil . I’m finally feeling I almost like I got my life back. I shaved my head for years. Wore wigs, I’ll feel whole if my hair comes back in and eye brows and lashes . But I no longer have that cob web feeling anymore . That hard layer of skin on top of our real skin anymore. I truly believe it’s a form of black mold on us. The neem oil I just used a little bit on my scalp for three days straight and on my face diluted with water not much the tiny hairs come off after about third day on face and scalp after I was on the fluconazole for a month . Took long time to get the neem oil in mail. But I’m so glad I got it. Be careful please. I still use it on myself and sprayed it in my home by bed and outside as well. I also put a little in my dogs shampoo My dogs skin is now pink like it should be not a brown red color now . Please be careful with your dog only use it on dogs not cats etc... and very very little is needed. I put about a teaspoon in their shampoo. Thank god for all of you guys . I was first one who posted something in about hairs coming off skin so many years ago little by little I heard from you all w same symptoms . . You all kept me going . Cuz I really felt alone for many years. Have a great day. P.s. I got my fluconazole through doc on internet. Just told them I’m itching all over and oily skin and hair falling out. Didn’t mention the white hairs . Told them I’ve been exposed to black mold 4 times which is true and I cleaned the first one  I found on our porch w brush and bare hands  before I found out that was a big no no! After that is when I got the feelings on crawling and like a wet feel of wet hair running down my legs. And first two times I used the med I itches like crazy first 3  times I took it for 2 days after. You might too.

[EGuidance]

I'll try been oil. I'm having exact same situation. It's been 8 months now. Repeated er visits. 4 dermatologist appointments. Not a single culture or biopsy. Told I need psych help. Have developed ocd traits. Very distressing.

[Dmazz]

Hi, thank you so much for sharing.
How many mg of fluconazole?

[Imnotalone131022]

Want my freedom and hair back. Feels strange, like I've been taken over by things...

Been to many years

[Issabissh_87]

I believe you were suffering with white piedra of scalp and candidiasis on your skin

[harsh2000]

you are not crazy
Alkalized hair is the cause
Use acidic shampoo
Wash your hair and use conditioner everyday
use hair vinegar

[pmcfarland4]

…..It’s been over a year since you posted this and I’m hoping that you’ve already heard it but if you’re still battling with it, I think I might have the answer to your question so what’s going on with you!

[envy6454]

Is it morgellons

[Imnotalone131022]

What's the answer?

[Catladyyy]

I can't believe I found this. I have googled so many things so many times and never come across this. I feel so much better just after reading this knowing I'm not alone and not CRAZY.
I have been experiencing everything everyone else here has for about 18 months now. It started with my scalp, then my neck, face, then my entire body.
It has taken over my life, I have no life anymore. It's all I think about 24 hours a day because it is so uncomfortable.
We really should start a support group. I know it would help me so much.

[75752577]

Several years ago I noticed my scalp felt like it was way "too tight": like the old fashioned rubber swimming caps.  It has the same white waxy film allover it
Over the years it has gotten much worse..the " bugs", bacteria. fungus or whatever..camps on my hairline and come out,especially at night & invade all the skin on my body It is also in my eyebrows. It also manifest as a strange film over my eyes. And painful subacious gland swelling( especially in my ears.
The hot humid weather exacerbates the problem.
I have.jumped.out of bed and scratched my hair like a crazy woman.  lately I do the same with my body. My cat appears to have similar symptoms. we both have changes in our hair texture.  Bites have  became a bigger part of this. Always very allergic to bugs.this has gotten so neither my cat can relax.before a sharp pain attracts one of us . Sleeping is difficult..It feels as though these "things" like to feed from my eyes ,nose, & mouth(mainly for water?)
Maybe this is a combo of bacteria.bugs, or some fungus?
I have had plumbing leaks..the dampness is difficult to totally get rid of.  I clean out springjacks. Silverfish. Some creepy wet moths.  I clean constantly until I drop from pain and/or exhaustion.
My immune system has been weak since I was a child.  I do all types of both "natural" , & OTC.& Rx.  Meds.
My brother put me in a psych unit for almost a month for those symptom several years ago..  I think being out of my infested house helped. But no thing else they did. Most everyone thinks it is "all in my head" But it is also so much in my poor body
Thanks for listening.  As I am sure you understand.  I could keep rattling on. . but I am grateful to have found this community.  Any help would be appreciated.  I live in SE Iowa....It is winter, so am stuck indoors which is hard for me & kitty.  God Bless You All.  I will pray for you.

