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Cerebrospinal Decompression Surgery

Aug 30, 2009 - 0 comments

chiari I malformation







My daughter's surgery was Friday, August 14th, 2009.  We arrived at the surgical area at 5:30 am and her surgery was scheduled for 7:30. She was scared and even though she tries to act grown up, she's just ten. She cried when it was time to walk to the OR, so they did let us walk with her. The wait wasn't real long, but it felt like an eternity. They kept us up on where she was at in the procedure. Her surgeon was done at 10:30 and we first saw her around 11:30.

At 1:00 she was transferred from the surgery recovery area through a skywalk to the pediatric ICU. She spent three days there then was moved to the regular pediatric area. We were told she would probably go home on Monday, but she had a bleed that had to be monitored and a fever set in. Things got a little scary when she starting losing spinal fluid from her nose an left ear, but they watched her closely and did a CT scan. All was well structurally, but the fever persisted. A fever is normal after surgery ,but hers lasted longer than most. We went home on Thursday night and the fever lasted for 1 1/2 weeks after getting home. It would be anywhere from 99.6 to 100.8. Yesterday, August 29th, was the first day with a normal temp all day long. Yippee!

Taylor will go to school tomorrow, although she can't go to gym class until a month after her surgery date. She is still having some dizziness and mild frontal headaches when she is tired. We will have to watch this. It's totally possible that she truly has migraines in addition to the Chiari I malformation. Of course, her dad and I were hoping for the miraculous recovery that her 12 year old brother experienced after his Chiari surgery in October, but that may not be the case. Time will tell.

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