Jan 09, 2016
I see two neurologists this month. Update from general neuro appointment is here ->
I see my ms neuro on the 21st. I also have a referral to a physiatrist which I'm grateful for, since dx or no, I need help with movement etc.
I've been having an incredibly difficult time this winter emotionally with respect to no answers. I would have thought after three years I would be settled in limbo, but it's actually been tougher recently. Probably because I continue with three relapses a year, and hit roadblocks because there is no diagnosis. I dislocated my knee August 2015 because of foot drop and muscle weakness -- lengthy recovery and can't be braced because of the confusion of what is actually wrong.
This year, relapses in March (6 weeks -- bladder/legs), end of July (3 weeks palate weakness/swallowing/choking/speech but the lack of sleep due to this relapse and the knee issue ended up causing 3.5 weeks of vision issues in September), and December (4 weeks -- cognitive/speech and massive fatigue).
It gets old :P.