[Lotus1101]

Bugs love mold and some love cats and other mammals. There's a few things it could be but probably the best thing you can do is strengthen your immune system. Have you taken the cat to the vet? They're usually better equiped to diagnose something in a cat than the doctors are with humans. There's Information available on Facebook with groups of people suffering from morgellens. Also there was a site called ************ with lots of information but I'm not sure it's up still. I do believe that the sooner it gets treated the better chance of success.

[KBS456]

**** This is a bit all over the place, tired not in the mood to edit, the content is all there, everything you need to know is here, experiment/feel free to PM me! I want to help!! ****



Note (this isn’t about or not about Morgellons it works its way in there but more just for the sake of conversation. Maybe I have it but it turns out what it is is a “syndrome,“ brought on by what I explained. below. Just a way to get give something a name, what’s needed is the missing piece, an overgrowth/spiral of hair seems to be the missing link to the symptoms/ body loaded with word keratin/collagen activity.





Problem solved!!!!  It’s hair! The major clue was it’s reaction to Nair!

The “Morgellons,“ fibers came flying right out of my skin. when I applied the Nair! I don’t know that everybody else but if The lesions/fibers etc. react to depilatory and your head is overgrown, it isn’t Morgellons, it would mean Morgellons is a bunch of bored housewives who just didn’t know what to think. I’m not saying it exists or if it doesn’t, I just know that I have all of the symptoms and what I explained below is what happened. If you know anything about engineering etc. or just basic science you can look online at some of the women’s experiments with the Morgellons hairs and you will see what the skeptics are saying. Then again the people who are making some of the videos and talking about it may not actually have Morgellons, it’s just something. Watch all of the stuff reacts to depilatory, make sure of include oxygen (moving around) and had a tiny bit of water. It doesn’t say to do that in the instructions but you got a mess of a little bit.




Unfortunately I am not a believer in more jealous, not in my case. If it reacts to NAIR (Or other depulatoratory, I like the Nair “face”  formula the best)  it is hair and byproducts collagen stomach breaking down and just growing and everything over the years. I gave her a message I didn’t say I have excellent hygiene and I don’t even have a beer, I am cocaine cut,“ I did have my hair in a ponytail and used pomade etc. but I was like 20 something, I think it locked down then and the pomade kept it down while it tightened up my regular hair continue to grow right through it.


Not “mostly,” “oo%,” “pretty much,” or “virtually,” solved… It’s fully solved.  Mind you, there are residual effects incl. trauma of all most of then  stuff you guys have listed- included is a 72 hour “voluntary” hold at a psyche hospital because of my “delusion”/”psychosis” involving a “scalp under my scalp,” (it was hyperbole not literal) I made the mistake in thinking that someone (most people)  at the ER would have done idea about what I was complaining about- I honestly forgot what initially brought me the their.


It is HAIR!


