https://medhelp.org/user_journals/show/997567 Medical communities and forums staffed by doctors from leading medical centers. Over 325 forums and communities providing medical information and medical help. en My daughter continues to feel terrible. Her head, neck, back, and legs hurt so much that she cries se beentheredonethat2x Wed, 25 Nov 2009 18:58:18 -0500 https://medhelp.org/user_journals/show/139784/a-referral-to-Mayo-Clinic https://medhelp.org/user_journals/show/139784/a-referral-to-Mayo-Clinic Wow! We finally heard back from the NS office. The nurse called today, 6 days after the lumbar punctu beentheredonethat2x Tue, 27 Oct 2009 18:30:05 -0400 https://medhelp.org/user_journals/show/132507/finally-heard-back-from-the-neuro-surgeon https://medhelp.org/user_journals/show/132507/finally-heard-back-from-the-neuro-surgeon We just got back from another stay in the hospital. A large bulge filled with spinal fluid brought us beentheredonethat2x Mon, 12 Oct 2009 15:38:09 -0400 https://medhelp.org/user_journals/show/128757/home-from-the-hospital-again https://medhelp.org/user_journals/show/128757/home-from-the-hospital-again Taylor had her posterior fossa decompression surgery for a Chiari I malformation on August 14, 2009. beentheredonethat2x Sun, 04 Oct 2009 12:51:00 -0400 https://medhelp.org/user_journals/show/126583/Now-what https://medhelp.org/user_journals/show/126583/Now-what My daughter's surgery was Friday, August 14th, 2009. We arrived at the surgical area at 5:30 am and beentheredonethat2x Sun, 30 Aug 2009 13:09:54 -0400 https://medhelp.org/user_journals/show/117510/Cerebrospinal-Decompression-Surgery https://medhelp.org/user_journals/show/117510/Cerebrospinal-Decompression-Surgery