Jul 05, 2014
Wow, I cannot believe that it's been so long since I wrote in my journal. Life has a way to moving on whether one is ready or not or able to keep up with it.
Health wise, I am good. No relapses since my diagnosis in August of 2010 and have been faithful to my copaxone injections. It is mystifying to me that some people with MS stop taking their DMD's when they feel good. Yikes. Until there is a cure, there is no stopping me from staving of my next relapse. All I have to do is read some of my old journal entries to remember how incredibly life altering a relapse can be.
To be sure life is easier now with the girls in college. It's a relief that they have grown to the point where they are spreading their wings and doing so well in their respective college environments. It also means less activity in our home, which means more time for me and all the things I put on the back burner like traveling, gardening, girlfriend stuff, home improvements, doggie time, date nights with my husband and just slowing down.
Summer is here so the girls are home (YEAH) and we have spent a lot of time in the pool enjoying the sun, music and each other's company. Heat sensitivity is still an issue with me but as long as I am in the pool, I rarely have a problem.
Next week I see my gp for my annual which includes a lot of blood work. Fortunately she shares the reports with my neuro so he doesn't have to redo any when I see him later this month. But this time of year means I will get my annual MRI. HATE, HATE, HATE them! Claustrophobia is real. Since my neuro knows this he give me magic pills to get through it but still...
It's this time of year that I cannot deny that I have MS. I do have tingling and various non painful sensations when I get over heated, which is so easy to do when it's summer in Texas. In spite of my mild symptoms (when I am not in a relapse) so far in my journey with MS, it is always there, the possibility and really if I am honest, the probability that my disease will progress to the point where my life will be effected in a more dramatic way.
I continue to exercise regularly, like at least 5 times a week, sometimes twice a day during the summer when I get in the pool to swim and also maintain my gym schedule. Who knows what will happen in the years to come. I can move now so I am going to continue to do so until I cannot anymore.
My food choices have gotten a lot more lax since my initial diagnosis. My past relapses have been in times of my life when I have been eating very healthy and times when I wasn't eating so healthy. It doesn't matter if food or diet effects MS symptoms positively or negatively, it's important to eat healthy for general health so I am cleaning my eating. The OMS diet is intriguing to me although I really ate very similarly when I was first diagnosed. Perhaps I will have another discussion with my neuro about it later this month.
Getting overly stressed and/or getting overly tired are the big commonalities with my relapses so that has been something that I have tried to manage. Yeah, it's been a bummer at times when I tell my husband, friends or family that I am just too pooped to do something but I know that I just cannot push myself like I did before my diagnosis. Fortunately, everyone has been pretty understanding of my medical condition. Still I wish I didn't have to be so careful. The exercise has helped with immediate daily stress relief. And I just started to see a therapist to help me with my lingering grief over a family death two years ago. This step should have been taken a year or more ago but life kind of got in the way. It's time, time to deal with the loss and the fallout that has changed the entire extended family dynamic. I am so grateful that the MS fatigue that is so common with so many is not an issue for me but the depression component of the disease is always lurking. Lesson learned.
I see a massage therapist about 3 times a month to work on my shoulders and back. She has been a gem in helping me to work out those knots, and aches and pains of daily living. Never have I taken for granted that I have the ability to afford the life I am living. It's a challenge sometimes to make it all work financially but I will do what I need to do to make sure that I stay as healthy as I can for as long as I can.
As I said when I started this entry, life moves on whether we are ready or able to keep up with it. It's best to embrace life's changes cause you really don't have a choice. Life moves forward, sometimes fast forward, and it's not good or healthy to be left behind.