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8 yrs of health nightmares finally over

Feb 26, 2015 - 1 comments

It's been 8 yrs, since I began my health journey.  My nightmares began with Clonazepam.  Experiencing horrid withdrawals for nearly 3 yrs, during this time my thyroid began to swell, I learned later Klonopin destroyed my thyroid.  Through it all, I had horrid symptoms, mainly fatigue.  I could hardly get out of bed/function.  After numourous physicians, numerous testing, never giving up hope.  Finally my health has recovered.  I had multitude of disorders, that cycled, I truly believe Klonopin was the cause of all my health disorders.  I was diagnosed with sleep apnea, diabetes, I developed strabismus, my vision became double, 2 surgeries restored my vision, my thyroid was removed, months and yrs of trying to figure out what was causing what, months and yrs of seeking answers from medical forums, so many people I would like to thank, that support me through out my journey.  

Now other then occassional infections.  I'm back to living a full healthy life.  My medical record is over 2000 pages !!!!  Mainly due to incompetant physicians, not being able to figure anything out.  Long as lab results reveal normal, all they care about.  But do not take everything is normal for an answer, if your not feeling well.  

I even travelled 100 miles out of town all directions, to meet with physicians, I believed could help me restore my health.

What I learned was most important through my journey, learn labs, how symptoms appear on labs.  Regardless of normal results.  Learn everything about your labs.  Keep a journal, how your feeling between each lab result.  I did this through out my hormone journey, some symptoms were horrid, unbearable, but I stuck with the treatments, learned what my labs were revealing.  My hormone meds were bounced up and down like a yo yo, between 150 - 225 Levo, learning my labs, I discovered my body works best at 162 Levo, 5 mcg T3,.  

Security was called in a few times, for losing my temper with physicians.  My thyroid was nearly the size of half a softball, all I kept hearing was your labs are normal for 5 yrs !!!!!  Although I was choking on food, taken to emergency.  I obtained opinions of several physicians, used each one against one another.  How come this physicians tells me this, and your telling me that.  Question physicians knowledge, make em feel like idiots.  But most of all, don't give up, till your health is restored.  

My journey should have not taken 8 yrs, but goes to show how imcompetant most physicians are in today's world.  Learn all you can about disorders your experiencing.  Question physicians.  

Wishing everyone well on thier journey.      

    

Venting about idiot Endo !

Feb 18, 2009 - 5 comments
Tags:

idiot

,

venting

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meds

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ultrasound

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Synthroid

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radiologist

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uptake

,

endo



Yes, my labs are normal for 2 years, but my thyroid continued to swell, and swell and swell, to the point of deviating my trachea.  And the only thing, the Endo could say was, there's nothing I can do.  What an idiot !!!!!!!!  DUH, maybe schedule me an appointment with general surgery, like a year ago !!!  Lol !!  

After I spoke with the uptake scan radiologist, he scheduled me an appointment with general surgery a week ago, thank goodness, someone with some concern & understanding.  

&^%^%$$$### Endo is an IDIOT !!!!  

My CT scan, ultrasound and uptake scan, all shows an overly enlarged thyroid.  Do you know how to read !!!!

His response a week ago, DUH !! your labs are normal, there's nothing I can do.

Let me relax, at least now, I am making some progress with educated, caring, understanding doctors.  In 6 weeks, I went from uptake scan to surgery.  

What has the Endo done in 1.5 years !!  Prescribe me synthroid, with normal labs, tells me to cross my fingers, and hope they work.  Well they didn't work, I ended up in the ER, not able to breathe, with a TSH of .08,.  

Now get this, after my uptake scan he prescribes me the meds again.  

I am so glad, I don't have to see him ever again, miracles do happen.