Fibromyalgia & Fatigue

[thester6474]

Hi, I am a 25 year old female that was diagnosed with Fibromyalgia in August along with many other things...I have been staying so tired, some days sleeping more than 15 hours....Just getting out of bed sometimes is almost impossible...For you all what has been the most helpful treatment (exercise, therapy or medication) for your fatigue?  All of my medicines cause fatigue and so do all 8 to 10 diagnoses I currently have...Thanks so much for your help.

[thester6474]

Yes, I am tired of having to wait for this page to finish scrolling..I have DSL, but boy, with these pics it takes forever to scroll down.

[sfbaygirl]

Interesting about ANA.  Checked mine labs again (everyone should get copies of their labs) and found three tests.  One was ANA pos <40.  Then there was ANA Titer   40,  then there is ANA Pattern which is speckeled.  No idea about the three different ones.  Anyone with a clue, please check in.  Perhaps we need a new thread!

[thester6474]

Hi, I too have had a positive ANA which led me to my first Rheumy..He says that can be fairly normal and decided to do other tests..So far my ANA seems to be pretty innocent..My second Rheumy is also looking at scleroderma, because he noticed my skin had thickened and tightened a great deal in the months time in between my appointments with him..So do not get to worried, I have almost worried myself to death, only to find that makes the pain, fatigue and everything else much worse...Just go to your Rheumy and see what his next step is for you...Well it was a pretty bad day for me, did not have a good doctor's appointment with my Neuro today..My chest is burning, and I just feel like throwing up my hands and saying screw it all, lol..So I am about to go rest my nerves..I will be checking back on this forum tonight though if you have any question about the ANA..

[Searching1111]

Thanks!  Ok, I'll check that out.  That is actually a big relief to know it's nothing to go berserk over.  Aren't we all trying to keep anxiety to a minimum?  Hope you are alright today.  

[sfbaygirl]

Welcome!  I just got pos on the ANA.  Many, including my DR. have said that doesn't mean a whole lot.  I was told like 40% of the population have it.  So I am just going to get some more tests and find out what it all means for me. If you go to wikpedia, it will explain all the things it can be.that only means they are markers. So don't freak!  

[Searching1111]

Hi! New to this site, but I did want to tell you it really is so hard to get relief from fatigue when meds are causing them.  I totally understand.  I spent a month in bed trying out different antidepressants till I gave up and just take Welbutrin.  Keeps me from being so irritable that I act PMSey all the time!!!  But doesn't do much for depression.

I have fibro and wanted to tell you that I have found that a low glycemic diet and any meal high in fiber and low in fat is energizing.   Breakfast is apple and peanut or almond butter, and lunch is a salad with a little meat or oatmeal with fruit.  Dinner is lucky to be made if I feel well enough.  I just don't know if changes in diet will help much with meds you're on, but what if it did a little? I hope so.
  
I'm so sorry to read you have so many complications.  Makes you wonder why, and how we make it!  I'm impressed you still have a sense of humor.
I might have either Lupus or Sjogrens.  Thay are doing more tests, but I got my 2nd positive results on ANA screen today.  I'm a little freaked out, and the nurse kept saying, "That's all I can tell you." Didn't get questions answered.
I add to SFbay hopes that Duke goes well for you.

[sfbaygirl]

No kidding. on my Hep C forum we have 310 posts on one thread!! CAn you imagine scrolling down all of those?   Still feeling pretty well,  hoping that doesn't change tomorrow.  Gotta say I won't respond to the does this help you yes or no..   Pretty much we have taken up this thread, oh well.  We have helped each other make it though this awful stuff and that's all I can say about that.  Hope you are well todayl

[thester6474]

I sure do not like this new look, it takes forever to scroll down, esp in this one forum, because there have been so many different messages.

[sfbaygirl]

Hmmmm did this forum change.  A bit strange. Kinda takes up a lot of space when they post the photos.  Pain is better today. I sure hope after granite hunting, I won't pay for it.  Have a good day!  

[thester6474]

Same to you, I hate to hear that you are in pain...Take care..

[sfbaygirl]

Ick.  I have been in pain all day.  Just woke up and feel a bit better.  I don't get that tingling and burning, thankgoodness. Just a lot of pain all over.  I haven't felt well enough to make to the lab for my blood, need to do this. Tomorrow I have to pick out granite and go to the shrink.  I think just going out last nite with hubby caused my pain today.  I sure hate this.  Tuesday ought to be special.  Got a busy week too. wish I had some energy and less pain

Hope you feel better sweetie!

