All Journal Entries Journals
Sort By:  

life after brain tumor surgery

Jan 14, 2009 - 4 comments
Tags:

brain tumors

,

surgery

,

swollen

,

Headaches

,

confusion

,

Memory loss

,

Panic



well its been 7 mos and not much has chanegd. Aside from all the usual stuff (headaches, confusion etc.) I am now getting anxiety or panic attacks. I am suppose to be scheduled fo ranother MRI but some say it is too soon (last one in Sept). Still dont know if my brain is too swollen or if theres a leak. If MRI cks out OK and If this is the way life is isuppose to be for a while then I need help getting a handle on it. I have recently met someone who had the same surgery over 5 yrs ago and he has the same symptoms (except the headaches). The Doctors ddont tell us that!

6 months after brain surgery..

Dec 15, 2008 - 33 comments
Tags:

surgery

,

after brain surgery

,

confusion

,

brain swelling

,

Memory

,

Headache



Havent felt well lately. i feel waterlogged all the time. My head pains wont go away and I still have issues with confusin, memory and dizzy. - no meds work and I think I need to be trated for the swelling not the headache.I think I need another MRI or CT Scan becaus I know my head is still swollen-MRI showed it was in Sept and Im not due for another until next June. Hopefully I dont have a CSF leak -that wont be fun.

Life after brain tumor surgery

Nov 19, 2008 - 45 comments
Tags:

brain tumors

,

surgerys

,

dizzy

,

head

,

Headache

,

Pain



Im sorry  for not getting back to all of you I had a bad week. I was referred to a new Dr as mine was retiring and this Dr doesnt believe in Narcotics so I was taken off the vicodin--cold turkey. this Dr would not even give me enough to taper off. The only thing that works for the pain but what was worse was the withdrawls for 3 days. Needless to say I am seeing a new Dr this week.
To me there is a diffference between head pain where your whole head hurts to touch and a 24/7 headache (sometimes cluster headaches). I dont know what to say about recovery time abd what to expect. I wasnt told anything so I am learning as I go. Sometimes my speech is either slow (when I cant remember the words) or I stammer. I cant concentrate, and still get dizzy or off balance.
I cant walk toofast for fear of falling over. I havent slept on my left side in 6 mos because the pressure makes my scar or head hurt (i do have a plate also).I have to write down everything so I wont forget. sometimes I see things all scrambled and numbers, counting cash is very hard for me. People seem to think IM OK they say you seem pretty sharp, I think to myself because I am responsive and not drooling they think Im OK. I cry alot mostly out of frustration but every day I know I am and will get better - just believe, and I hope this helps most of your questions.you know where to find me if you have questions - sorry this was so long guess I need to vent also.

life after brain tumor surgery

Oct 08, 2008 - 130 comments
Tags:

surgerys

,

brain tumor

,

head

,

nausea

,

Pain



Its been 4 months and I am still not well-at all. I have dizzeness, severe headaches and pain, and always feel like im under water or in a fog. Oh ya I stammer a lot and have memory loss and am so very tired and just wiped out. Sometimes I dont see things right. When will this all end? Can someone tell me what kind of meds works best for the pain in the head. I tried Vicodin but got tired of being nausea, Then I was on Butalbital and that was worse-didnt help the pain. Now I have pain on the right side (tumor was left frontal). I had to start the Vicodin again to ease the pain but have to tolerate the nausea. How do you know if your brain is swelling? So many questions and no answers....