. The way it reacted to Nair! was the giveaway. I’m a pilot and have a background in engineering- this was the biggest mystery of my entire life,



, it will take a few weeks/ month+, you want to work slow, and prevent irritation.
It’s ALL hair. Start with NAIR, it needs oxygen so make sure to Rob it in/use your nails a bit to reallly get it in there. The hair is a big SWIRL 10,20, 30+ year old swirl, MINE covered my whole body that’s the “slime” people are taking about. Your hair is oily after a week, a decade, lifetime will yield “waxy” (to say the least) yes you have been washing but you haven’t paid attention to the giant swirl that has/is continuing to twist on your head. For me it has been, overall, the most maddening, frustrating and  simply life ruining/pausing evehts of my entire 45 years.  


people who describe the “holes,” on the scalp, that is the center of the swirl. Nair, a bunch of high quality disposable razors, a high quality electric razor (with the screen not rotary, a VERY high quality WHAL/Andis brand buzzer. Start from the outside (margins) and work in. Around the ears, even onto the ear. Go way way outside the edge of your hairlines, like two inches.
Use the high quality  “trimmer” abd grab a “buzzer” as well. The thing that finally worked for me was when I used the guides (start with the size #1, this way it doesn’t have to bite into it, you want the sharp/powerful buzzer to just be skimming the surface. However for the first cut just start from the front’ abd use the trimmer Rob bites into it, once you make a goood cut into it you with start to feel, the first of many, releases of tension yiu didn’t know was there.




It’s probably all over your body, don’t start low. Down on  your body, if you cut into the “slime” (hair) on (for guys) your chest, it will get pulled up, perhaps around your neck (I felt pressure on the side of my neck, oh yeah that’s how I wound up in the ER, I thought I was getting strangled, it (the hair) settled/balanced out, felt pressure on my carotid artery so I freaked out. I figured it was better to save my life… A little bit of pressure around your neck can be pretty damn scary.

Oh by the way if you’re having some dental issues, look into this.


Look up “hair tourniquet,” and relation to
dental issues.  


The damn thing wrapped around one of my teeth, I didn’t have a receding gum line, I had hair pulling, that’s just one of the many “highlights,” if you have suddenly started having some dental issues maybe even kind of symmetrical looking cuts into your teeth look into

[KBS456]

INLRTANT.
OH BY THE WAY,,, the hairs are mostly INVISABLE, nothing “magic” just really long “Vellus” hairs. Maybe THAT is the secret to what “Morgelens” is, really long hairs that shoul be “peach fuzz,” again with a good tweezer the will slide, you feel it you just wonder, “where the heck did it go?”  Whose you shouldn’t/can’t “shave” with depilatory, you will need to move them around, tell me your method, I still have some more left. You obviously need to shave, your head and keep it that way, I want to grow my hair back.
I said I had the cure/answer, still not done though. Oh, I have Cortizone cream, I got it so irritated that I wound up on prednisone for a bit. Get some prescription Cortizone cream he will wind up screwing up and irritating things. I’ll share with an air, when it crisps,” up, shake it was the razor with the screen (electric) again tell me your method. We will beat this. The question is why does your body produce these tiny little hairs?

I’m pretty sure that all of the hair that got into the spiral eventually just had the follicles get out (fortunately not all the way) these tiny little “Vellus,“ hairs as opposed to “terminal,“ which other ones you can see.


Uggggh! Hey, at least we know what it is now!




fully transparent and REALLY thin. Nair or something that works well for you “magic” brand as well. They are so tiny that when they get the slightest bit compacted down they congegele and feel like rubber/wax,


You can “feel” them by using (get a bunch h high quality (“Tweezerman” brand) teeezers. You can SLIDE them but you can’t pluck them. Absolutely ideal would be to pull them onto a piece of paper

[KBS456]

DISCLAIMER: I AM NOT A DOCTOR. I HOLD NO CERTIFICATIONS FOR COSMETOLOGY NOR HAVE I WORKED IN THAT FIELD. THIS INFORMATION IS NOT INTENDED TO TREAT, CURE OR DIAGNOSE ANY DISEASE. I’M NOT RESPONSIBLE FOR ANYTHING THAT MAY HAPPEN AS A R  LOLESULT OF TAKING TAKE MY ADVICE AS CONING FROM “JUST SOME GUY” TALKING ABOUT ANECDOTAL EVIDENCE.


