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What the PATM community should do.

1.) Stop pretending that some of us have the knowledge to cure or treat this disease.
2.) With covid-19 many colleges has gone online. This should make it possible for members to get a degree in medicine or related area.
3.) If you have children, move heaven and earth to enable your children to pursue a medical degree.
4.) Entice experts to do research on our condition.
5.) We should invest the time to properly understand the symptoms of patm and do not assume. This can only happen if we talk to people around us and not assume what they feel. A reported false assumption is a disservice to the patm community because it scares away potential help from the medical community.
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Avatar universal
When people get poisoned or intoxicated with a drug what are the common symptoms? Here’s some of them.

1) Sudden mood change
2) Confusion
3) Light headed
4) Headaches
5) Feel like throwing up
6) Coughing
7) Sick

The above list looks familiar doesn’t it. I believe the toxic compounds that we release into air which other people around us breathe in does the same thing as would a typical known toxic compound does within their bodies. It’s very toxic because they get allergic symptoms immediately.
We need researchers to find what these one or more toxic compounds are. We need to identify them specifically by name. Once that task is completed everything should follow along with ease. With this vital information, other experts can use it and easily explain the where,when,how,why questions.
Helpful - 2
Avatar universal

840/5000
I am 30 years old, and it hits me very deep not being able to continue my career, not having fulfilled my deep desires, my projects spoiled ...... Many must be in the same situation. Just 2 or 3 years ago more or less the PATM seized me, it was about to kill me, if the PATM was not in me I would already be an engineer and even with doctorates, how that part depresses me, however right now I have an enterprise, but it is not from the branch I wanted ...... Deal with clients daily, etcs ..... The PATM condition limits you mentally psychologically ........ However, I still try to understand When I get really stressed, I get some anxiety, my intestines make noise and automatically the PATM reappears. My only weapon against PATM is my high morale, my self-esteem too much, good humor (trying ......) .....
Helpful - 1
1 Comments
I can totally related, It took away the drive I had in my career too. I'm glad you are still fighting. Stay strong.
Avatar universal

1193/5000
I had tonsillitis, it still seems that I have it, but compared to 1 year ago when I even wanted to kill myself today I have little or nothing, as normal, and I wash my normal mouth as opposed to gargling with normal water. My presence accuses, tiredness, yawning, runny nose, allergy, sneezing, itchy eyes, etc., everything that concerns allergy. Remove the stones from my tonsils, my PATM continues but compared to before, there are days when I am fine and days when it worsens. Many equate the PATM with the TMAU but why do they insist on making that comparison or similarity? TMAU is already being studied, it is known what the cause is and both hereditary and other types, so why do they insist on comparing PATM with it? Both emit a type of composition, but I suppose they are different chemical compositions and therefore the reason is another or the origin. TMAU a smell that does not cause allergy and nothing, it only causes disgust.

On the other hand, I am also or was a loner, in my childhood I was an extrovert but after my tuberculosis treatment I became an introvert because my treatment to eliminate tuberculosis lasted more than 1 year where they prohibited me from drinking or establishing a relationship….
Helpful - 0
Avatar universal
We don't have a choice but to urge for members to study medicine or encourage our own kids to do it for us. We can continue to search help from other medical experts but I don’t think they’ll understand because we don’t understand it too. Therefore as stated above these are the only practical options we have. Without the proper knowledge we will never understand it.

Personally I don’t think there’s a cure. I think it’s a metabolic disorder happening within our digestive system. This could be within our gut lining, pancreas or liver. Just like diabetes, it doesn’t show up until you create the environment for it to materialize. When it does it never goes away. I believe it can be controlled with the right scientific knowledge but only a person trained in medicine and biochemistry can understand that after doing a long academic research on patm.

That’s not going to happen any time soon because we haven’t gone past phase 1.
Helpful - 0
Avatar universal
So, here is my advice to everyone suffering from these.

1. Find reasons  and choose to be happy.
2. Stop discussing it with people, they will never get it, even doctors don't
3. Take back your life, some people will love you no matter what.
4. Check if you have tonsiloliths ( they are extremely smelly)  YouTube is your friend. I never knew I had too.
5.  Get busy.

