https://medhelp.org/user_journals/show/1267372 Medical communities and forums staffed by doctors from leading medical centers. Over 325 forums and communities providing medical information and medical help. en I just got done reading some of your updates and I wish I'd been on more often but hey we just replac tdavidson Thu, 01 Sep 2011 18:19:07 -0400 https://medhelp.org/user_journals/show/311670/A-Long-Overdue-Update https://medhelp.org/user_journals/show/311670/A-Long-Overdue-Update I haven't updated this journal in a while because our computer died...I have my work computer at home tdavidson Wed, 27 Jul 2011 06:16:30 -0400 https://medhelp.org/user_journals/show/304475/Results https://medhelp.org/user_journals/show/304475/Results Whitney had her brain MRI and VEEG this week. The MRI was normal and the VEEG was not. She is defini tdavidson Thu, 14 Oct 2010 09:04:22 -0400 https://medhelp.org/user_journals/show/237926/Erythromelalgia-and-SCN9A-Mutation https://medhelp.org/user_journals/show/237926/Erythromelalgia-and-SCN9A-Mutation Well the latest word from Whitney's neurologist is she thinks its neuropathic pain syndrome and then tdavidson Mon, 27 Sep 2010 14:22:08 -0400 https://medhelp.org/user_journals/show/233659/Neuropathic-Pain-Syndrome https://medhelp.org/user_journals/show/233659/Neuropathic-Pain-Syndrome I talked to the rheumatologist. They did more testing beyond the ELISA (which is what the pediatricia tdavidson Fri, 06 Aug 2010 13:57:51 -0400 https://medhelp.org/user_journals/show/219035/Never-Mind-Its-not-Lyme https://medhelp.org/user_journals/show/219035/Never-Mind-Its-not-Lyme Last night and today Whitney is feeling so electrocuted...at times its in a specific area like her fi tdavidson Sun, 25 Jul 2010 14:47:32 -0400 https://medhelp.org/user_journals/show/215375/Electrocuted https://medhelp.org/user_journals/show/215375/Electrocuted It's me...I have poison ivy. I am pretty sure that is what it is....all over my face...ugh..IT ITCHES tdavidson Tue, 20 Jul 2010 15:51:03 -0400 https://medhelp.org/user_journals/show/213983/Poison-Ivy https://medhelp.org/user_journals/show/213983/Poison-Ivy Well I've filled out the online appointment request form to get an appointment at Mayo Clinic. Let's tdavidson Wed, 14 Jul 2010 08:51:48 -0400 https://medhelp.org/user_journals/show/212081/Mayo-Clinic https://medhelp.org/user_journals/show/212081/Mayo-Clinic I took Whitney to the pediatrician yesterday because her chest/heart/lungs hurt and she was just plai tdavidson Wed, 30 Jun 2010 09:19:30 -0400 https://medhelp.org/user_journals/show/207822/Update-on-Whitney https://medhelp.org/user_journals/show/207822/Update-on-Whitney Whitney had a great time with her friends on Saturday evening. I found plenty of games that weren't tdavidson Mon, 28 Jun 2010 10:03:47 -0400 https://medhelp.org/user_journals/show/207173/Paying-for-the-birthday-party https://medhelp.org/user_journals/show/207173/Paying-for-the-birthday-party Whitney had her skin biopsy on Tuesday. The skin biopsy is done to test for small fiber neuropathy. tdavidson Thu, 24 Jun 2010 14:55:41 -0400 https://medhelp.org/user_journals/show/206199/Update-on-Whitneys-skin-biopsy https://medhelp.org/user_journals/show/206199/Update-on-Whitneys-skin-biopsy I wish there were more good days than bad for Whitney. It seems like for every "good" day she has, s tdavidson Thu, 10 Jun 2010 17:07:27 -0400 https://medhelp.org/user_journals/show/201878/Cruddy-days https://medhelp.org/user_journals/show/201878/Cruddy-days We finaly got to go back to the neurologist last Friday. We got the results of the TTT and it was no tdavidson Tue, 08 Jun 2010 12:31:10 -0400 https://medhelp.org/user_journals/show/201115/Visit-to-the-Neurologist-Last-Friday https://medhelp.org/user_journals/show/201115/Visit-to-the-Neurologist-Last-Friday Maybe they think I am whining or bugging them too much. But when you call and tell them your daughte tdavidson Sat, 22 May 2010 14:30:55 -0400 https://medhelp.org/user_journals/show/195440/Why-dont-doctors-return-phone-calls https://medhelp.org/user_journals/show/195440/Why-dont-doctors-return-phone-calls Went to Cardinal Glennon Childrens Medical Center in St. Louis and loved it. The doctors that saw Wh tdavidson Sun, 18 Apr 2010 07:12:24 -0400 https://medhelp.org/user_journals/show/183294/After-the-Visit-to-Neurologist https://medhelp.org/user_journals/show/183294/After-the-Visit-to-Neurologist Still not doing good. Her concentration is way down, pain way up. I am taking her to the psychologi tdavidson Sun, 11 Apr 2010 07:41:28 -0400 https://medhelp.org/user_journals/show/180850/Update-on-Whitney https://medhelp.org/user_journals/show/180850/Update-on-Whitney