THIS INFORMATION HAS BEEN COMPILED BY MYSELF OVER THE COURSE OF ROUGHLY 6 MONTHS. I’M NOT GOING TO BE DESCRIBING MY SYMPTOMS,AND EXPERIANCED THEY ARE YOURS.

NEVERTHELESS HERE IS A “HIGHLIGHT” OF MY EXPERIENCE- THIS WILL CERTAINLY LET YOU KNOW I’M PART OF THE “CLUB.”

AS I WAS FIGURING EVERYTHING OUT/TRIAL & ERROR I WAS BRIEFLY HOUSED IN NYC’S FAMOUS BELVUE PSYCHIATRIC HOSPITAL. I HAD COME IN WITH CHEST TIGHTNESS


WITH MY NEVK BEING SCRAPED UP FROM A RAZOR AND “RAMBLING” ABOUT “HAIR UNDER MY SCALP.  I WAS “VOLUNTARILY” (TO PREVENT INVOLUNTARY i.e. COERCION AND INTIMIDATION)   (COMMITTED FOR BEING “PSYCHOTIC. I MADE A STUPID BUT PURPOSELY NON THREATENING COMMENT.”

(Caps got annoying,,for all of us I’m sure)!, just wanted to use them for the “disclaimer”)
Anyway I was having chest tightness (anxiety), this was from my overall level of  angst being through the roof. The fact is when you are being inadvertently  “gaslit” by literally everyone you can certainly question your sanity, you think  “maybe I really am ‘crazy,” you’re not.

Ok so what is it?

OK SO HERE IS HOW TO FIX IT:

It is a tangle of VERY VERY fine “vellus hairs.” They have fused/keratonized over many, maybe most of your life.
Did you ever have dreads?
Super tight braids?
A tangle of some sort that was so tight it just kinda became “part of your scalp,” it was tied down in the back, top, everywhere. It made it so tight I couldn’t even tell that it was there, my hair was (I don’t know how) growing through it.

When I shaved it off, it extremely hard to start the buzzer. When I thought it was done I would discover an other layer like a week later . The hairs looked like they were my “scalp” because the invisible, Vellus hairs intertwined and just kinda held everything in place, the whole thing was very close to flesh tone.

Mine started off with what must have been 20+ years of tangle. The hair tied itself down to my scalp in an in credibly intricate way. Like two spirals If you take a tweezer and grab some of does it move around like a weird solid but not go anywhere?

So essentially this is your hair with a decades old literal network of Vellus hairs holding  them together. The hairs are super soft and fine so they just kinda stay in place. In the places they are woven down side by side they look like a solid wax.

Ok so HERE is how to fix it.  So here is what you need to get all off!

• NAIR (the magic ingredient!) the “face” variety is more gentle on your skin, you can try different depilatories if you wish, but this is what I used.  

• A HIGH QUALITY BUZZER, the “Whal Peanut,” or better. We want it sharp and precise, it’s just better this way,

• A HIGH QUALITY ELECTRIC RAZOR, the kind with a screen (not the circles or whatever) I like Braun.

• DISPOSABLE RAZOR W/plenty of extra blades. The Gillette “Fusion Sensitive” was ideal for me. You want everything to be as  
non irritating as possible.

• SHAVING CREAM

• VASOLINE (to provides lunrication for getting out knots)

• CORTISONE CREAM(make sure to use very little, if you have/get strong Rx cream and you put on too much it can literally make you jittery/heart race. Like everything else I learned “the hard way.” In that case I used soap and water, washed  it off and took a Klonipin or Xanax (get some).

• A “TWEEZER MAN” SLANTED TWEEZER (keep it clean with Alcohol so it grabs better)

• A “TWEEZERMAN” pointed tweezer, I really liked the (unusually shaped) “splinter model.”

• “TEND SKIN” you will be using this to remove the ingrown hairs on the margin.


First, if you haven’t you need to shave your head, just do it. The good news is  that the “bald spots” will be revealed as exactly what they are- hair. It’s all hair.