...till someday when we find a cure.
Helpful - 0
5 Comments
Stone1234, what kind of doctor are you? And do patients react to you ?
Hello. For tonsilolitis the main reason  I think diary is the  culprit. I believe that we are what we eat and what food is good for our own body.  In my case first I did detox cleanse with wormwood,cloves, black walnut and then I took probiotic with lactobacillus plantarum, rhamnosus ,bifidobcterium longum and infantis.  I do not eat gluten,diary and sugar .  I eat more vegetables than fruits throughout the day. I eat chicken,beef or rabbit 2-3 times per week. I have problems with pork,fish,eggs,turkey, duck so I don't eat it. I drink almond or coconut milk and rarely sheep milk.  Brown rice  and sweet potatoes are better but I eat as well rice and potatoes. Instead of sugar  I eat stevia and dark chocolate 72% cocoa. And that is for a long time , not for a month or two. Try to eat what your body can tolerate. Also helpful for me is  to not eat late at night. Actually no later than 8 pm - we need at least 3 hours before bedtime. Also if you eat fruits it should be at least one hour between other meals. What also helps me is a good sleep and natural cosmetics - without alcohol, parabens etc. Remember what we need for a good health - mentality, movement, deep breathing, good sleep, eating healthy and no negative thought.
I don think this guy is a doctor at all. I had my tonsils removed over ten years ago. Since wearing a mask due to the pandemic I stood get reactions when I go out. I strongly feel whatever is going on is either something very simple that is being overlooked or something rare that has not been tested.  It’s crazy though when people can smell me from inside my car and house. That’s why I do believe it is in my airway. I notice the smell gets in anything that is cloth. I have a seatbelt cover and that thing smelled so bad I had to take it out and wash it. I have to do the same thing to my masks after wearing them. Yes eating makes it worse. I have been trying something out . I will post my answer in the couple days. After I go out in public. I wii keep you posted.
"1.) Stop pretending that some of us have the knowledge to cure or treat this disease."

Yes crazeek, that is true. No patmer is a medical doctor. Just not yet. Anyone can tell by just reading his comment but it's no big deal as we all get excited sometimes and pretend that we’re Rango. I work with very smart people but I'm no medical doctor. I believe I know more about medicine than almost anyone in here but I am far away from having the expertise to understand patm at a molecular level. That takes years of medical and scientific training to have the tools to understand the chemistry of the human body and I’m not anywhere near that.

That’s the rationality why I urge anyone that can study medicine/biochemistry mostly online to do so because it needs both finance and time. Many of us can’t do that because we work full time but those that can should try. It’s the only practical choice.

When the Jews realized they’d get eradicated from the face of the earth if they don’t try to fight back, they did the unthinkable – forcefully created their own state, killed and hunted down all those directly responsible for the holocaust, have influential people and spies all over governments around the world and build cutting edge technology and nuclear weapons to secure their state.

I don’t necessary agree with what they did but it does reemphasize the fact that only when you’re beaten down on dirt like a dog and ready to die that you become desperate enough to do what it takes to achieve your goals. We will get that desperate.
Sorry, it took me 3 years to reply, I simply moved on.

So yes, my patients reacted to me, then I was in specialist training for dermatology ( skin doctor) so my patients react to me in clinic, and when I go into the wards , patients react. One I remember so well was when I entered a children ward to see a baby I was called to see with a skin problem, another child opposite her on oxygen started coughing vigorously, I panicked and ran out of the ward.

I did lose the momentum in my career, I no longer practice under the pretense of raising a family, however I know deep down it's because my anxiety was building up. Currently trying to pivot into a non - patient facing role in medicine.

Another question was on whether I was a real doctor...yes I am. And prior to PATM I had practiced for about 4 years. I think it's ignorant to make such a general statement that no patmer is a doctor, I have actually contacted another, that makes 2 that I know, you can only speak for yourself and try not to discredit others if you ever hope to be believed too. It goes both ways you know.

In my post, I used the word insinuations, not facts. We all know that all we have with PATM are theories, tonsils, guts, liver etc...those were mine, they might not be true for all. At the moment I have no theories because I no longer think about it.
Avatar universal
I' m a doctor and I have patm.

It all started  mid last year, and like everyone here, it was unbelievable, unreal.

I discussed with my colleague and friends, everyone thought I was imagining things, and initially there was no smell. I was miserable, I devoured medical text after medical text, believe me , our symptoms are not documented anywhere. I found this group along the line.

This story changed about 6 month after, by the way I used several antibiotics and antifungal and almost everything suggested at some point.

So , 6 month after I started feeling some sensation behind my throat, I did a skull xray, and CT scan of the head. Went to see the ear nose and throat specialist.

No one believes my story, they even invited a psychiatist to evaluate me. they saw featured of " chronic sinusitis " in my imagings but that was all. I was placed back on antibiotics and steroids. I even moved out of my apartment. Nothing helped, but I continued researching.

To cut this long story short which I' m sure you are familiar with. These are my insinuations.

1..I found something called "tonsiloliths" a lot of people have a bit of it, but I have a lot of it, and never knew I did until all these. I learnt some maneuvers on YouTube on how to remove them.

For me, they never seem to end, I keep clearing them,

2..I found that a solitary life style might have been a risk factor, reduced talking might have allowed these things to build up, and patm will worsen it because you are embarrassed to stay around people. So I started chewing gum. Also I used a mouth wash after brushing.

