Jan 27, 2010
Lest I forget...
This was an email I wrote to LuLu... she asked me to post it in my journal as everyone needs a happy story every once in awhile...
Hi..Yes I am doing much better! Using the right end of the catheter seem to help some, LOL! I took your advice and I am getting much better about being able to do it (cath) on the commode. I am back to trying to drink more water and therefore cathing more.
I really appreciate you being here for me with a wealth of information at my finger tips.
I am not sure if you knew what all has happened since Thanksgiving or not? But, I am so excited I just wanted to share with you.
Three days after Thanksgiving I felt a little off and chose to go to bed early. The next morning I awoke to what I thought was the flu. Ron went to work and I slept. He came home and I slept never getting out of bed. The next morning I was so sick I did not know I was sick. Ron came into the room and said he had called both my GP and my neurologist and they said to take me to the ER. I had no idea why but bundled up and complied (it was easier)!
I got to the hospital and had a fever that was unbelieveable. I was admitted with H1N1 and Bacterial pneumonia. I spent 8 days in the hospital. As a college student I was begging to be released after I figured out "who" I was.
In that mess....I had a doctor who was a major jerk and a quack on top of it. He walked in my room without tests and said it is not pneumonia. You smoke so it is cancer of the bladder and lung cancer, you are dieing and will not see Christmas. We fired him. I ended up with a very nice pulmonologist..he got me as well as he could before I insisted on going home.
The week before Christmas the doctor we had fired called me here at the house. He claimed that before he was fired he had ran a urine FISH test on me (for cancer cells). In a score of 0-5 I was a five, that meant I had advanced bladder cancer. Later a Cytology urine test came back negative for cancer cells (new doctor ordered it).
I survived Christmas....No going home..just here with Ron and a diagnosis of cancer. My GP agreed that the test looked bad. so we waited for the 5th of January and my appointment with the urologist.
Now...after seeing a neurologist for numerous tests and my diabetis doctor who is constant... and all of those days in the hospital I was not in the mood to share the information that I could not pee and was swelling in my stomach as well as the pain. I learned last year that you tell the truth and it messes up your life. I am no longer able to drive because I admitted my seizures were acting up!
Back to my story:
So that was "why" I saw the urologist. So she did a cystoscopy in her office and saw no cancer. As I am allergic to Iodine she did not feel comfortable with a CT scan. So we scheduled day surgery for her to check everything including the kidneys. We did pre-op that day which included a chest X-Ray. My Uro calls and cancells the surgery as the Radiologist says I have nodules in my right lower lung lobe. Now the uro was thinking I had lung cancer and renal cancer, The surgery was cancelled.
Then a week ago she calls me on a Monday and says I changed my mind, we have to find out if the cancer is in your renal system because that would mean it had matatisized. We scheduled it for that Thursday.
While driving her scope where no one should be...she saw no signs of cancer but immeadiately knew I had a neurogenic bladder. Once I was awake she had me "go" then showed me how to cath. She was amazed at how much was retained. She said I have to be monitored for the next couple of year for cancer but she saw none. We leave still thinking about the lung nodule but relieved over the renal system.
Yesterday was the big day..we took all the x-rays to the pulomonologist from the hospital. He looked me over, looked at all of the x-rays and said.....Susie, I do not believe this is cancer. This is scar tissue from one of the worst cases I have ever seen of pneumonia and H1N1. This might go away but doubtful. IT DOES NOT look look like a nodule and I do not believe it is cancer. Then he said....The H1N1 is still working on your body. You still have pneumonia (I knew that)! Go home eat chicken soup. He said NO anti-biotics and no over the counter meds. He said that what little resistance to infection I had built up was destroyed with the anesthesia and meds I had, had in the hospital. Now, I have to rebuild again. He says it will be six months before I am well again.
But he said the magic words. No cancer. I see him in six months with new x-rays and a follow up. He says if it looks different or not like scar tissue we will pursue it. He said highly doubtfull...Probably send me home with an exercise program.
I know this is long but I am busting to tell everyone that I do not have cancer...after almost two months of being told I did....It feels GREAT..
Let the moral of this story be....Always get a second opinion and enjoy your life...it may be filled with trials but when you think your dieing from some terrible diease...you relalize how much you love your family and friends.
Yes, life is precious and dont forget to stop and smell the roses..
Hugs to all..