[thester6474]

Sorry I have not been able to post in the last 24 hours..This burning and tingling has been pretty bad today..How is everything going with you?

[sfbaygirl]

LOL.  I can't imagine my husband having a headache.  He would be crying all the way to the toliet to vomit.  Nope, you are right.  Hope you get your Dr at Duke to help you!

Hugs!
Linda

[thester6474]

I know, esp since men cry over a doggone headache..They would not make it a day with all that we have going on, lol...Lol, sometimes getting out of the bed is a headache...Everything will get better, I hope

[sfbaygirl]

Cool. I hear Duke is a great teaching hospital.  Go get checked for all of it!   Glad your sister is going to. It sure helps to have support.  my husband, ususally supportive, just said to me b/c I said I wastn' sure I could go to the basketball NBA game that HE is going through too much.  Yeah,  I wish he was going through what I am. During Chemo, I went everywhere, almost with him...as hard as it was.  I may go tonite,  but if I don't feel well, I am NOT going. He has season tix for Basketball, Football and Baseball. I sell tix he doesn't use...of course I DO NOTHING.  I am angry right now, but he does have to go through a lot. Not even close to what I do. I hate when he says I do nothing and it is hard on him. I said," okay, let's move into a studio apt. instead of this big *** house. Then I won't have to do things you give me no credit for."  Grrrrr

[thester6474]

Lol, my sister and I are going to go...She is overly supportive and has been so since day one...The average person that is not suffering from the things we are, are going to believe it is all in our heads, but it definetly isn't....Fibro was the last thing I expected to be diagnosed with...But all my docs are good...My PCP was like only people that do not believe are pompous a**es, esp about some physicians that say the thing.

[sfbaygirl]

Sorry to hear all of this.  I just got some bad labs too and need a biopsy.  That is good he is sending you to Duke. get a hotel and get away from the family.  My kids think it's all in my head.  I sure hope you don't have MS!  Are you eating?  You are so young to get all this stuff!

[thester6474]

Since I have been sick, my PCP has put me on medical leave...I have a hard time walking, etc...Since then I have had to move back home, and it is painful...I cannot stand living at home, esp when your mom really doesn't give a good darn about how you feel, or what is best for you...That is a shame, you do not kick a dog when it is down...But it is okay, I have since been told by one of our Board Members, because I work at our local Pre-Kindergarten that he would help me get SSI and Secial Security Disability...So hopefully I will get back on my feet soon, and be able to move back out...My PCP says with my many diagnoses that I am not ready to go back to work, so he will not release me..and he is not sure when I will be able to...Boy when it rains it pours..My current Dxes are fibro, hypermobility syndrome, myoclonus, neuropathy, restless leg, kyphosis, scoliosis, mild early disc degenerative disease (spinal), mild early disc desiccation (spinal), anemia, b-12/iron deficiency..lol, I think that is it so far..and he as well as my Neuro are almost positive I have Multiple Sclerosis as well...Things will get better, I hope, how has your day been today?

[thester6474]

Hi, I am sorry, I have been pretty busy today..I told you that I had an appointmennt with my PCP today...Hi is about to make me either go to atlanta (4 hours away) or Duke (two states away)...He is sure what I am going through is Neurological as well..He agrees with the fibromyalgia, but believes I also have multiple sclerosis.

[sfbaygirl]

Good idea.  Sometimes I bring my 4 inch binder full of labs etc and notes to ask. Did you see him today?  I am still in the pj's I had on yesterday.  Pitiful. I just don't know how I'm going to make it through.  Now that the pain is gone, I really want to stop the Lyrica, but if I do the next flare will send me right back where I was.  I remember the agony, that's one reason I don't stop.  But geez, how can I live like this?

[thester6474]

I have to go back and see him today, so I am now sitting here typing up the questions that I needed to ask him, how droll right? lol

[thester6474]

My PCP took me off both of my anti-depressants..I just started back up with the Pamelor though.

[sfbaygirl]

You can read many of my family problems here and on the Hep forum.  And that ain't all of them!  Sorry you are depressed. I forgot my Prozac yesterday...took it today.  No need to appologize.  

[thester6474]

Hey, I am sorry, got kind a depressed...family problems, sometimes you wonder if you are better off without them...