OK, because you are dealing with hair, and pretty much only hair you will be dissolving it with -NAIR- this will be a wonderful moment. You should work from the edges up, this way you won’t mess up the “ballance.”


The balance is very important if it is super tight, that’s how mine “plastisized,” (seems like a good name) it will pull on one side and maybe even feel scary on your neck.  Remember you may have slot of ingrown (white) hairs around your neck, expose and get rid of these with the Nair and razors. If you have these they came from tiny hairs collecting over the years, they traveled down your body with sweat/gravity and got into different creases and seem to have hardened with something. That’s what I came up with.

If they are around your neck/shoulders it is way more important than your head. Slowly get rid of it, get help from somebody who has a better feel for this type of stuff if you don’t get it. Remove keep it balanced, this includes the back. DO THIS SLOWLY! ANYTIME I WENT TO FAST/CARELESS (mostly during trial and error) something put pressure around my neck and I (nearly) panicked. Keep your high quality, buzzer, shaver and  blades at the ready.

These hairs are acseoerstr issue but if the overgrowth/knowingness got to this level on your head it is probably doing stuff elsewhere. Put a small amount of Nair on your chest (sweat runs down your chest). If there are a lot GET HELP from a Dr. take video etc.  

The ingrown hairs around your neck is one of the places where the electric razor will help out. If it got this tight around your head for the tight spouse then use the electric razor to slow log and carefully even it out, If this is your case  it will take practice.


So for your head, a put some Nair in the small area you are ready to talkie.,work  in small patches from the margins up. For example 2 inches up left side burns then 2 inches right sideburn.

The Nair will immediately expose and remove hairs, follow the instructions, move with a hot towel etc. You will then see the hair get kinda “crisp” (I hate that word) this will just keep happening.

So as the hair hardens/gets crispy or whatever this is where your choice of razors comes in.  Just keep Naring and removing, slowly,


Use the other stuff as you see fit. The powder is to put all over yourself if it gets tight around your neck while wet, it will loosen it a bit. Again  because this comes from hair that got tight that didn’t know about, the ingrown (mine were thick and white) are prob part of it.

Remember, your scalp has been covered for a long, maybe very long time. Get it checked by a Dermatologist, oh avd here is a tip. Just show the doctor(s) your symptoms, let them figure it out. Don’t mention the waxy feeling, they are wearing gloves and it will just add to their BS.


Hope this helped. Good Luck!

Feel free to  opt paste this as you wish

I’m not asking for money but if this info saved you the way it did for me, feel free to send me some. II would have paid anything for this info and I could really use some help with med. etc. expenses. Again I’m not selling medical advice, but if my story inspires you to lol :-)
I’d really really appreciate it!

PayPal: ***@****

Feel free to use that email to say hi if you wish, I’d love to hear how this worked for you.!

[ThroughChrist777]

This is very interesting: did you say it started as a response to nair? I seriously used nair on my face and close to hairline right before this problem arose in 2020. I feel like it’s in my throat somehow

[Dwagner74]

It is in your throat! And in your mouth, around your teeth, gums and tongue!!  Mine is coming unraveled and the hair in the mouth is pulling my teeth crooked.  

[Dwagner74]

It’s also in your eyes and ears and up the nose into the sinuses.  I didn’t realize all of this until it really started coming out.  

[ThroughChrist777]

Has anyone looked into pityriasis amiantacea? After years of researching scalp problems I just stumbled upon this scalp condition and it sounds oddly familiar to what I might have. However, I’ve had these thoughts before so who knows. Thought I’d share. Here’s the link to the article that I found https://www.consultant360.com/articles/what-are-these-thick-clumps-scalp-scales-binding-boy-s-hair

[Lotus1101]

Nothing you're suggesting is working. My symptoms started when I was attacked by a flying insect six years ago. I've never used Nair. I and many people, wish it was as easy as you claim.