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Almost 4 weeks post RAI 131 & still trying to get back to "normal".

Mar 08, 2010 - 3 comments

RAI 131 radioactive iodine


thyroid cancer RAI 131 scan






Thyroid Cancer








TSH symptoms


High TSH

Well, it's been just silly. I feel better... every day or two...better than I did before. My face is still swollen, along with the rest of me. It's to be expected. I told my nuclear medicine doctor, "Doc after you pushed my TSH over 200+, you are a lucky man I am not a vain person, I just want my eye site back to normal so I can drive." He laughed and agreed he was indeed a lucky man, and simply stated it would be a few more weeks before my eyes would go back to "normal".

Now I wonder.

Did he laugh at how swollen I am, or did he laugh because he knows I'm too swollen & slow to take him in a fight? LOL!

He was right. It’s been a few weeks and I am now better than I was before, but still not back to "me'. My eyes are back so I can drive, but not so I can see the TV, or screen of my computer without severe squints, sitting super close or just hoping I hit the right key on the keyboard. My husband and I joke on how Mr. Magoo I look LOL I feel like an old Magoo. Napping is my super power...yeah that's what I got as a super power...the power to nap at random lmao! I am so wanting a refund! How can they have me eat toxic waste and I get no super power?! Pfft! Oh me being random...that was always a super power of mine even before RAI :P

For those of you who followed my past writing and asked about Dr. X. I did see him the day of my scan and each time he passed by me he kept his eyes to the ground and walked very swiftly. I myself stared intently at him. I dunno if it was just my poor vision and my super squinting that creeped him out, or the fear from our past interactions LOL

Today I walked into a door...well door jamb, and WAM! Smashed the crap out of my knee. /sigh I do that…water is where I belong, not land. I walk into things at random.

I am impatient.

I guess I am writing today out of some degree of frustration. I want to be all better now. I want this weight off. I want my eye sight back. I want my balance back. I want this swelling to go away, want my hair soft, my skin soft and my energy back to where it should be. I want mother nature to stop beating me up so badly every three weeks and most of all I want my children to feel comfortable hugging me again. I want to be normal again.

In two days it will have been 28 days since my "treatment" and 24 days back on my medicine.

I am impatient. The night sweats are gone. The headaches, most of the stuffy swelling in my nose is gone, so the snoring is much better. Much of the brain fog has lifted. My eye sight is improving too, so that I am able to get out and drive now with confidence I won't be in an accident. If I have enough sleep, I can function pretty well. I am sleeping in my own bed now back with my hubby safe and sound. No more air mattress! Oh man does my bed feel mmm mmm good!! I am more tolerant of cold, so I am down to wearing two layers and socks! Gotta have me socks! My energy is better. At my sons birthday party I climbed up a 13 foot incline and down a slide about 25 times. I had a blast!

I am impatient.

Good people and random acts of kindness keep me going toward "normal". Good friends and good family, love you all.

“Right from the moment of our birth, we are under the care and kindness of our parents, and then later on in our life when we are oppressed by sickness and become old, we are again dependent on the kindness of others. Since at the beginning and end of our lives we are so dependent on others kindness, how can it be in the middle that we would neglect kindness towards others?” -  Dalai Lama

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by LisafromFL, Mar 31, 2010
Once again, I love the way you write about your experiences.  I hope you publish this one day...

"How I Got My Radioactive Super Powers & Other Lies My Endo Told Me"

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by Justi_has_a_booboo, Mar 31, 2010
HAHA You are so awesome, if I do publish I am using your title! That is awesome!!

Avatar universal
by hypohelltwice, Jan 04, 2011
Keep it up I have bben there too.  Just finished my 2nd round of RAI *****...

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