Mar 28, 2016
First, Arizona was amazing! We were blessed with great weather, easy traveling, and most of all, a body that mostly cooperated with me. It was the perfect balance of pushing myself physically, then lots of sitting/driving, which allowed for recovery. I swam 5 of the 7 days, which felt wonderful. My legs fatigued quite quickly, though, and I hated the feeling of having cement tree trunks for legs when I got out of the pool. Nonetheless, worth it.
We landed back home around noon on Friday and I really found myself struggling to wrap my head around taking my injection. For an entire week, other than the presence of physical symptoms, I didn't plan my life around MS. Coming home was a mind-bender for sure - it took me until about 10:30 PM to finally take the injection.
I slept 12 hours that night, which was beautiful. I was going on almost no sleep from the previous night due to a sad daughter who was ready to come home and a 4 AM wake-up call to get to the airport, so the sleep was more than welcome (thank you, hubby!). For the most part, I felt OK on Saturday. I managed with minimal NSAID usage this time, no Gabapentin, and just generally takin' it easy.
I slept well Saturday night - although only about 6 hours enough due to Easter preparations - and made it through Sunday without any additional pain meds. I could feel the effects creeping in by nightfall, and had a difficult time falling asleep. Then came the dreaded aches, pains, and nausea. So, almost no sleep last night. Around 4 AM I begrudgingly took 220 mg Naproxyn (Aleve).
Today, I'm still dealing with slight side effects, but not enough to keep me home from work (thankfully). So, I feel encouraged again that I'm adjusting to this medication much better than many others I've read about. I have a follow-up with my neuro tomorrow (first one since Dx) and will discuss this awful denial I am experiencing. Maybe she can help me to understand that this is real....
Details for Dose #4 (2nd full dose):
Friday, 9 PM - 440 mg Naproxyn (Aleve)
Friday, 10:30 PM - Injection
Slept like a rock; side effects did not impact sleep (helps to be incredibly over-tired)
Sat, 11 AM - 220 mg Naproxyn (Aleve)
Side effects: Pain in my spine from mid-back to neck, jaw pain, increased Sx, headache, fatigue
By 8 PM I was incredibly fatigued, shaking, cold & aching everywhere - took another 220 mg Naproxyn
Sun - no NSAIDs
Managed until the evening without pain
Overnight nausea & pain made it difficult to sleep - finally took 220 mg Aleve @ 4 AM
Worked to get enough water today (did not do well on Saturday)
Mon - fatigue (ummm...I haven't hardly slept!), the same back pain, & increased Sx on right side
Working on water in-take
I will re-dose with Aleve at dinnertime
The moral of the story: Stay on top of the NSAIDS! I think I was throwing a little hissy fit & just didn't want to do this for some reason. All in all, I really can't complain. Compared to doses 1 and 2, this was a breeze!