3...I stopped all medications. I take green tea occasionally,
I take a lot of water too, and I eat every food, I intend to start exercising occasionally just for overall wellbeing.

My patm has not stopping, and when I started clearing my tonsiloliths and chewing, it slightly got worse, but thank God for facemasks. But every time I feel the stones fall behind my throat, I have hope that one day, I will finish clearing them and the patm might stop.

By the way, I have been feeling them drop for almost 3 months now in bits. There must be a lot there.

Helpful - 0
4 Comments
Thanks for your reply.

Contrary to your guess, I have never obsessed over smells, over anything really. The very first episode started on a happy day, while discussing with a senior colleague, and I'm not particularly shy, I'm usually around people ( patients at work)

Also, I think patm is multi factorial,  in myself, I have identified two factors, 1, an awful lots of tonsil stones 2, chronic sinus collections seen on my test images. Perhaps what causes patm in different people differ, but this is my story.

Finally, I' m highly objective about my symptoms, and I always try to remove sentiments. At some point I logged how many people react to me on a public bus per day, and I was able to identify supporting symptoms on good and bad day. ( I did have facial pain at some point)

I  did the mind thing you suggested especially in the early days when I was severely distressed. This is my one cent, I don't think patm is " psychological"  but I have not found a  more "debilitating wellness" it would make you question your sanity often and if you ain't fighting, depression will come knocking.

Once you overcome the panic and the distress, things become generally easier.

@100rabbits, olfactory reference syndrome (ORS) was a suggestion by some psychologists. It was proposed to WHO as a new condition but booted out by other doctors. The reality is it’s foolish for them to suggest a new condition with a definition relied only on talking sessions to explain another condition that hasn’t been fully defined and still studied by others. Historically this kind of misdiagnosis is a hallmark of psychology. I don’t disagree or agree there are odors but I do agree patmers are honestly describing what they think is causing the influenza-like display of patm in other people. That’s not very far from what the Japanese doctor discovered. He found samples of petrol-like compounds on the skin of a patmer that is known to cause allergic symptoms homologous to what most patmers have always described. He didn’t sit behind a desk and diagnosis patmers based on only word of mouth interviews like the psychologists described above.  In your opinion is the medical expert crazy? And suppose there’s no odor, didn’t patmers describe the other 99 percent correctly according to the Japanese doctor’s findings?
@100rabbits, I’ve never panicked in life. I’m always calm. I was happy and enjoying life to the fullest but patm still came. Many were having a hard time but others were doing quite well when patm struck. Others were playing sport and others were lazy, some fat, some skinny. The fact is you can’t draw conclusions based on outliers or scattered data with no intrinsic patterns. Historical, people have done that in the past and were found to be flat out wrong.
@100rabbits, thank you for your reply. I respectfully disagree with explaining it as a form anxiety. I believe this metabolic condition has absolutely nothing to do with thinking. We cannot think and cause a metabolic disorder. It’s more likely genetic. If it's stress or anxiety then how come patm came to me and many others who were doing fine (stress free) before. Think of the most stressful job or countries in the world and you’ll see the data does not support it. America and Europe is a haven compared to many African and south Asian countries but did you look at the data that was collected? Most patmers are from the US and UK. We should have 90% of patmers from stressful countries. Furthermore a majority of patmers should be soldiers or homeless people. Soldiers commit suicide out of too much stress but not one among us is a soldier. I’m sorry but the data does not support your anxiety idea.

@Everyone, here’s a tip to try to  decrease PATM. The lungs’ surface area is about 70 square meters compared to the skin which about 1.5 square meters. That’s almost 50 times the total surface area of your skin. Put it differently your lungs release more bodily fluid through your breath than the human skin. Whatever the compounds that is causing the allergic symptoms, it’s in the blood, sweat, urine or any bodily secretion. Minimizing it through perspiration, urination and breath will diminish patm reactions. Therefore if you exercise lightly or heavily but constantly take very deep breaths and exhales, for about 20 times each, you’ll be surprised when you go to work. If you wear a beanie and jacket to force yourself to sweat at the same time it will help too.

So this is what I do before I go to work in the morning. I’d exercise for an hour and constantly stop for about a minute or 2 and take very very deep breaths and exhales. Blow out as hard and fast as you can. It’s like blowing an air dryer over a 70 meter square surface with moisture. It blows dry the surface. Do it 20 times. When my one hour of light exercise is done, the total number of deep breathe-in and exhales is about 160 - 200 times. Before I went to sleep the previous night I dosed on some red wine and Saccharomyces Bolardii. Beginning two days before, my meals were just vegetables, rice and skinless chicken thighs or breast. No fat so I eat as much as I can. When I go to work, surprisingly patm diminishes greatly. The more I do it, the more it improves the following days.
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