Ehlers Danlos Syndrome
Information, Symptoms, Treatments and Resources
Posts on Ehlers Danlos Syndrome
So back in late August I saw a geneticist, one of the best in the world, and she diagnosed ...
- Oct 16, 2014
I have Chiari Malformation and was told I have EDS as well, I'm in the process of getting a...
- Aug 25, 2011
what types of accommedations have any of you with EDS, hypermobility type found most helpfu...
- May 09, 2010
I had a genetic test for Ehlers Danlos that came back negative. My genetic Dr. said the ge...
- Oct 14, 2015
My back goes out feels like if two fingers are twisted and stuck i can hardly walk or stand...
I've been meaning to post about ehlers- danlos syndrome for a while, and Addi's post about ...
- Jul 16, 2020
Hi, My younger sister who is 14 is having debilitating back pain and mild hand and shoulder...
Just got back from a dr appt with my 10 year old daughter. She has hypermobility or as the ...
- Sep 30, 2008
I am 41 yrs old and live in the Greater Cincinnati area. I have recently started having a ...
I have a basilar invagination, chiari and EDS.
For the basilar invagination I have had...
- Mar 30, 2015
anybody been diagnosed with this connective tissue disorder? i was recently diagnosed w typ...
I am 25 years old and am being treated for osteoarthritis (fingers, knees, elbows and toes)...
Hi...I was recently dx'd with EDS and was wondering what is/are the typical treatments and ...
