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Bad day

Jul 04, 2009 - 0 comments

I have felt good for about a week and a half.  My symptoms were very mild.  They were all still there, but very mild.  My fatigue was almost completely gone.  I still had mild muscle weakness, but nothing like it was.

Today they came back full blown.  I could hardly move because I am in so much pain.  The fatigue is the worst I have ever felt it.  I can hardly communicate out loud.  I can think what i want to say and it makes sense until I open my mouth.

I keep losing things.  I can't think striaght.  I am all over the place.  Horrible mood swings because I am so frustrated.  

Both of my hands are bothering me today.  I can hardly grip anything and I can't make a fist with my right hand.  Which is weird because usually my left hand is the problem.

I have vertigo and I am so dizzy.  My head feels very heavy and my feet don't want to walk when I want to walk.  I keep dropping things.  I fell in the kitchen, but caught myself on the counter.  My brain thinks my feet are walking, but they won't work and then I trip and fall.

I will be fine one moment and then cry the next.  I couldn't even go with my husband and kids to take them to the fire works tonight.

The fatigue is so horrible today.  I was unable to get anything done.  I would try, be on my feet a few minutes and then have to sit down.

Multiple Sclerosis Tracker

Dermatologist Dr. F.

Jun 22, 2009 - 0 comments

Dr F. looks at me like I am a crazy person.  He says the skin rash on my arms is something completely diff and not associated with an auto immune disorder.

The skin rash on my hands by this time is almost completely healed.  He said it looks like a contact allergy and is not Lupus.

He doesn't do a skin biopsy.  I am in and out in less than 7 minutes!

Multiple Sclerosis Tracker

Neuro visit with Dr C

Jun 02, 2009 - 0 comments

Dr's notes:
Symptoms remain persistant, but better
CSF results were unremarkable
Rash developed on hands

Assessment/Plan
Refer to dermatology --> skin biopsy
May need a nerve biopsy
appears to have a neuropathy??  Some sort of autoimmune disorder.

Multiple Sclerosis Tracker

CSF results

May 15, 2009 - 0 comments

Gram stain was normal
no WBC, no microorganisms
Glucose CSF WNL
Protein CSF WNL
WBC's 0
RBC's 3
Neutrophils 0
Lymphocytes 0
Monocytes 0
Eosinophils 0
Color clear


Multiple Sclerosis Tracker