Sep 22, 2008
Each day my head pain gets worse and my eyes are weaker. I take the predisone but it is not working. The doctors seem to have given up on me. They pass the buck. No one seems to want to take responsibility. My family physician cares but he has to wait for the specialists to tell him what to do and they talk in circles. I hate to say this but I'm concerned about losing my vision because no one wants to explore what is causing this pain. The treatments for Giant Cell are not working. I have every reaction to predisone there is, the hump has been forming lately. I feel like andan alien. I look so different. the hump is hurting, its at the base of my neck. Sometimes I wish I was dead so I would not have to sit up in pain, crying because I do not know what to do or how to stop it. I am so afraid of what is happening to me.
Tommorrow is a new day and I always seem to make it through the night to the next but I feel so drained lately.