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April

Apr 07, 2010 - 0 comments

Hi,

It is me again...I just wanted to jot all of this down before I forget.

My first "round" with the Urologist went pretty good.  No sign of cancer and my Cytology came back negative.  That means one good and one bad. It actually does not rule out the cancer but gives hope there is none.  So, I see her every three months for two years....Great.... like I can afford another doctor.  Before I left my appointment she told me how to self cath..Well, kind of and told me to do it three times per-day.

My folllow up appointment with her.....She said I definetly have a "Neurogenic" bladder.  She said to cath all the time now.  She also made me an appointment with a Neuro-Urologist.  That means Floroscopic Urodynamics.  "why" is this important?  No idea...Guess so I can pay payroll for another office and or maybe get another prescription so I can keep the pharmacuticals in business.

In the meantime, I saw the Pulmonologist who said he thinks I have scar tissue in the lung from the H1N1 and not cancer.  So, I have ANOTHER follow-up with him scheduled to see if the scar tissue has changed.  If it has then we have to do a biopsy.  I would prefer to not have to do the biopsy.

In the meantime #2 - My Neurologist lowed my dosage of Keppra (for the seizures) and we are now working on getting me off it as I am taking a full dose of Lamicatal. She checked my reflexes while I was in there and said their were hyperreflexive.  Plus we talked about a lot of other things...like I felt better on my Metanex and I want it back.  She gave it to me and I think I see a difference in the tremors and jerks.  She talked about a lot of other stuff like the chest squeeze and I dont know what all.  

She told me that when I had my MRI last year I had between 6 and eight "bright spots (glowing) on my brain...I Wish I did feel brighter...When your in school you need all the brightness you can get!  So....she wants to keep ruling stuff out or in?  Today, I am going in for another MRI with contrast.  They say it is head to toe.  She specifically wants the cervical.  Then......I have another scheduled appointment for an SEEP(?) not sure if I said that right or not...I guess it is some sort of electrical current they run from your brain down your legs....Gee, that sounds fun.  Then to top it all off.......The one thing I have managed to avoid is now becoming reality...The dreaded Lumbar Puncture...Whipppeee, I am so excited I could wet my pants.  I truely hope they have run out of torturous tests to run on me.

Then to top it all off....I went and seen my "endocrinologist...I have more "Ologists" than one person needs!  Anyway....I guess my blood tests came back and my A1C had risen a little but my Calcium levels are extremely high.  I have no idea what that has to due with the  "tea in China"...

So here I wait trying to find out if the MRI place received my "BUN and Creatine" levels so we can move forward with the MRI.  I have to admit I am more freightened of the MRI than most of the other....I have terrible closterphobia and my last MRI was not fun...But hey this time my Doctor gave me some Zanex to take and because of the Iodine allergy I am to take two benadryls.  Looks like if this is a go...I am gonna be one friend out momma...

See ya all later,
Susie the pin cushion..

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