Aug 12, 2010
My name is Kelly, I'm 32 and live in Lincoln, Nebraska.
Symptoms: Extreme fatigue, bilateral forearm and lower leg weakness, gait disturbance, ataxia, dizziness/unsteadiness, one 'attack' of vertigo (lasted about 9 days), really bad heat intolerence, hand tremors (not all the time, just when I do too much), dropping things, no reflexes in knees (neuro hit them 3x before it moved slightly), low blood pressure, reoccuring MRSA infections, TN, syncope (1x), muscle twitches (random parts of the body but lately more in the face/neck), random intense bone pain that lasts about 5 seconds, lower back pain, also having a harder time forming sentences and finding the right words, invisble feeling in forearms, and while lying down my legs feel invisible as well.
MRI/MRA (brain/neck/spine, with and w/o dye): Negative
VNG: Negative for inner ear disorders
EEG: Negative for seizures
B-12 (390): They said it was low, not deficient. I am doing monthly injections for six months and then they'll recheck levels. After 4 injections I haven't seen any improvements.
West Nile: Negative
ANA: Slightly elevated
SED: Slightly elevated as well (but had a MRSA infection at the time of test)
A1C: Negative for diabetes.
Next neuro appt: August 31st, 2010
Thanks for reading.